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Public Support Group 360 total results
Discussions (39)
Need help and advice. Where to stay for transplant review in JAX?
Coming in to Jacksonville on August 14th. Gabriel house has a waiting list.My best friend has been asked to arrive August 13th begin a 7...
Double Lung and a Kidney transplant, followed by a series of strokes.
My 43-year-old daughter received two lungs and a kidney last February. A few days after the procedures, she had called me, walked the hall for...
Transplant stories that inspire: What's yours?
Good morning everyone! As everyone in this group has seen, stories from people who have been through transplant can be inspiring to those who are...
After liver transplant, I have developed multiple lung nodules
I had one lung nodule because of old respiratory infection before liver transplant which was 3 years ago. In 3 years the nodules have increased....
Applying for Disability
Members have asked about Disability and the guidelines that are set that makes one eligible. Click here for the guidelines: https://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3_07 Bronchiectasis, COPD, Asthma, Pulmonary...
Iowa Medicaid and transplants
The financial dept is a joke. My daughter is 36 and needs a heart and double lung transplant. She moved to Iowa from Montana to...
Considering another Transplant
Hello, I am three years post Liver transplant (liver doing great). I am considering whether to proceed with going thru another transplant for lungs that...
Visitors policy for transplant caregivers at Mayo Clinic
Can anyone that has had a recent transplant please tell Me what visitor policy is right now? Can a caregiver be with the patient pre...
Are you familiar with Hepatopulmonary Syndrome and oxygen use?
My husband is a liver transplant patient. The transplant was six weeks ago! After the transplant, it was discovered he has hepatopulmonary Syndrome, a complication...
Living with cytomegalovirus (CMV) after liver transplant: Anyone?
Hi. Almost 1 year to the day on a full liver transplant. Things have gone really well except for a 4th trip back to AZ...
Liver transplant and CKD, now husband diagnosed with pancreatic cancer
My 70-year-old husband received the news last week that some tissue samples from an EUS came back as cancerous. He has a complex medical history...
Newby: Liver transplant success, complications due to pleural effusion
I just recently came up on this group and felt it would be beneficial for me to join. I received a liver April 2021 after...
Transplant Rejection news
Well I knew the journey would have ups and downs. And after my 15 mos checkup at Mayo this week I found out my heart...
Has anyone had experience with a Liver Transplant that has NET cancer?
Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...
PKD kidneys removed at time of transplant
PKD (Polycystic Kidney Disease) caused my kidneys to grow to be huge! Not only was I in stage 5 of kidney failure when I arrived...
Antibody tests and vaccinations in transplants
Following Johns Hopkins study on transplants vaccinations discussions on here. I got Moderna shots in Jan/Feb. 2021. After all the studies and discussions, got the...
The decision to be on a liver transplant list or not.
Hello all,This forum is so helpful with information on a subject that I'm relatively new to.I'm a healthy (other than liver) fit, active 73 yr....
Merkel Cell Carcinoma: Immunotherapy while on antirejection meds
I was diagnosed with MCC and had surgery and followed with 30 treatment of radiation on the right side of my head, cheek and neck.The...
Antibody-mediated rejection and Belatacept
I'm approaching my 4yr heart transplant anniversary at the end of July. I've had chronic antibody-mediated rejection (AMR) much of that time, necessitating extra treatments....
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