Mayo Clinic Connect

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Reply on Hashimoto's Thyroiditis and IVIG Treatment?*

I have had Hashimoto's since my teens. I now have CIDP, a rare autoimmune neurological disorder, and receive IVIG (40 grams) five times in every four-week cycle. It hasn't had the slightest effect on my thyroid. My thyroid gland doesn't produce normal hormones. It was almost destroyed by the Hashimoto's. [...]

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Reply on Please help reduce my stressing...test results may indicate cancer

I hope that the pathologist also considers the possibility of Langerhans Cell Histiocytosis in examining the biopsy tissue. It is very rare,especially in adults, and consequently can take a long time to be diagnosed. It is slightly more common in children. I have skin only, but it more commonly causes [...]

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Reply on Kidney stones

My husband had kidney stones twice and first time was off the wall painful for him the second time I gave him fresh lemon juice water 3 times a day and he passed it pain free . You need an ultrasound . It is rare lemon juice would be a [...]

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Reply on Kidney stones

I have been at stage 3, close to 4, for 8 years. First and foremost is diet, consisting of limited sodium and trying to save protein for dinner. Forget the salt shaker. Protein it is mostly chicken breast and fish, usually salmon or tuna. My wife is good at preparing [...]

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Reply on Kidney stones

@lagrange5 Good morning! Like you, I am in Stage 3b, hovering around eGFR of 34, due to an ultra-rare disease where my body is choking off the filtering components of my kidneys. Formal diagnosis was early 2015, and confirmed again Oct 2019. Red meat maybe three [...]

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Ginger, Volunteer Mentor (@gingerw)

Profile for Ginger, Volunteer Mentor

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Genetic Heart Rhythm Diseases

Welcome to the Genetic Heart Rhythm Diseases page. The Mayo Clinic Windland Smith Rice Genetic Heart Rhythm Clinic, with the Windland Smith Rice Sudden Death Genomics Laboratory in Rochester, MN, is dedicated to diagnosing, treating, and researching all types of genetic heart rhythm diseases that can cause sudden death. [...]

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Reply on Extreme weight loss, cannot eat. No diagnosis yet.

Sorry for your dilemma. Not being able to eat is quite scary. I am wondering, did you use excessive over the counter pain medications like ibuprofen, Aleve, Advil and the like? If so, you may have destroyed your stomach and gut which maybe the cause of your inability to eat. [...]

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Reply on Extreme weight loss, cannot eat. No diagnosis yet.

@filiond - Thank you for your quick response. I am not sure that even many gastroenterologists are very familiar with the illness- it is rare. They would first do a Doppler ultrasound to check the blood flow in the abdomen. That’s an easy test. To confirm a [...]

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Transplant

Welcome to the Mayo Clinic Transplant page! Here you can learn about heart, liver, kidney, pancreas, lung, hand, face, and blood and bone marrow transplant, living donation, read articles from the Mayo Clinic team, patient stories and much more. Our transplant page is designed to bring relevant and informative transplant [...]

NEWSFEED POST

A Recipe for Connection, Conversation and Living with CKD: Meet @kamama94

Member Spotlights feature interviews with fellow Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight. ROSEMARY: What brought you to Mayo Clinic Connect? What motivates you to take part in the [...]

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Reply on Let's Talk about Gardens

Hi Sue, So,so glad there is a plant EXPERT among the crowd. Definitely will not touch the Rosa rugosa plant. Don’t need any suckers, or thorns. And to invade the lawn, no way. Like you deer have never touched my roses, nor my neighbors who are backed up to open [...]

DISCUSSION

Rare cancer: ovarian clear cell carcinoma

Connect with others with ovarian clear cell carcinoma

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Reply on Liver Resection: Is surgery the only option?

Hello @tearose, I am glad to hear that you are relatively symptom-free. I also have pancreatic cysts (many of them) and we watch and wait with those. For several years, MRIs and CT scans also showed what was considered an "Indolent lesion" on the liver. My [...]

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Reply on Rare cancer: ovarian clear cell carcinoma

I did not realize that you would need surgery again. I assumed that you had optimal debulking with your initial surgical procedure.What is this next operation? If you've not had the tumor removed, they will probably recommend an abdominal hysterectomy (so as to avoid rupture of the ovary) which I [...]

DISCUSSION

Taking Eliquis and Metoprolol for A-fib: Concerned about side effects

Just diagnosed. Doctor prescribed Eliquis and Metoprolol. I was wondering what side effects common. I read there is a rare side effect of hair thinning for metoprolol. (take 25 mg 2x day) Also read that Eliquis can sometimes cause some stomach discomfort. (5 mg 2x day) Can either medications be

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Reply on Rare cancer: ovarian clear cell carcinoma

Dear Stacie, I'm so sorry that you've become a member of this "group" as no one expects this to happen. I was absolutely stunned myself as I was very healthy and had no risk factors to my knowledge. In fact, I had had an endometrioma about 18 years prior to [...]

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Reply on Rare cancer: ovarian clear cell carcinoma

@colleenyoung and @odette Hello, I am brand new to the group. Hi to everyone else, thank you for sharing your stories. I am in the beginning stages of all of this and still in shock and disbelief. I am a healthy 46 year old [...]

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Reply on Let's Talk about Gardens

@funcountess, Such lucious colors! I never thought about them living for 50 years, you must be a loving gardener with a with a well deserved green thumb. I remember as a child that my dad had roses. He and a neighbor were always talking roses and sharing, [...]

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Caregivers: Dementia

Welcome to a place where you will meet people caring for someone living with dementia, including mild cognitive impairment (MCI), Alzheimer's, young onset dementia, vascular dementia, frontotemporal dementia, Lewy body dementia, Creutzfeldt-Jakob disease, Down syndrome and rare forms of dementia. Join the discussion! Ask your questions, share your story, or [...]

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Reply on Hashimoto's Thyroiditis and IVIG Treatment?*

Reply on Please help reduce my stressing...test results may indicate cancer

Reply on Kidney stones

Reply on Kidney stones

Reply on Kidney stones

Ginger, Volunteer Mentor (@gingerw)

Genetic Heart Rhythm Diseases

Reply on Extreme weight loss, cannot eat. No diagnosis yet.

Reply on Extreme weight loss, cannot eat. No diagnosis yet.

Transplant

A Recipe for Connection, Conversation and Living with CKD: Meet @kamama94

Reply on Let's Talk about Gardens

Rare cancer: ovarian clear cell carcinoma

Reply on Liver Resection: Is surgery the only option?

Reply on Rare cancer: ovarian clear cell carcinoma

Taking Eliquis and Metoprolol for A-fib: Concerned about side effects

Reply on Rare cancer: ovarian clear cell carcinoma

Reply on Rare cancer: ovarian clear cell carcinoma

Reply on Let's Talk about Gardens

Caregivers: Dementia