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156 total results
Comment
Hello! I also have Long QT Syndrome. I was diagnosed in 2017 and had a defibrillator...
I also have Long QT Syndrome. ... anything, I am happy to help a fellow Long ... QT Syndrome heart buddy.
Posted: Sep 20, 2025
Comment
Hello to Everyone in this discussion about Long QT Syndrome. I would like to post a...
Everyone in this discussion about Long ... QT Syndrome. ... recent Mayo Radio broadcast about Long ... QT Syndrome with Michael Ackerman,
Posted: Jul 15, 2020
Discussion
Anyone out there living with primary autoimmune myelofibrosis?
have a heart rhythm condition called Long ... QT Syndrome which I found out about ... Due to Long QT Syndrome, there are so
Support Group: Autoimmune Diseases
Last active: 4 days ago
Discussion
My doctors have decided not to treat my MAC or Broncheostatis
pre-existing heart condition I have called Long ... QT Prolongation Syndrome they cannot ... QT is where your heart stops beating ... come with the side effect of causing QT ... I write this long saga to ask for advice
Support Group: MAC & Bronchiectasis
Last active: Mar 6, 2025
Newsfeed Post
Do you know the SADS warning signs?
These SADS Conditions include: Long ... QT Syndrome (LQTS) Brugada Syndrome ... Ventricular Tachycardiac (CPVT) Short QT ... Death Syndrome (SIDS) cases are due to Long ... QT Syndrome.
Katrina Sorensen, Research Coordinator | @katrinasorensen
Published: Jul 22, 2020
Newsfeed Post
Who is Windland Smith Rice?
Ackerman, is dedicated to researching long ... QT syndrome, hypertrophic cardiomyopathy ... died unexpectedly in her sleep of Long ... QT Syndrome at the age of 35.
Katrina Sorensen, Research Coordinator | @katrinasorensen
Published: May 31, 2019
Newsfeed Post
Evaluating the Family After Sudden Death in the Young
Ventricular Tachycardia (CPVT) Long ... QT Syndrome (LQTS) Short QT Syndrome ... and unexpectedly, tells her family's long ... QT syndrome (LQTS) story.
Katrina Sorensen, Research Coordinator | @katrinasorensen
Published: Feb 3, 2021
Newsfeed Post
Avoiding ICD Implantation in Primary Electrical Disease
electrical heart diseases, chiefly long ... QT syndrome (LQTS) and catecholaminergic
Katrina Sorensen, Research Coordinator | @katrinasorensen
Published: Aug 19, 2019
Newsfeed Post
Good news for QT syndrome patients
Good news for QT syndrome patients ... potentially-fatal heart rhythm condition known as long ... QT syndrome. 
Katrina Sorensen, Research Coordinator | @katrinasorensen
Published: Mar 20, 2019
Discussion
Profound autism and Seroquel
pm but due to a borderline EKG with qt ... stay for gi issues, sigmoidectomy and long ... has changed, more subdued ,taking a long
Support Group: Autism (ASD)
Last active: Feb 15 4:45pm