Transplants Support Group

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Comments (269)

Hi. Thank you for sharing. How long did it take you to start feeling better after...

https://connect.mayoclinic.org/comment/223593/

Discussion: Liver transplant - Let's support each other

Support Group: Transplants

Posted: May 17, 2020

Liver transplant a little over a year ago. No symptoms but 3 months a go tested...

https://connect.mayoclinic.org/comment/1301864/

Discussion: What is the condition of your Transplanted Organ? - Do you know?

Support Group: Transplants

Posted: May 11, 2025

Hi @eaa2025 😊 It is nice to meet you! I had my kidney transplant in 2020....

https://connect.mayoclinic.org/comment/1355649/

Discussion: Recurring infections post transplant!

Support Group: Transplants

Posted: Jul 24, 2025

Thank you @l0lag0lag0b3 😊 I really appreciate discussing our challenges together. Your experience, knowledge and wisdom...

https://connect.mayoclinic.org/comment/806371/

Discussion: Kidney Transplant: Does your creatinine bounce around?

Support Group: Transplants

Posted: Feb 4, 2023

hi again. my son had blood taken again this morning and we are feeling lost! creatinine...

https://connect.mayoclinic.org/comment/842357/

Discussion: Kidney Transplant: Does your creatinine bounce around?

Support Group: Transplants

Posted: Apr 12, 2023

Thanks for your post about this. My husband goes in tomorrow for labwork. His symptoms are...

https://connect.mayoclinic.org/comment/970610/

Discussion: Switched from Tacrolimus to Belatacept

Support Group: Transplants

Posted: Nov 26, 2023

Hi @hello1234, the nurse says they will increase Myfortic to original level when CMV is consistently...

https://connect.mayoclinic.org/comment/761296/

Discussion: Anyone experience multiple CMV resurgences post kidney transplant?

Support Group: Transplants

Posted: Oct 14, 2022

He is not back on cellcept yet, because of low wbc. They took him off that...

https://connect.mayoclinic.org/comment/945311/

Discussion: Transplant: Vaccines: Covid, Flu, RSV

Support Group: Transplants

Posted: Oct 10, 2023

Hi @l0lag0lag0b3 😊 Thanks for jumping in to the discussion! Here is my story regarding my...

https://connect.mayoclinic.org/comment/805531/

Discussion: Kidney Transplant: Does your creatinine bounce around?

Support Group: Transplants

Posted: Feb 2, 2023

@xplantsister Hi I welcome you to connect and I did contract CMV from my donor. Mine...

https://connect.mayoclinic.org/comment/223594/

Discussion: Liver transplant - Let's support each other

Support Group: Transplants

Posted: May 20, 2020

Hi Terry. I had a liver transplant about 2 years ago. No CMV till the end...

https://connect.mayoclinic.org/comment/1456807/

Discussion: Care and community for post transplant patients when you return home?

Support Group: Transplants

Posted: Dec 9, 2025

I too got CMV from my donor heart but except for the valcyte i take 900mg...

https://connect.mayoclinic.org/comment/260661/

Discussion: Post Transplant Symptoms

Support Group: Transplants

Posted: May 1, 2019

Hi @hello1235, his CMV is resolving but not completely off Valcyte yet. Will know for sure...

https://connect.mayoclinic.org/comment/760379/

Discussion: Anyone experience multiple CMV resurgences post kidney transplant?

Support Group: Transplants

Posted: Oct 12, 2022

Thanks Hello1234, Happy to hear that you have overcome both CMV & BKV... . I certainly...

https://connect.mayoclinic.org/comment/856159/

Discussion: Anyone had experience with a Nephrostomy Tube?

Support Group: Transplants

Posted: May 8, 2023

Hi @eaa2025 No need to apologize for your delay in responding. I know you had a...

https://connect.mayoclinic.org/comment/1372193/

Discussion: Recurring infections post transplant!

Support Group: Transplants

Posted: Aug 16, 2025

@hello1234. I’m on Cellcept 500 mg. once a day. I’m trying to figure out what determines...

https://connect.mayoclinic.org/comment/653089/

Discussion: Anyone experienced Elevated Liver Enzymes from Cellcept or Tacrolimus?

Support Group: Transplants

Posted: Nov 11, 2021

Hi @cehunt57 😊 It sounds like you really went through a lot that first year! (Especially...

https://connect.mayoclinic.org/comment/656118/

Discussion: Transplant: Amoxicillin for dental appointment

Support Group: Transplants

Posted: Nov 20, 2021

I am doing labs every two weeks my wbc was 2 at last lab and I...

https://connect.mayoclinic.org/comment/949998/

Discussion: Anyone stop valcyte early?

Support Group: Transplants

Posted: Oct 18, 2023

My husband, 9 months post liver transplant, to my surprise, was advised by Mayo Clinic not...

https://connect.mayoclinic.org/comment/944120/

Discussion: Transplant: Vaccines: Covid, Flu, RSV

Support Group: Transplants

Posted: Oct 8, 2023

Hi @caretakermom 😊 The reason I asked about all your hubby's current meds, is the Valcyte...

https://connect.mayoclinic.org/comment/765040/

Discussion: Anyone experience multiple CMV resurgences post kidney transplant?

Support Group: Transplants

Posted: Oct 24, 2022

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