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Public Support Group 353 total results
Discussions (42)
Lung Transplantees: Let’s connect
Hi there! Where are all of the lung transplantees? Why do I never see any posts from them? Do I need to be in a...
Double Lung and a Kidney transplant, followed by a series of strokes.
My 43-year-old daughter received two lungs and a kidney last February. A few days after the procedures, she had called me, walked the hall for...
Interesting article about ECMO and lung transplants
I found this article to be very interesting and thought others might find it of interest. https://www.newyorker.com/science/annals-of-medicine/how-ecmo-is-redefining-death
CBD pre-transplant?
I currently being monitored (not listed yet) by Mayo Jax for possible Lung Transplant in the future. I have NSIP with fibrosis, plus Bronchiectasis. I...
Need help and advice. Where to stay for transplant review in JAX?
Coming in to Jacksonville on August 14th. Gabriel house has a waiting list.My best friend has been asked to arrive August 13th begin a 7...
Peth test: Waiting for transplant
Has anyone had a peth test that was positive that hardly is decreasing? My husband had one positive (he was told he could drink for...
Transplant stories that inspire: What's yours?
Good morning everyone! As everyone in this group has seen, stories from people who have been through transplant can be inspiring to those who are...
After liver transplant, I have developed multiple lung nodules
I had one lung nodule because of old respiratory infection before liver transplant which was 3 years ago. In 3 years the nodules have increased....
Applying for Disability
Members have asked about Disability and the guidelines that are set that makes one eligible. Click here for the guidelines: https://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3_07 Bronchiectasis, COPD, Asthma, Pulmonary...
Iowa Medicaid and transplants
The financial dept is a joke. My daughter is 36 and needs a heart and double lung transplant. She moved to Iowa from Montana to...
Second Transplants @ Mayo
Does Mayo Clinic in Phx do second lung transplants? I had a bilateral Feb 2015 & this spring developed chronic rejection BOS. My Dr's @...
Inroads to transplants
This morning, a Newsfeed post was put up by Mayo Clinic, talking about advances in lung, liver, and kidney transplants. It certainly has some great...
Considering another Transplant
Hello, I am three years post Liver transplant (liver doing great). I am considering whether to proceed with going thru another transplant for lungs that...
Visitors policy for transplant caregivers at Mayo Clinic
Can anyone that has had a recent transplant please tell Me what visitor policy is right now? Can a caregiver be with the patient pre...
Are you familiar with Hepatopulmonary Syndrome and oxygen use?
My husband is a liver transplant patient. The transplant was six weeks ago! After the transplant, it was discovered he has hepatopulmonary Syndrome, a complication...
Newby: Liver transplant success, complications due to pleural effusion
I just recently came up on this group and felt it would be beneficial for me to join. I received a liver April 2021 after...
Transplant Rejection news
Well I knew the journey would have ups and downs. And after my 15 mos checkup at Mayo this week I found out my heart...
PKD kidneys removed at time of transplant
PKD (Polycystic Kidney Disease) caused my kidneys to grow to be huge! Not only was I in stage 5 of kidney failure when I arrived...
Antibody tests and vaccinations in transplants
Following Johns Hopkins study on transplants vaccinations discussions on here. I got Moderna shots in Jan/Feb. 2021. After all the studies and discussions, got the...
The decision to be on a liver transplant list or not.
Hello all,This forum is so helpful with information on a subject that I'm relatively new to.I'm a healthy (other than liver) fit, active 73 yr....
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