Results for search term "#Rare".

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Reply on Strep Group C and Joint Pain Flare-ups - Please help

Hello @looking4advice and welcome to Mayo Connect. I am sorry to hear of these difficult symptoms and the lack of answers and/or treatment. Many of us on Connect have had rare and/or hard to diagnose medical problems and we understand the frustration that goes with this. You [...]

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Reply on Adult Life after a Traumatic Brain Injury (TBI)

Hi @neet, I would like to add my welcome to Connect along with @lisalucier and other members. I did find a few articles on head injuries and arachnoid cysts but I'm not sure if you've seen them or if they are helpful. PubMed - Sport-related [...]

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Reply on Neuropathy and other strange symptoms

Hello @vradifegari -- I would like to add my welcome to Connect along with @gingerw and other members. I noticed that you also posted in the Chronic Pain members - Welcome... discussion in the Chronic Pain group. You mentioned you now have polyradiculoneuropathy and [...]

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Reply on Diagnosed with AL Amyloidosis. What can I expect?

@nick0820 Please keep us in the loop of communication! It's great you are not letting this get you down, and We're with you, hoping for a good holiday season with your family. In 2015, when I was diagnosed with an ultra-rare kidney disease, the renal pathologist had [...]

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Reply on Neuropathy and other strange symptoms

Hi @lisalucier , I have the pain everyday, but some days it's more intense. I'm on lyrica, tramadol, effector, Clonazepam, vitamin D3 and synthroid. The toughest part is the extreme fatigue when I wake in the middle of the night several times. Tomorrow I have a bone scan [...]

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Great opportunities are heavy burdens: meet @becsbuddy

Member Spotlights feature interviews with fellow Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight. JOHN: What brought you to Mayo Clinic Connect? What motivates you to take part in the community? [...]