HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, please visit our website or contact HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Feb 24, 2020

Organizations with Heart: An Inspiring Conversation for CHD Month

By Brianna N. Tranby @briannatranby
During CHD Awareness Month, we hear many families share stories of their journey in the heart world. The community is very tightly knit, and many families are inspired to give back and find ways to support others. This support can be as simple as posting reassuring comments on social [...]
Organizations with Heart: An Inspiring Conversation for CHD Month
Jan 21, 2020

Tips on Preparing for College When You Have CHD

By Brianna N. Tranby @briannatranby
Going away to college can be both an exciting and scary time for young adults, including those with congenital heart disease (CHD). This article is designed to help incoming college students with CHD navigate this new chapter in life and learn how to take charge of their own healthcare. [...]
Tips on Preparing for College When You Have CHD
Jan 6, 2020

Interview with Tim Nelson, MD, PhD - Director of the Wanek Family Program for HLHS

By Brianna N. Tranby @briannatranby
  2020 marks the 10 year anniversary of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic! To kick off the celebration, I sat down with the program’s director, Dr. Tim Nelson, for a look back at the first 10 years – and a sneak [...]
Interview with Tim Nelson, MD, PhD - Director of the Wanek Family Program for HLHS
Dec 9, 2019

Your Guide to Children in Research

By Brianna N. Tranby @briannatranby
Demystifying Clinical Trials Series – Part 4The research world can seem confusing or overwhelming at times. Our ongoing series is designed to give you the information you need and help answer common questions. Part 4 in this series focuses on research involving children, and the special regulations that are [...]
Your Guide to Children in Research
Nov 25, 2019

Children's of Alabama Joins HLHS Consortium

By Brianna N. Tranby @briannatranby
  BIRMINGHAM, ALABAMA -- Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) and Children’s of Alabama are proud to announce their collaboration within the HLHS Consortium to provide solutions for patients with HLHS. The consortium aligns regional medical centers of excellence and [...]
Children's of Alabama Joins HLHS Consortium

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