HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Apr 15, 2019

FAQs on Umbilical Cord Blood Banking and Use

By Brianna Tranby @briannatranby
We get a lot of questions about banking umbilical cord blood (UCB).  Below, we answer some frequently asked questions on the different options that are available.  If you’d like more information on UCB, why it’s collected, and stem cells, you can read our blog post from September 2016. [...]
FAQs on Umbilical Cord Blood Banking and Use
Apr 10, 2019

The Children's Hospital at OU Medicine Joins HLHS Consortium

By Brianna Tranby @briannatranby
Pictured: Dr. Harold Burkhart and team perform surgery on a pediatric patient with HLHS at The Children's Hospital at OU Medicine.   OKLAHOMA CITY, Oklahoma – Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) and The Children’s Hospital at OU Medicine [...]
The Children's Hospital at OU Medicine Joins HLHS Consortium
Apr 3, 2019

Sixth Annual IMPACT Symposium to be held on April 6th

By Brianna Tranby @briannatranby
  The Innovative Minds Partnering to Advance Curative Therapies (IMPACT) Program will hold its sixth annual IMPACT Symposium this Saturday, April 6 in Eau Claire, WI.  The Eau Claire Mayo Clinic Health System and the University of Wisconsin-Eau Claire are excited to host the first event at the IMPACT [...]
Sixth Annual IMPACT Symposium to be held on April 6th
Mar 22, 2019

Umbilical Cord Blood Collection in a “Bomb Cyclone”

By Brianna Tranby @briannatranby
In mid-March, an HLHS mom delivered her baby at Children’s Hospital Colorado and the umbilical cord blood (UCB) was collected and prepared for shipment.  An inpatient nurse from the Maternal Fetal Care Unit called for pick-up, but there was a problem.  That day, Colorado was experiencing a rare, record-setting [...]
Umbilical Cord Blood Collection in a “Bomb Cyclone”
Mar 12, 2019

Save the Date! Feel the Beat 2019

By Brianna Tranby @briannatranby
Mark your calendars for the Feel the Beat 2019!  The seventh annual event will be held this year on Saturday, October 12th in Rochester, Minnesota. This exciting event is a great way to meet other families in the congenital heart defect world and will allow you to connect with doctors and [...]
Save the Date!  Feel the Beat 2019

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