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148 total results
Comment
Hello @rkincaid -- Have you looked into genetic testing? It's how my daughters Long QT Syndrome...
https://connect.mayoclinic.org/comment/184752/
It's how my daughters Long QT Syndrome ... Mayo Clinic Led Study on Long QT Syndrome ... discussion/mayo-clinic-led-study-on-long-qt-syndrome-sheds-light-on-genetic-testing ... video)
NIH - Genetic testing for long ... www.genedx.com/test-catalog/disorders/long-qt-syndrome-lqts
Comment
I was in the ER with vomiting and dehydration. The doctor told me I had long...
The doctor told me I had long QT and ... I did that and now long QT does not
Comment
I was diagnosed with genetic long QT last year, and wondering about meds for treating the...
I was diagnosed with genetic long QT
Comment
There is a website for long qt people to check their drugs Credible meds.org
There is a website for long qt people
Comment
I hear dr Ackerman at Rochester is the best in the world for long qt
Rochester is the best in the world for long ... qt
Discussion
Anyone out there living with primary autoimmune myelofibrosis?
have a heart rhythm condition called Long ... QT Syndrome which I found out about ... ;the medication game." Due to Long ... QT Syndrome, there are so many medications
Discussion
My doctors have decided not to treat my MAC or Broncheostatis
pre-existing heart condition I have called Long ... QT Prolongation Syndrome they cannot ... QT is where your heart stops beating ... come with the side effect of causing QT ... I write this long saga to ask for advice
Newsfeed Post
Who is Windland Smith Rice?
Ackerman, is dedicated to researching long ... QT syndrome, hypertrophic cardiomyopathy ... died unexpectedly in her sleep of Long ... QT Syndrome at the age of 35.
Newsfeed Post
Do you know the SADS warning signs?
These SADS Conditions include:
Long ... QT Syndrome (LQTS)
Brugada Syndrome ... Ventricular Tachycardiac (CPVT)
Short QT ... Death Syndrome (SIDS) cases are due to Long ... QT Syndrome.
Discussion
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
injections or pills, which have lower long ... QT heart risk); but I see nothing dedicated
Newsfeed Post
Evaluating the Family After Sudden Death in the Young
Ventricular Tachycardia (CPVT)
Long ... QT Syndrome (LQTS)
Short QT Syndrome ... and unexpectedly, tells her family's long ... QT syndrome (LQTS) story.
Newsfeed Post
Avoiding ICD Implantation in Primary Electrical Disease
electrical heart diseases, chiefly long ... QT syndrome (LQTS) and catecholaminergic
Newsfeed Post
Good news for QT syndrome patients
Good news for QT syndrome patients ... potentially-fatal heart rhythm condition known as long ... QT syndrome.
Discussion
Bronchiectasis: Understanding symptoms
She also has a DX of long qt syndrome ... Then she went on a day long field trip
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