Support Groups

Thyroid Cancer Support Group

Public Support Group
97 total results
Discussion
Effects of radioactive iodine (RAI) Treatment
Hey guysThis is a desperate attempt in the hope someone else has been through this.I had 2 rounds of RAI - first in May 2021...
Support Group: Thyroid Cancer
Last active: Jan 9, 2024
Discussion
Anyone have multiple rounds of radioactive iodine (RAI)?
I had a left neck dissection 3/2023, then thyroidectomy and partial central dissection 4/2023. 11/40 positive lymph nodes w/ positive margins so I had 150mci...
Support Group: Thyroid Cancer
Last active: Nov 20, 2023
Discussion
Anyone have radiation iodine (RAI) Therapy after Thyroid Lobectomy?
Has anyone received RAI Therapy after only having a thyroid LOBECTOMY?From my research it's not as affective when you have a remaining lobe left. The...
Support Group: Thyroid Cancer
Last active: Feb 16 12:20am
Discussion
Tall Cell Subtype, maybe RAI avid, TG levels are extremely high
Hi! My mother (58 years old) had a total thyroidectomy in January 2023. We didn't know it was cancer before the surgery, and we only...
Support Group: Thyroid Cancer
Last active: May 20, 2024
Discussion
Radioactive iodine or not
Hi all, I'm feeling lost and overwhelmed. I found out in April I have thyroid cancer. Then in May I had a TT and neck...
Support Group: Thyroid Cancer
Last active: Jul 14, 2024
Discussion
Radioactive iodine ablation
Good day I am due for a 2nd round of RAI treatment. I've read that radiation may cause secondary cancer. What are the chances that...
Support Group: Thyroid Cancer
Last active: Dec 27, 2022
Discussion
Is Radioactive Iodine treatment used for all types of Thyroid Cancer?
Quick question..I haven’t received a solidified diagnosis yet as to which kind of thyroid cancer I have yet but does everyone go through radioactive iodine...
Support Group: Thyroid Cancer
Last active: May 20, 2024
Discussion
Poorly differentiated thyroid cancer with BRAF and TERT mutations.
My mother was diagnosed with Poorly Differentiated Thyroid Carcinoma in November 2024. She got a total thyroidectomy that was complicated by an esophageal perforation and...
Support Group: Thyroid Cancer
Last active: 5 days ago
Discussion
Papillary thyroid cancer: Overwhelmed by treatment options?
Papillary thyroid cancer that has spread to my lymph nodes. Had a partial thyroidectomy in Sept and waiting to get more tests to determine extent...
Support Group: Thyroid Cancer
Last active: Jan 3 9:26am
Discussion
When to get second opinion-recurrence possible?
Hi, I'm new here. I had papillary carcinoma in the 90s with a lobectomy. Fifteen years later I had total thyroidectomy for pap/follicular variant, followed...
Support Group: Thyroid Cancer
Last active: Mar 30, 2024