HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, please visit our website or contact HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Dec 9, 2019

Your Guide to Children in Research

By Brianna N. Tranby @briannatranby
Demystifying Clinical Trials Series – Part 4The research world can seem confusing or overwhelming at times. Our ongoing series is designed to give you the information you need and help answer common questions. Part 4 in this series focuses on research involving children, and the special regulations that are [...]
Your Guide to Children in Research
Nov 25, 2019

Children's of Alabama Joins HLHS Consortium

By Brianna N. Tranby @briannatranby
  BIRMINGHAM, ALABAMA -- Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) and Children’s of Alabama are proud to announce their collaboration within the HLHS Consortium to provide solutions for patients with HLHS. The consortium aligns regional medical centers of excellence and [...]
Children's of Alabama Joins HLHS Consortium
Nov 19, 2019

Cincinnati Children's Hospital Joins HLHS Consortium

By Brianna N. Tranby @briannatranby
  CINCINNATI, OHIO — Mayo Clinic's Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) and Cincinnati Children's Hospital Medical Center are pleased to announce their collaboration within the HLHS Consortium to provide solutions for patients with HLHS. The consortium aligns regional medical centers of [...]
Cincinnati Children's Hospital Joins HLHS Consortium
Nov 13, 2019

New Long-Term Guidelines for Patients after Fontan

By Brianna N. Tranby @briannatranby
“Evaluation and Management of the Child and Adult with Fontan Circulation: A Scientific Statement from the American Heart Association.” Circulation.2019; 140:e234-e284 The American Heart Association (AHA) recently proposed new guidelines for how patients with Fontan circulation should be monitored for potential complications. The article also proposed a “Fontan [...]
New Long-Term Guidelines for Patients after Fontan
Oct 31, 2019

Interview with Kate Praska, RDMS – Obstetrics Sonographer (Part 2/2)

By Brianna N. Tranby @briannatranby
  October is Ultrasound Awareness Month. Because 60-70% of HLHS cases are diagnosed in utero by ultrasound, the ultrasound sonographer often plays a crucial role in a family’s HLHS journey.  Earlier this month, we shared Part 1 of our interview with Kate Praska, RDMS, an obstetrics (OB) sonographer [...]
Interview with Kate Praska, RDMS – Obstetrics Sonographer (Part 2/2)

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