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Public Support Group 380 total results
Discussions (43)
Lung Transplantees: Let’s connect
Hi there! Where are all of the lung transplantees? Why do I never see any posts from them? Do I need to be in a...
Feeling depressed 2 years after successful transplant
I had a successful double lung transplant in 2019. Over the past few years, I ‘ve struggled a lot with side effects of the transplant...
Interesting article about ECMO and lung transplants
I found this article to be very interesting and thought others might find it of interest. https://www.newyorker.com/science/annals-of-medicine/how-ecmo-is-redefining-death
Need help and advice. Where to stay for transplant review in JAX?
Coming in to Jacksonville on August 14th. Gabriel house has a waiting list.My best friend has been asked to arrive August 13th begin a 7...
Double Lung and a Kidney transplant, followed by a series of strokes.
My 43-year-old daughter received two lungs and a kidney last February. A few days after the procedures, she had called me, walked the hall for...
Peth test: Waiting for transplant
Has anyone had a peth test that was positive that hardly is decreasing? My husband had one positive (he was told he could drink for...
After liver transplant, I have developed multiple lung nodules
I had one lung nodule because of old respiratory infection before liver transplant which was 3 years ago. In 3 years the nodules have increased....
Transplant stories that inspire: What's yours?
Good morning everyone! As everyone in this group has seen, stories from people who have been through transplant can be inspiring to those who are...
Applying for Disability
Members have asked about Disability and the guidelines that are set that makes one eligible. Click here for the guidelines: https://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3_07 Bronchiectasis, COPD, Asthma, Pulmonary...
Iowa Medicaid and transplants
The financial dept is a joke. My daughter is 36 and needs a heart and double lung transplant. She moved to Iowa from Montana to...
Visitors policy for transplant caregivers at Mayo Clinic
Can anyone that has had a recent transplant please tell Me what visitor policy is right now? Can a caregiver be with the patient pre...
Are you familiar with Hepatopulmonary Syndrome and oxygen use?
My husband is a liver transplant patient. The transplant was six weeks ago! After the transplant, it was discovered he has hepatopulmonary Syndrome, a complication...
Pleural effusion from Peritoneal Dialysis prior to kidney transplant.
Has anybody had this issue of a pleural effusion from Peritoneal Dialysis? ( A build up of fluid outside the lungs). My husband was approved...
Living with cytomegalovirus (CMV) after liver transplant: Anyone?
Hi. Almost 1 year to the day on a full liver transplant. Things have gone really well except for a 4th trip back to AZ...
Transplant Rejection news
Well I knew the journey would have ups and downs. And after my 15 mos checkup at Mayo this week I found out my heart...
Has anyone had experience with a Liver Transplant that has NET cancer?
Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...
Transplant on hold due to pleural effusion
My husband was approved for a kidney transplant on 9/30/25 and was put on the list on 10/20/25. He has waited 9 months since his...
PKD kidneys removed at time of transplant
PKD (Polycystic Kidney Disease) caused my kidneys to grow to be huge! Not only was I in stage 5 of kidney failure when I arrived...
Antibody tests and vaccinations in transplants
Following Johns Hopkins study on transplants vaccinations discussions on here. I got Moderna shots in Jan/Feb. 2021. After all the studies and discussions, got the...
The decision to be on a liver transplant list or not.
Hello all,This forum is so helpful with information on a subject that I'm relatively new to.I'm a healthy (other than liver) fit, active 73 yr....
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