This 7-minute video details the 5 Return-To-Play considerations for athletes with genetic heart diseases like LQTS, CPVT, and HCM, that the athlete, their families, coaches, and physicians should consider carefully before returning to play.
Genetic Heart Rhythm Diseases
Welcome to the Genetic Heart Rhythm Diseases page. The Mayo Clinic Windland Smith Rice Genetic Heart Rhythm Clinic, with the Windland Smith Rice Sudden Death Genomics Laboratory in Rochester, MN, is dedicated to diagnosing, treating, and researching all types of genetic heart rhythm diseases that can cause sudden death.
Follow the Genetic Heart Rhythm Diseases page and stay up-to-date as we post stories, clinical trials, and useful information regarding your genetic heart rhythm condition.
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Dr. Michael Ackerman reviews the five overarching QT preventative safety measures that patients with long QT syndrome (LQTS) should observe.
Dr. Michael Ackerman discusses the necessity of an AED as part of family safety gear for families with genetic heart rhythm conditions like LQTS, Brugada syndrome, and CPVT.
Dr. Michael Ackerman, a genetic cardiologist from Mayo Clinic, discusses concerns about vaccinations and flu shots for patients with genetic heart rhythm conditions like Brugada Syndrome (BrS), Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT), and Long QT Syndrome (LQTS). The benefits of being vaccinated far exceed the low risk the vaccination or potential fever could have on a genetic heart rhythm condition.
In this 35 minute lecture, Mayo Clinic Genetic Cardiologist Michael J. Ackerman, M.D., Ph.D., discusses who should and, more importantly, who should not receive an implantable cardioverter-defibrillator (ICD) for the management of their cardiac channelopathies, such as Brugada Syndrome (BrS), Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT), and Long QT Syndrome.
Dr. Michael Ackerman, Director of Mayo Clinic’s Genetic Heart Rhythm Clinic in Rochester, MN, provides a case study in the November 2016 issue of Mayo Clinic Proceedings which tells of a family who experienced the sudden death of a child, the well-meaning but incorrect way it was treated, and demonstrates an appropriate approach for interpreting and using genetic information to enhance the best care for patients and their families. Available at: http://tinyurl.com/jxm23dx
Mayo Clinic professor of medicine and pediatrics, Frank Cetta, M.D. and professor of medicine and pharmacology, Michael Ackerman M.D., discuss the importance of back to school screening for sudden cardiac death.
Identifying athletes at risk for SCD can be like looking for a needle in a haystack. In a video originally posted on TheHeart.org | Medscape Cardiology, Stephen Hammill, MD, talks to Michael J Ackerman, MD, and Douglas Packer, MD, about the many challenges involved, including why we need to think carefully about ECG screening and the importance of a proper history and physical for all patients, not just athletes.
Dr. Michael J. Ackerman, a genetic cardiologist and Director of Mayo Clinic's Windland Smith Rice Sudden Death Genomics Laboratory in Rochester, MN, explains in his article appearing in the June 2014 issue of Mayo Clinic Proceedings, the development of a simple 5-point scoring method which clinicians and genetic counselors can use in their pre-genetic counseling sessions with patients diagnosed with hypertrophic cardiomyopathy. Available at: https://tinyurl.com/la4u5ac
In this interview, Professor Michael J. Ackerman from the Mayo Clinic at Rochester MN, speaks about the Left Cardiac Sympathetic Denervation Therapy (LCSD) in patients with malignant VF syndromes. Though this technique itself is not very new but known for decades it is going to be a valuable further treatment option among pharmacologic therapies and ICD. The pediatric cardiologist successfully treated infants, small children, and adults and gives an overview of how the procedure is performed, what complications could occur, which patients would profit from an LCSD, and which ones would not. And he points out: LCSD is helpful, but it is not a cure. Ackerman presented this promising treatment option at the 5th Euro VT/VF 2013 meeting in Berlin, Germany.
Professor Michael J. Ackerman, M.D., Ph.D. from the Mayo Clinic at Rochester MN spoke at the 5th Euro VT/VF Meeting about athletes with arrhythmias like the Long QT Syndrome or the Brugada Syndrome taking part in competitive sports. The existing guidelines in the US and Europe are not evidence-based but just well-meant advice trying to prevent any risk for these athletes, Ackerman says. He called for a paradigm shift to provide the athletes with valuable data and information to decide for themselves whether they are willing to take the residual risk and continue their training and competitive activity.
Alfred A. Bove, MD, PhD, interviews Michale John Ackerman, MD, PhD, about guidelines for sports participation in athletes with heart disease.
In a video originally posted on www.theheart.org, Mayo Clinic cardiologist Douglas Packer, M.D., and Michael Ackerman, M.D., Ph.D., cardiologist and Director of Mayo Clinic's Long QT Syndrome Clinic, discuss Long QT Syndrome, the consequences of guideline-based recommendations for disqualification, and the JAMA article discussing sports guidelines for Long QT syndrome patients.
Mayo Clinic scientists presented research at the American Heart Associations Scientific Sessions 2009 in Orlando, showing that postmortem testing to identify genetic mutations for sudden unexplained death could be a less expensive manner to determine first-degree relatives' risk. Dr. Michael Ackerman, the study's senior author, talks about the research.
Chief Medical Officer Robert Nussaum of Invitae will be visiting with Dr. Ackerman about the newest techniques in genetic testing.
This week we are joined with Anne and Kevin LeMoyne’s founders of Lovin’ Every Day Foundation. Hear about their diagnosis, how they came to SADS and what they have done in the community.
This week Dr. Michael Ackerman will be joined by a surprise guest from the Facebook community. Our guest has joined us for several live sessions and will share their family's story along with how the SADS Foundation has helped them.
Dr. Mike Ackerman and guest Pediatric Cardiologist Dr. Robert Campbell of Children's Healthcare of Atlanta will discuss the importance of SCA awareness and prevention.
Join us this week as Dr. Ackerman interviews our international partners, Anne and John Jolly, from SADS UK. Hear about how they co-founded SADS UK and the work they’ve been doing to prevent SCA in the UK. They may also tell us about getting an MBE (Prince William gave Anne’s award).
Dr. Mike Ackerman is joined by Associate Editor of Circulation, Dr. Sami Viskin of Tel Aviv University's Sackler Faculty of Medicine. They will discuss some of the most remarkable papers published in Genetic Heart Disease space in the journal Circulation.
Closing off SADS Safe School month, Dr. Mike Ackerman discusses issues for middle school and high school kids with SADS conditions in the setting of COVID-19. Joined by Dr. Peter Aziz, Cleveland Clinic, and Dr. Aarti Dalal, St. Louis Children's Hospital.
This week Dr. Mike Ackerman is joined by a few members of the SADS Board, they will share their stories and their involvement with SADS.
Dr. Ackerman is joined by Rachel Flores, RN, and mom of CPVT teenager, and Richard Lamphier, RN, Project S.A.V.E. Program Manager for a discussion and kick-off of SADS Safe Schools month.
Dr. Ackerman and Dr. Susan Etheridge answer the top 10 frequently asked questions from the SADS community during the past 30 years.
Have the past months had an impact on your kids' mental and emotional health? You're not alone. Dr. Michael Ackerman with special guest Dr. Shannon Hourigan, a pediatric psychologist at Boston Children's Hospital answering questions related to mental and emotional health resiliency from the SADS community.
We asked the SADS community for feedback on topics for our weekly Facebook Live Q&As, and we were excited to discuss: ICDs and Device Therapy! Watch as the SADS Foundation community asks Drs. Charlie Berul and Mike Ackerman answer your questions about ICDs and Device Therapy for SADS conditions.
Hosted in English and Spanish with Drs. Mike Ackerman and Georgia Brugada.
Dr. Mike Ackerman, Richard Lamphier, RN from Project S.A.V.E., and Adrian Olmos, Director of Patient Advocacy at LifeSure Home AED Solutions. We are excited to have these CPR and AED experts available to educate and answer questions from our SADS community!
Dr. Ackerman and special guests of the Canadian SADS Foundation: Drs. Robert Hamilton, Andrew Krahn, and Shubhayan Sanatani.
Ask The Experts: Dr. Mike Ackerman is joined by Georgia Sarquella Brugada, MD, PhD Head of Pediatric Arrhythmias, Hospital Sant Joan de Déu, Barcelona - Universitat de Barcelona
Dr. Paul Thornton, Dr. Maully Shah, and Katherine Timothy (for which Timothy Syndrome is named) join Dr. Michael Ackerman to discuss Timothy Syndrome.
Dr. Christopher Semsarian at the University of Sydney, Australia, and Michael Ackerman at Mayo Clinic available to discuss and answer questions about SADS conditions.
Dr. Calkins, and Brittney Murray, CGC from Johns Hopkins joins Dr. Ackerman for a Q&A
Winners are: Aravind Gade, PhD, and mentor, Geoffrey Pitt, MD, PhD of Cornell Weill Medicine, New York City for basic science and Yukiko Asaki, MD and mentor, Susan P. Etheridge, MD of Primary Children’s Hospital/University of Utah, Salt Lake City for clinical/translational science category.
Mayo Clinic Genetic Cardiologist Michael J. Ackerman, M.D., Ph.D., provides a 50 minutes high-level lecture on Genetics and Genetic testing.
Dr. Michael Ackerman talks about sudden unexplained death in childhood. It's the 5th leading category of death in children ages 1 - 4. Dr. Ackerman explains the importance of raising awareness of sudden unexplained deaths in children.
Dr. Michael Ackerman welcomes you and your family to Mayo Clinic and helps you prepare for your first visit to Mayo Clinic's Genetic Heart Rhythm Clinic.
Dr. Michael Ackerman talks about the warning signs of Sudden Cardiac Death (SCD).
In this video first shown on Medscape Cardiology, Michael Ackerman, M.D., and Peter Noseworthy, M.D., discuss the evaluation of patients with sudden death.
Dr. Michael Ackerman, a pediatric cardiologist at Mayo Clinic, explains the heart rhythm condition known as long QT syndrome. This interview originally aired Sept. 16, 2017.
Michael Ackerman, M.D., Ph.D., Mayo Clinic expert on Long QT Syndrome and sudden death discusses sudden deaths in athletes.
Engaging panel discussion moderated by John Hockenberry, following the Mayo Clinic Transform 2013 Symposium "Science Sunday" session, with panelists Michael Ackerman, M.D., Ph.D., Lynn Hartmann, M.D., Michael Joyner, M.D., and sixth-grade students Joy Jasik and Hermanth Asirvatham.
Dr. Michael J. Ackerman, Windland Smith Rice Cardiovascular Genomics Research Professor and Professor of Medicine, Pediatrics, and Pharmacology at Mayo Clinic in Rochester, MN, discusses his article appearing in the October 2011 Issue of Mayo Clinic Proceedings on a relationship between victims of an otherwise unexplained drowning and a collection of genetic heart rhythm disorders known as the cardiac channelopathies. These findings have the potential to not only establish a genetic cause for the tragic drowning but to also significantly affect the health outcomes for the surviving family members. Available at: http://tinyurl.com/9yaef7l
"I have a negative test result. What do I do next?" (posted, May 2012) This pilot video features the first question submitted from Spain and is answered by Michael J. Ackerman, MD, PhD
"Does the drugs-to-avoid list mean you must always avoid those drugs or can you take some with a physician's guidance?" Posted Jun 13, 2012.
"When are they going to know what mutations are dangerous and which ones will never have an event?" (posted April 2012)
Results of a Long QT Syndrome study in the current issue of Circulation play an important role in understanding genetic testing's role in diagnosing disease, according to the senior author, Michael Ackerman, M.D., Ph.D., the Mayo Clinic pediatric cardiologist who directs Mayo's Long QT Syndrome Clinic and is the director of the Mayo Clinic Windland Smith Rice Sudden Death Genomics Laboratory.
Ronda King’s newborn son, Trevor, was diagnosed with a fatal heart rhythm problem and maybe the youngest patient to ever receive a cardiac pacemaker/defibrillator. Mrs. King describes the experience of bringing her son to see Mayo Clinic pediatric cardiologist, Michael Ackerman, M.D., Ph.D., for a second opinion.
Ronda King’s newborn son, Trevor, was diagnosed with a fatal heart rhythm problem and maybe the youngest patient to ever receive a cardiac pacemaker/defibrillator. Mrs. King describes the experience of bringing her son to see Mayo Clinic pediatric cardiologist, Michael Ackerman, M.D., Ph.D., for a second opinion.
In a video originally posted on TheHeart.org | Medscape Cardiology, Michael J Ackerman, MD, PhD, reviews the results of an institution-wide QT-alert warning system, the first of its kind.
Dr. Michael Ackerman, the Windland Smith Rice Cardiovascular Genomics Research Professor and Professor of Medicine, Pediatrics and Pharmacology, and Dr. Pedro Caraballo, Assistant Professor of Medicine from Mayo Clinic in Rochester, MN, assess the outcome of a study appearing in the April 2013 issue of Mayo Clinic Proceedings regarding the development of an institution-wide QT alert system and the mortality rates across diverse patient populations throughout Mayo Clinic's inpatient and outpatient practice whose electrocardiogram prompted an alert because of marked QT interval prolongation.