Our fourth annual Feel the Beat event on October 8 will feature a wide variety of guest speakers. Here are two guest speakers we are excited to welcome. Check back next week to find out who else will be joining us!
In December of 2009, Stacey Lihn’s unborn daughter was diagnosed hypoplastic left heart syndrome (HLHS). In 2010, Stacey co-founded Sisters by Heart, a national non-profit supporting the single ventricle community. As parent lead of the National Pediatric Cardiology Quality Improvement Collaborative, Stacey has seen the tremendous role parents and patients play in partnering with clinicians, providing meaningful information and insights in improving care and outcomes for chronically ill children. Stacey currently serves on the American Board of Pediatrics Foundation. For the past few years, she’s provided first-hand experiences as a patient advocate while networking with practitioners, legislators, and policy makers, most notably speaking at the 2012 Democratic National Convention in support of the Affordable Care Act.
In 1990, Meagan Broucek was born with HLHS, transposition of the great arteries (TGA), and a ventricular septal defect (VSD). She has been an inspiration to other HLHS families as she shares her story through social media and answers questions others have about congenital heart defects. Meagan is also very active in the CHD world and dedicates her time to attending and speaking at different events for patient advocacy.
Can’t make it to Rochester, MN on October 8? Follow us on Twitter during the event and even ask our physicians and researchers any questions you may have using #feelthebeat2016. We will also be live streaming portions of the day on social media.
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.
Send an email to invite people you know to join the HLHS page.