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Hi - My HOCM doc is at Johns Hopkins which is a COE. I was tested...
https://connect.mayoclinic.org/comment/1283183/
I was tested for amyloidosis early on ... would have referred me to their "amyloidosis ... treatment is very different for HOCM and amyloidosis
Comment
@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already...
Connect who have also have MM and amyloidosis ... Diagnosed with both multiple myeloma and amyloidosis ... quite a few conversations with MM/amyloidosis ... search=MM+and+amyloidosis+
How long ... ago were you diagnosed with MM and amyloidosis
Comment
Do you also have bronchiectasis or MAC? This is a group of patients with lung issues...
Is your stiff heart from Amyloidosis ... Mayo has an amyloidosis clinic and they ... There are also Facebook amyloidosis ... There are also other amyloidosis clinic
Comment
Hello, I came across your request for information on Amyloidosis. If you have not checked on...
across your request for information on Amyloidosis ... checked on VA benefits for those with Amyloidosis
Comment
Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...
hosted a webinar last June called "Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis-what-patients-need-to-know ... Kapoor, MD, provided an overview of amyloidosis ... mvpdda and @tmousetis who also have AL amyloidosis
Discussion
Any on here have hcm and been diagnosed with Al Amyloidisis
have hcm and been diagnosed with Al Amyloidisis ... chains are high 50.1 Dr said that Amyloidisis ... Everything is pointing towards AL amyloidisis
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