Sleep Health Support Group

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Comments (95)

I have Narcolepsy type 2 ( which you may know by now is N w/o Cataplexy)....

https://connect.mayoclinic.org/comment/805088/

Discussion: Narcolepsy Type 1 and connection with Kleine-levin syndrome?

Support Group: Sleep Health

Posted: Feb 1, 2023

I’m just joining the sleep disorder group because I have narcolepsy. I’m curious how other persons...

https://connect.mayoclinic.org/comment/1294470/

Discussion: other treatments for excessive daytime sleepiness than amphetamines?

Support Group: Sleep Health

Posted: May 1, 2025

@SusanEllen66 Thank you so much for pointing that out about Narcolepsy 2! I’m going to the...

https://connect.mayoclinic.org/comment/1229178/

Discussion: Can’t stay awake throughout the day, have narcolepsy. Suggestions?

Support Group: Sleep Health

Posted: Feb 4, 2025

Yes. I've read research papers about the rather surprising effects of that lack of orexin/hypocretin in...

https://connect.mayoclinic.org/comment/1299666/

Discussion: What happens as you become older with Narcolepsy?

Support Group: Sleep Health

Posted: May 8, 2025

Hi, @dcwash - welcome to Mayo Clinic Connect. Glad you came to Mayo Clinic for information....

https://connect.mayoclinic.org/comment/225950/

Discussion: Good information sources on Ritalin for adults for narcolepsy?

Support Group: Sleep Health

Posted: Nov 13, 2018

Hello, @kaseykalb, and welcome to Mayo Clinic Connect. You might be interested in reading and participating...

https://connect.mayoclinic.org/comment/214822/

Discussion: Anyone have Kleine-Levin Syndrome? Any advice?

Support Group: Brain & Nervous System

Posted: Sep 6, 2018

My doctor has never mentioned Narcolepsy. I used to take quite a bit of meds, but...

https://connect.mayoclinic.org/comment/115952/

Discussion: Sleep Apnea and adjusting to a CPAP machine: Tips?

Support Group: Sleep Health

Posted: Mar 24, 2017

You are not alone. I too have severe narcolepsy with cataplexy. I take generic Effexor. This...

https://connect.mayoclinic.org/comment/821732/

Discussion: Narcolepsy Type 1 and connection with Kleine-levin syndrome?

Support Group: Sleep Health

Posted: Mar 6, 2023

Honestly sounds like you have narcolepsy. I also have stupid long dreams every night and that's...

https://connect.mayoclinic.org/comment/815533/

Discussion: Medical marijuana for sleep disorders?

Support Group: Sleep Health

Posted: Feb 22, 2023

Not only not diagnosed, but not effectively TREATED. Either condition will possibly have the person appearing...

https://connect.mayoclinic.org/comment/1182722/

Discussion: Do people with sleep apnea need 10+ hours of sleep? Eyes?

Support Group: Sleep Health

Posted: Dec 1, 2024

Hello @rebeccamiller and welcome to Connect! Your post certainly presents a variety of problems that make...

https://connect.mayoclinic.org/comment/213087/

Discussion: Narcolepsy Type 1 and connection with Kleine-levin syndrome?

Support Group: Sleep Health

Posted: Aug 22, 2018

Thanks for the reply. She is 82. She is aware of the recurring super-naps. It's not...

https://connect.mayoclinic.org/comment/1523971/

Discussion: Frequent, sudden falling asleep

Support Group: Sleep Health

Posted: Mar 10 12:10pm

Hopefuly Armadafinil works for you. It made me so nervous I couldn't leave the house -...

https://connect.mayoclinic.org/comment/814170/

Discussion: Severe Dayime Sleepiness. What do I do?

Support Group: Sleep Health

Posted: Feb 20, 2023

@rjjacobsen I did a sleep study and was told that I have idiopathic hypersomnia. My brain...

https://connect.mayoclinic.org/comment/968056/

Discussion: Fitness tracker sleep data - extremely low deep sleep.

Support Group: Sleep Health

Posted: Nov 20, 2023

I take quetiapine, its not controlled or addictive and works really well. I have narcolepsy which...

https://connect.mayoclinic.org/comment/920750/

Discussion: Ambien stopped working. Ideas?

Support Group: Sleep Health

Posted: Aug 29, 2023

I don't consider Xywav to be especially risky for me. Yeah it's the date rape drug....

https://connect.mayoclinic.org/comment/1302845/

Discussion: Tried Xywav Narcolepsy / Hypersomnia Med?

Support Group: Sleep Health

Posted: May 12, 2025

@pjw5610 My aunt used to do that, but it was from exhaustion. What is your wife's...

https://connect.mayoclinic.org/comment/1523882/

Discussion: Frequent, sudden falling asleep

Support Group: Sleep Health

Posted: Mar 10 10:28am

@tim28 how did it go? I’m scheduled for a sleep study on June 13. The doctor...

https://connect.mayoclinic.org/comment/865381/

Discussion: Overnight Sleep Study Questions

Support Group: Sleep Health

Posted: May 23, 2023

Has anyone done an overnight sleep study? I did and it answered the question why do...

https://connect.mayoclinic.org/comment/1142650/

Discussion: Anyone wake feeling exhausted after seemingly dreaming all night?

Support Group: Sleep Health

Posted: Sep 16, 2024

@nanamillie I agree with the other responses here. He may have something other than sleep apnea,...

https://connect.mayoclinic.org/comment/1559562/

Discussion: Son falling asleep out of nowhere. What could cause this?

Support Group: Sleep Health

Posted: Apr 25 6:24pm

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