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Hi there, I have the exact same symptoms as you and I am scheduled for a...
the 29th to confirm or rule out AL Amyloidosis
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@msbailey75 My heart muscles are stiffening, and enlarging. They quiver and vibrate as they contract and...
what I have, a hereditary Gelsolin Amyloidosis
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@ocogram I also have headaches almost every day, right behind the eyes and around the crown...
I have ocular amyloidosis, systemic,
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I have MGUS (BMB 15% but oncologist says still MGUS) was tested last summer for amyloidosis...
still MGUS) was tested last summer for amyloidosis
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Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...
Have you been checked for Amyloidosis
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