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Thyroid Cancer Support Group

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Discussions (24)
RAI Treatment
I just had my thyroid removed due to a large cancerous tumor. I am fairly sure that my physicians will strongly recommend RAI for at...
Support Group: Thyroid Cancer
Last active: Jun 16, 2025
RAI after total thyroidectomy, and postpartum
Hi everyone. I’m recently postpartum and while pregnant I was diagnosed with papillary thyroid cancer. I underwent a total thyroidectomy with right neck dissection a...
Support Group: Thyroid Cancer
Last active: Aug 17, 2025
Effects of radioactive iodine (RAI) Treatment
Hey guysThis is a desperate attempt in the hope someone else has been through this.I had 2 rounds of RAI - first in May 2021...
Support Group: Thyroid Cancer
Last active: Jan 31 1:15pm
Anyone have multiple rounds of radioactive iodine (RAI)?
I had a left neck dissection 3/2023, then thyroidectomy and partial central dissection 4/2023. 11/40 positive lymph nodes w/ positive margins so I had 150mci...
Support Group: Thyroid Cancer
Last active: Nov 20, 2023
Anyone have any questions about the RAI treatment?
As a thyroid cancer volunteer I have answered many questions about the radioactive iodine treatment so anyone has any questions I’d be happy to answer.
Support Group: Thyroid Cancer
Last active: Sep 24, 2025
Anyone have radiation iodine (RAI) Therapy after Thyroid Lobectomy?
Has anyone received RAI Therapy after only having a thyroid LOBECTOMY?From my research it's not as affective when you have a remaining lobe left. The...
Support Group: Thyroid Cancer
Last active: Feb 16, 2025
thyroglobulin and anti-thyroglobulin levels 4 months after RAI
My 18-year-old daughter is 7 months post thyroidectomy (many lymph nodes included) and 4 months post RAI treatment. Her TSH is 0.29 mU/L, thyroglobulin 0.6...
Support Group: Thyroid Cancer
Last active: Oct 28, 2025
Tall Cell Subtype, maybe RAI avid, TG levels are extremely high
Hi! My mother (58 years old) had a total thyroidectomy in January 2023. We didn't know it was cancer before the surgery, and we only...
Support Group: Thyroid Cancer
Last active: Sep 13, 2025
Radioactive iodine ablation
Good day I am due for a 2nd round of RAI treatment. I've read that radiation may cause secondary cancer. What are the chances that...
Support Group: Thyroid Cancer
Last active: Dec 27, 2022
Radioactive iodine or not
Hi all, I'm feeling lost and overwhelmed. I found out in April I have thyroid cancer. Then in May I had a TT and neck...
Support Group: Thyroid Cancer
Last active: Jul 14, 2024
Is Radioactive Iodine treatment used for all types of Thyroid Cancer?
Quick question..I haven’t received a solidified diagnosis yet as to which kind of thyroid cancer I have yet but does everyone go through radioactive iodine...
Support Group: Thyroid Cancer
Last active: May 20, 2024
8 months Post Thyroidectomy/Neck Dissection new biopsy
Hi All, I'm new here. I was diagnosed with thyroid cancer in Oct 2024. They removed the nodule, did a complete thyroidectomy and a neck...
Support Group: Thyroid Cancer
Last active: Aug 21, 2025
Papillary thyroid cancer: Overwhelmed by treatment options?
Papillary thyroid cancer that has spread to my lymph nodes. Had a partial thyroidectomy in Sept and waiting to get more tests to determine extent...
Support Group: Thyroid Cancer
Last active: Jan 3, 2025
Need support and hope: Dealing with mucositis and severe mouth ulcers
I am in need of support. Total thyroidectomy 4 months ago (Oct, 2025) and I am still miserable. The cancer had spread to many lymph...
Support Group: Thyroid Cancer
Last active: Feb 27 6:48am
Poorly differentiated thyroid cancer with BRAF and TERT mutations.
My mother was diagnosed with Poorly Differentiated Thyroid Carcinoma in November 2024. She got a total thyroidectomy that was complicated by an esophageal perforation and...
Support Group: Thyroid Cancer
Last active: Feb 18, 2025
Anyone balancing multiple health issues after thyroid cancer treatment
I had papillary thyroid cancer with removal of thyroid and RAI. On Tirosint and trying to get balanced. Still not ok after 11 mos. Horrible...
Support Group: Thyroid Cancer
Last active: Nov 25, 2025
Aggressive Papillary Thyroid Cancer
After my thyroidectomy for papillary cancer, the diagnosis turned out to be PT3A, which means the tumor is larger that 4 cm with no growth...
Support Group: Thyroid Cancer
Last active: Jul 5, 2025
Thyroid cancer diagnosis with a BRAF description
I had a thyroidectomy because of papillary cancer. In its description of the removed thyroid the pathology report noted a group of nodules as "BRAF...
Support Group: Thyroid Cancer
Last active: Jun 17, 2025
Are Endocrinologist the best MDs to treat Thyroid Carcinoma patients
It is frustrating to me that there are not designated thyroid oncologist! In my city, endocrinologist take many months to initially get an appointment with....
Support Group: Thyroid Cancer
Last active: Aug 21, 2025
When to get second opinion-recurrence possible?
Hi, I'm new here. I had papillary carcinoma in the 90s with a lobectomy. Fifteen years later I had total thyroidectomy for pap/follicular variant, followed...
Support Group: Thyroid Cancer
Last active: Mar 30, 2024