Transplants Support Group

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Comments (112)

Welcome, @family1998love. There are several members here with polycystic kidney disease (PKD) who have had successful...

https://connect.mayoclinic.org/comment/1448530/

Discussion: Anyone with polycystic kidney disease post transplant?

Support Group: Transplants

Posted: Nov 27 8:17pm

Thanks for explaining. I think you might be interested in these related discussions by @stephanierp and...

https://connect.mayoclinic.org/comment/732297/

Discussion: PTE Secondary after kidney Transplant Experiences

Support Group: Transplants

Posted: Jul 30, 2022

Hello, Welcome! Yes, I have PKD and had a successful kidney transplant 5 years ago.

https://connect.mayoclinic.org/comment/1448987/

Discussion: Anyone with polycystic kidney disease post transplant?

Support Group: Transplants

Posted: 6 days ago

@seantraci9, I have just now tagged you to the discussion - Transplants>Liver Cysts with PKD. https://connect.mayoclinic.org/discussion/liver-cysts-with-pkd/...

https://connect.mayoclinic.org/comment/641843/

Discussion: My husband has polycystic liver disease w/an extremely enlarged liver

Support Group: Transplants

Posted: Oct 4, 2021

@kidneybean1, I encourage you to read these 2 discussions started by @jolinda. She shares her story...

https://connect.mayoclinic.org/comment/1023251/

Discussion: Polycystic Kidneys-double nephrectomy-Dr. Prieto-Transplant

Support Group: Kidney Conditions

Posted: Feb 26, 2024

@lcamino, Lynn, I just saw this article about PKD treatment at Mayo. I hope you find...

https://connect.mayoclinic.org/comment/155801/

Discussion: Looking for what to expect as I consider Kidney Transplant

Support Group: Transplants

Posted: Aug 24, 2017

I had a kidney transplant. Underlying problem was inherited PKD.

https://connect.mayoclinic.org/comment/106718/

Discussion: Living Life after your Transplant

Support Group: Transplants

Posted: Jul 5, 2016

Today on the blog we're introducing you to Jolinda. Jolinda came to Mayo Clinic needing a...

https://connect.mayoclinic.org/comment/138602/

Discussion: New Transplant Blog Posts

Support Group: Transplants

Posted: Mar 28, 2017

https://www.otsukapatiented.com/kidney-disease/community-stories/guilt-during-pkd-journey

https://connect.mayoclinic.org/comment/829787/

Discussion: Looking for what to expect as I consider Kidney Transplant

Support Group: Transplants

Posted: Mar 21, 2023

I do not have MM. I have pkd. I am a kidney transplant recipient. My transplant...

https://connect.mayoclinic.org/comment/1435112/

Discussion: Are any of you Multiple Myeloma patients post kidney transplant?

Support Group: Transplants

Posted: Nov 10 9:11am

I go to Mayo for my PKD care. They have an excellent nephrology department and the...

https://connect.mayoclinic.org/comment/824506/

Discussion: Bilateral Nephrectomy after transplant

Support Group: Transplants

Posted: Mar 11, 2023

@jolinda Do you have a hearing impairment also? I scanned back through your posts and I...

https://connect.mayoclinic.org/comment/216132/

Discussion: Anyone have tips on sun protection?

Support Group: Transplants

Posted: Feb 14, 2019

@l0lag0lag0b3 my apologies, I thought from your post you hadn’t received a transplant yet. Are you...

https://connect.mayoclinic.org/comment/799500/

Discussion: Liver Donor Kidney - what happens to the Adrenal Glands

Support Group: Transplants

Posted: Jan 20, 2023

Hi l0lag0lag0b3 native kidneys are removed due to bleeding, cancer, incurable infections in PKD, excessive size...

https://connect.mayoclinic.org/comment/798667/

Discussion: Liver Donor Kidney - what happens to the Adrenal Glands

Support Group: Transplants

Posted: Jan 19, 2023

Yes still on 5mg of Prednisone after 3.5 years... I thought that was normal ... yes/no...

https://connect.mayoclinic.org/comment/800360/

Discussion: Liver Donor Kidney - what happens to the Adrenal Glands

Support Group: Transplants

Posted: Jan 22, 2023

@jennifer0726, I can only try to imagine some of the questions that are filling your mind...

https://connect.mayoclinic.org/comment/327249/

Discussion: Kidney Transplant: Questions as I prepare for transplant

Support Group: Transplants

Posted: Nov 16, 2020

@lcamino, and kidney patients, Recently a member made a comment in a different transplant thread that...

https://connect.mayoclinic.org/comment/155798/

Discussion: Looking for what to expect as I consider Kidney Transplant

Support Group: Transplants

Posted: Aug 11, 2017

I'm tagging @jolinda on this discussion. She also had PKD and transplant. She may have additional...

https://connect.mayoclinic.org/comment/631704/

Discussion: Bilateral Nephrectomy after transplant

Support Group: Transplants

Posted: Aug 31, 2021

I'd also like to tag @coastalgirl @mattgnyc , and invite them to join this discussion and...

https://connect.mayoclinic.org/comment/155800/

Discussion: Looking for what to expect as I consider Kidney Transplant

Support Group: Transplants

Posted: Aug 22, 2017

Well it's been awhile since we have all "talked" but I thought I would share some...

https://connect.mayoclinic.org/comment/146953/

Discussion: This and That and Talk - My Transplant

Support Group: Transplants

Posted: Nov 14, 2017

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