Results for search term "#Rare".

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Reply on Stage 4 ckd

@anet Hi, I am 65 years old and am also stage 4. In the last 4 years my GFR has ranged from a low of 10 to a high of 17. My CKD is the result of a rare reaction to chemo for pancreatic cancer. Because they [...]

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Reply on Raynaud's with Buerger's Disease and Severe Chronic Fatigue

Hi @nancygayle, Welcome to Connect. I know it must be a very painful disease. Did your doctor suggest or have you make any lifestyle changes? The National Organization for Rare Disorders has some information standard and investigational therapies for Buerger's disease. https://rarediseases.org/rare-diseases/buergers-disease/ [...]

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Reply on Grover's disease

Hi @carrie14, I noticed that you wished to post a URL to a web resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to [...]

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Reply on What ways you can help when you can’t be a living donor?

@keggebraaten I asked my transplant surgeon about this, if my liver could be re-transplanted when I die. He said it is rare but possible. I figure that at this time my liver is only 37 years old and very well taken care of so I would love [...]