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Transplants Support Group

Public Support Group
353 total results
Discussions (42)
Double lung transplant
I have stage 3 emphysema. I m 40 years old and have been told I need to have a double lung transplant. I have been...
Support Group: Transplants
Last active: Sep 15 8:15am
Heart-Lung Transplant Journey
We are supporting a heart and double lung transplant family member. The transplant happened at Mayo in October, so we are looking for insights and...
Support Group: Transplants
Last active: Nov 22, 2020
Lung transplant possible for a person with dermatomyositis with ILD?
I have dermatomyositis with ILD for over 13 years. Since dermatomyositis is an autoimmune disease could a patient like me be able to have a...
Support Group: Transplants
Last active: Apr 28, 2016
Wait time for lung transplant at Mayo Jax.
I know there are many variables in waiting for a compatible lung . But does anyone know the average wait time to be transplanted?
Support Group: Transplants
Last active: Jun 3, 2023
Lung transplant: investigating the pros and cons of double transplant
I am at the beginnings of investigating the pros and cons of a double transplant. My pulmonary dr and I have been talking about it...
Support Group: Transplants
Last active: Dec 16, 2021
Lung Transplant: What can I expect?
I would like to know more about the procedure for Lung Transplant. My insurance approved my referral to UCLA. What can I expect?
Support Group: Lung Health
Last active: Feb 6 9:23pm
Does anyone regret getting a lung transplant?
My husband had Covid a year ago that resulted in pulmonary fibrosis in the bottom third of both lungs. Despite being on prednisone and cell...
Support Group: Lung Health
Last active: Feb 28, 2023
Anyone had a lung transplant? I have questions
Anyone a candidate for a lung transplant? If so I’d like particulars of how you have qualified and what age/health limitations were required.
Support Group: Transplants
Last active: Dec 17, 2021
What can I Expect for my Lung Transplant Review?
my name is Kevin. im coming into Mayo tomorrow. Im sraying at Gabriel's House. Im coming in for a Lung Transplant review. Ive been told...
Support Group: Transplants
Last active: Sep 20, 2019
How do you get in the loop for a possible lung transplant?
74 years old.. Rode a bike @2000 miles a year since 2006- Got Double Pnemonia-hospital for 5 days.. presently on 5 liters of 02 for...
Support Group: Transplants
Last active: Oct 15, 2023
Recent double lung transplant patient - need to hear others stories
Hello friends, My father had a double lung transplant surgery over two weeks ago. He was doing well and for the last week now has...
Support Group: Transplants
Last active: 30 minutes ago
Lung Transplant Post-op? would like to hear positive stories
My son is six years post kidney transplant this month! He is 21 now and was 12ish when diagnosed with HDR syndrome. Vanderbilt never confirmed...
Support Group: Transplants
Last active: Sep 7, 2022
Norovirus in lung transplant patient: Can oregano oil be taken orally?
With a double lung transplant and compromised immunity, the norovirus is hanging on. Nausea/vomiting being managed with Zofran, metoclopraminde, anti diarrheal, and nitazoxanide. But these...
Support Group: Transplants
Last active: Apr 1 7:07pm
I would like to hear from anyone who has had a lung transplant
I would like to hear from anyone who has had a lung transplant. Would you do it again? I know it's a very difficult procedure...
Support Group: Transplants
Last active: Sep 15 8:10am
Which hospitals accept Workers Comp for transplant?
Does anyone know who takes Workers Comp/Sedgwick in Southern California. I have thier approval/authorization for a double lung transplant and UCLA does not accept this...
Support Group: Transplants
Last active: Aug 15, 2023
Training my Dog to be a Service Dog - Post Transplant
Hey everyone! I am 24 years old and new to this website! I was wondering if anyone here had any experience in starting the process...
Support Group: Transplants
Last active: Aug 24, 2023
Lung transplants and wait times
Is there an average wait time for being on a transplant list? I have been on one for over 2 years and I think I...
Support Group: Transplants
Last active: Nov 8, 2018
Feeling depressed 2 years after successful transplant
I had a successful double lung transplant in 2019. Over the past few years, I ‘ve struggled a lot with side effects of the transplant...
Support Group: Transplants
Last active: Apr 27, 2022