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Comment
Hi @joycehocm, Thanks for updating the group about your visit! Have you had a chance to...
https://connect.mayoclinic.org/comment/1176258/
here on Connect regarding Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis ... health/conditions-and-diseases/cardiac-amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... your next appointment to rule out amyloidosis
Discussion: Why Camzyos instead of surgery?
Support Group: Hypertrophic Cardiomyopathy (HCM)
Posted: Nov 19, 2024
Comment
Hi - My HOCM doc is at Johns Hopkins which is a COE. I was tested...
https://connect.mayoclinic.org/comment/1283183/
I was tested for amyloidosis early on ... would have referred me to their "amyloidosis ... treatment is very different for HOCM and amyloidosis
Discussion: Cardiac Amyloidosis
Support Group: Hypertrophic Cardiomyopathy (HCM)
Posted: Apr 16, 2025
Comment
@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already...
https://connect.mayoclinic.org/comment/1436574/
Connect who have also have MM and amyloidosis ... Diagnosed with both multiple myeloma and amyloidosis ... quite a few conversations with MM/amyloidosis ... search=MM+and+amyloidosis+ How long ... ago were you diagnosed with MM and amyloidosis
Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?
Support Group: Blood Cancers & Disorders
Posted: Nov 12, 2025
Comment
Do you also have bronchiectasis or MAC? This is a group of patients with lung issues...
https://connect.mayoclinic.org/comment/1023452/
Is your stiff heart from Amyloidosis ... Mayo has an amyloidosis clinic and they ... There are also Facebook amyloidosis ... There are also other amyloidosis clinic
Discussion: Newly dx with stiff heart
Support Group: MAC & Bronchiectasis
Posted: Feb 27, 2024
Comment
Hi Benjamin Hi and welcome to connect, I myself had one of the general conditions that...
https://connect.mayoclinic.org/comment/873897/
The 2 may be related only that amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Have you been Diagnosed with Amyloidosis
Discussion: Anyone have input on living with symptoms from cardiomyopathy?
Support Group: Heart & Blood Health
Posted: Jun 6, 2023
Discussion
Free light chain ratio in MGUS
https://connect.mayoclinic.org/discussion/free-light-chain-ratio-in-mgus/
about progression and specifically to amyloidosis
Support Group: Blood Cancers & Disorders
Last active: Sep 25, 2024
Discussion
Any on here have hcm and been diagnosed with Al Amyloidisis
https://connect.mayoclinic.org/discussion/any-on-here-have-hcm-and-been-diagnosed-with-al-amyloidisis/
have hcm and been diagnosed with Al Amyloidisis ... chains are high 50.1 Dr said that Amyloidisis ... Everything is pointing towards AL amyloidisis
Support Group: Hypertrophic Cardiomyopathy (HCM)
Last active: Jul 3, 2023