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Thyroid Cancer Support Group

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139 total results
Discussions (20)
RAI Treatment
I just had my thyroid removed due to a large cancerous tumor. I am fairly sure that my physicians will strongly recommend RAI for at...
Support Group: Thyroid Cancer
Last active: Jun 16 10:05pm
RAI after total thyroidectomy, and postpartum
Hi everyone. I’m recently postpartum and while pregnant I was diagnosed with papillary thyroid cancer. I underwent a total thyroidectomy with right neck dissection a...
Support Group: Thyroid Cancer
Last active: Aug 17 8:14am
Effects of radioactive iodine (RAI) Treatment
Hey guysThis is a desperate attempt in the hope someone else has been through this.I had 2 rounds of RAI - first in May 2021...
Support Group: Thyroid Cancer
Last active: Jan 9, 2024
Anyone have multiple rounds of radioactive iodine (RAI)?
I had a left neck dissection 3/2023, then thyroidectomy and partial central dissection 4/2023. 11/40 positive lymph nodes w/ positive margins so I had 150mci...
Support Group: Thyroid Cancer
Last active: Nov 20, 2023
Anyone have radiation iodine (RAI) Therapy after Thyroid Lobectomy?
Has anyone received RAI Therapy after only having a thyroid LOBECTOMY?From my research it's not as affective when you have a remaining lobe left. The...
Support Group: Thyroid Cancer
Last active: Feb 16 12:20am
Tall Cell Subtype, maybe RAI avid, TG levels are extremely high
Hi! My mother (58 years old) had a total thyroidectomy in January 2023. We didn't know it was cancer before the surgery, and we only...
Support Group: Thyroid Cancer
Last active: May 20, 2024
Radioactive iodine ablation
Good day I am due for a 2nd round of RAI treatment. I've read that radiation may cause secondary cancer. What are the chances that...
Support Group: Thyroid Cancer
Last active: Dec 27, 2022
Radioactive iodine or not
Hi all, I'm feeling lost and overwhelmed. I found out in April I have thyroid cancer. Then in May I had a TT and neck...
Support Group: Thyroid Cancer
Last active: Jul 14, 2024
8 months Post Thyroidectomy/Neck Dissection new biopsy
Hi All, I'm new here. I was diagnosed with thyroid cancer in Oct 2024. They removed the nodule, did a complete thyroidectomy and a neck...
Support Group: Thyroid Cancer
Last active: 3 days ago
Is Radioactive Iodine treatment used for all types of Thyroid Cancer?
Quick question..I haven’t received a solidified diagnosis yet as to which kind of thyroid cancer I have yet but does everyone go through radioactive iodine...
Support Group: Thyroid Cancer
Last active: May 20, 2024
Papillary thyroid cancer: Overwhelmed by treatment options?
Papillary thyroid cancer that has spread to my lymph nodes. Had a partial thyroidectomy in Sept and waiting to get more tests to determine extent...
Support Group: Thyroid Cancer
Last active: Jan 3 9:26am
Aggressive Papillary Thyroid Cancer
After my thyroidectomy for papillary cancer, the diagnosis turned out to be PT3A, which means the tumor is larger that 4 cm with no growth...
Support Group: Thyroid Cancer
Last active: Jul 5 7:48am
Poorly differentiated thyroid cancer with BRAF and TERT mutations.
My mother was diagnosed with Poorly Differentiated Thyroid Carcinoma in November 2024. She got a total thyroidectomy that was complicated by an esophageal perforation and...
Support Group: Thyroid Cancer
Last active: Feb 18 10:53pm
Are Endocrinologist the best MDs to treat Thyroid Carcinoma patients
It is frustrating to me that there are not designated thyroid oncologist! In my city, endocrinologist take many months to initially get an appointment with....
Support Group: Thyroid Cancer
Last active: 2 days ago
Thyroid cancer diagnosis with a BRAF description
I had a thyroidectomy because of papillary cancer. In its description of the removed thyroid the pathology report noted a group of nodules as "BRAF...
Support Group: Thyroid Cancer
Last active: Jun 17 8:33pm
When to get second opinion-recurrence possible?
Hi, I'm new here. I had papillary carcinoma in the 90s with a lobectomy. Fifteen years later I had total thyroidectomy for pap/follicular variant, followed...
Support Group: Thyroid Cancer
Last active: Mar 30, 2024
Follicular thyroid cancer found: Searching for advice from others
I am new to this site and searching for advice. In April 2020, I received a total removal of thyroid. The rest of 2020, was...
Support Group: Thyroid Cancer
Last active: Jan 22, 2023
Possible third neck dissection: Very scared
had my original TT and neck dissection in July 2017. Then a second central compartment dissection in March 2021. I had a PET scan last...
Support Group: Thyroid Cancer
Last active: Dec 20, 2023
TSH above normal, T4 high end of normal, why?
Had papillary carcinoma/follicular variant at age 25. Partial gland removal, then RAI ablation. I'm now 60. Levothyroxine dosage has been adjusted a few times but...
Support Group: Thyroid Cancer
Last active: Apr 13 3:55pm
4 years post op thyroidectomy what does your endo want to keep TSH at?
I am 4 years post op for papillary cancer. Also had several lymph nodes removed. This came one week after 2 parathyroids removed because of...
Support Group: Thyroid Cancer
Last active: 3 days ago