HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Dec 19, 2017

Research collaboration gives hope for future of babies with rare heart defect

By Suzanne Ferguson @suzannerferguson
  "He's amazing," Andrea Sexton says, beaming about her infant son. "He is the strongest little boy ... If you were just looking at him, you'd never know anything was wrong." Sexton and her husband, Heath Sexton, never imagined that would even be possible for their son Ryals after he [...]
Research collaboration gives hope for future of babies with rare heart defect
Dec 18, 2017

Roman Rubeck and Family - Pioneering the way for patients with hypoplastic left heart syndrome

By Suzanne Ferguson @suzannerferguson
  Congenital heart disease has a robust history of patient pioneers – the first people willing to take a chance on medical options or to find treatments not currently available to combat the reality of being born with a severe heart defect. History doesn’t always remember the names of those [...]
Roman Rubeck and Family - Pioneering the way for patients with hypoplastic left heart syndrome
Dec 5, 2017

Mayo Clinic, Children’s Minnesota announce rare congenital heart defect collaboration

By Suzanne Ferguson @suzannerferguson
ROCHESTER, Minn.— Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Minnesota are collaborating to prevent heart failure for hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of a child's heart is severely underdeveloped. [...]
Mayo Clinic, Children’s Minnesota announce rare congenital heart defect collaboration
Nov 28, 2017

Understanding FDA approved or allowed stem cell therapies

By Suzanne Ferguson @suzannerferguson
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is running clinical trials using stem cells derived from the individuals themselves (called autologous stem cells).  All of the clinical trials are being studied in accordance with the U.S. Food and Drug Administration (FDA). What are stem [...]
Understanding FDA approved or allowed stem cell therapies
Nov 8, 2017

Thank YOU for attending Feel the Beat 2017!

By Suzanne Ferguson @suzannerferguson
We had a fantastic event on Saturday, October 14 here at Mayo Clinic for the fifth annual Feel the Beat event! There were over 270 attendees from 12 states and Canada who traveled all the way to Rochester, Minnesota. We had a great lineup of speakers from Karen Wanek, Brenton [...]
Thank YOU for attending Feel the Beat 2017!