HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Fri, Aug 26, 2016 2:24am

What is Feel the Beat and why should you attend?

By Suzanne R. Ferguson, @suzannerferguson

In 2013, team members of the Todd and Karen Wanek Family Program for HLHS wanted to find a way to thank research participants and their families for all that they have done for the program. Without their support and participation, none of the work would be possible. It was also a time to bring individuals and families together around the common goal of finding a cause and a cure for HLHS. Thus began the creation of Feel the Beat.

FTB-pic-800x533 Now in its fourth year, Feel the Beat has grown and continues to bring together families, advocates, researchers, and physicians to transform the future of HLHS. This year’s theme is collaboration and will focus on how by working together we can get more done to find a cause and a cure. You’ll hear from inspiring guest speakers, learn about the research taking place, find out about new collaborations from around the country, and take part in engaging activities.

We hope to see you on October 8, 2016, from 9 a.m. until 3 p.m. at Mayo Clinic in Rochester, MN!

Check back next week to read about our guest speakers.

Please register for Feel the Beat here! For any questions, please contact our HLHS team at HLHS@mayo.edu.

Can’t make it to Rochester, MN on October 8? Follow us on Twitter during the event and even ask our physicians and researchers any questions you may have using #feelthebeat2016. We will also be live streaming portions of the day so check back soon for more information!


The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.

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