As we reflect back on 2015, it has certainly been a busy year for us! We released some exciting results including a study on family heart defect screenings and a study on a possible genetic cause for HLHS. We also continued to make strides to get the word out about our program and the work we are doing here.
As we look towards 2016 and plan for the future, our hope is to engage more HLHS families in our program, help provide answers and guidance for those families who have recently been diagnosed with an HLHS baby, and find therapeutic options for all ages for the management of HLHS. We know how important it is that HLHS families have all the possible resources they need when they are searching for answers to their questions, a full understanding of the treatment options, and access to possible breakthroughs in HLHS research. We will continue to work hard every day to help support them in these areas.
In addition to our goals for 2016, we are working to delay and prevent heart failure for those with HLHS and other congenital heart defects. We are using our research and applying it to other congenital heart defects, in addition to HLHS, to help determine causes and find new treatment options. Our work wouldn’t be possible without the families who participate in our studies.
Here’s to another successful, productive and insightful year as we work together to find ways to transform the future of congenital heart defects!
Send an email to invite people you know to join the HLHS page.