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Prostate Cancer Support Group

Public Support Group
607 total results
Discussions (45)
Recovery from Orgovyx?
I took orgovyx for about 1 year. Had 28 IBRT treatments for Gleason 6-7 prostate cancer. While on orgovyx my PSA was undetectable. I have...
Support Group: Prostate Cancer
Last active: Mar 30 3:55pm
Recent Orgovyx Validation
Recent validation of Orgovyx benefits vs Lupron. https://www.urologytimes.com/view/relugolix-plus-radiotherapy-shows-safety-efficacy-in-prostate-cancer
Support Group: Prostate Cancer
Last active: Mar 21 8:54am
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Apr 10 4:20pm
Orgovyx done. What to expect?
I have been off Orgovyx for 7 days. Having increased number of hot flashes and still having leg pain at night. Libido still gone. Anyone...
Support Group: Prostate Cancer
Last active: May 4 6:17pm
One month of Orgovyx completed
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As...
Support Group: Prostate Cancer
Last active: Jan 5 10:34am
What's your experience with Orgovyx (relugolix)?
Mods, if you think this redundant, please move or remove. I thought it might be helpful to have an orgovyx thread similar to the lupron...
Support Group: Prostate Cancer
Last active: May 16 10:19am
On Orgovyx and abiraterone: Radiation with or after ADT?
Hi,I have been diagnosed prostate cancer Gleason Score of 9 High risk.One Doc wants to start radiation therapy immediately. The other Doc wants to wait...
Support Group: Prostate Cancer
Last active: Mar 20 6:25pm
Orgovyx extreme fatigue side effects
I have been using Orgovyx several years for prostate cancer and am now have in extreme fatigue side effects during the afternoon. I take Orgovyx...
Support Group: Prostate Cancer
Last active: May 13 4:33pm
Starting Orgovyx - any advice based on experience?
I will be starting Orgovyx Monday, April 22. 1000mg Abiraterone and 5mg Prednisone will be added about a week later. The plan is 24 months...
Support Group: Prostate Cancer
Last active: Apr 23 3:49pm
Orgovyx and the timeline for return of normal testosterone level
I’ve been taking Orgovyx since 11.09.23. How long does it take for Testosterone levels to return to normal once I stop taking this drug? What...
Support Group: Prostate Cancer
Last active: Apr 27 7:40am
Will Orgovyx (relugolix) Reduce Prostate Cancer without Radiation?
I am 77 years old. I had my prostate removed over 3 years ago. After 2 years my PSA began to rise from < .01...
Support Group: Prostate Cancer
Last active: May 12 3:26pm
Has anyone else moved from Firmagon to Orgovyx?
I have stage 4 (oligometastatic) prostate cancer, and will be on ADT and androgen-reception inhibitors, basically, forever. I've been on monthly Firmagon (Degarelix) injections for...
Support Group: Prostate Cancer
Last active: Apr 30 7:44pm
Hot flashes, fatigue 4 months after radiation and Orgovyx
Husband still experiencing debilitating hot/cold flashes, fatigue, various aches and pains 4 months after successful treatments ended. Is there any relief available?
Support Group: Prostate Cancer
Last active: 22 hours ago
Have you stopped then restarted taking Orgovyx? If so how was it.
I have an aggressive type of Prostate cancer. Over the past 36 months I have had RRP (post surgery PSA 0.37) then followed 6 months...
Support Group: Prostate Cancer
Last active: Jan 16 12:06pm
Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?
Hi, My husband, who is 71 y/o, has recurrent prostate cancer, after 7 years of no treatment. He underwent a proctectomy 7 years ago and...
Support Group: Prostate Cancer
Last active: Apr 29 1:50pm
Diet after Radiation treatment and on ORGOVYX or other ADT drugs
What is a good diet to follow while we are on ORGOVIX or other ADT drugs. Myself, I was mostly vegan( Fish occasionally), but now...
Support Group: Prostate Cancer
Last active: Apr 16 6:05am
My father died shortly after starting treatment with Orgovyx
Hi all - thanks for reading. My father had prostate cancer (gleason score 3+4). Doctors recommended orgovyx + radiation. He began orgovyx on October 27th...
Support Group: Prostate Cancer
Last active: Feb 1 8:13pm
Anyone experiencing nausea/vomiting with Abiraterone?
I will be starting Abiraterone and Orgovyx this week. My doctor also prescribed compazine for nausea and vomitting. Reading the List of possible side effects...
Support Group: Prostate Cancer
Last active: May 11 3:16pm
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
Support Group: Prostate Cancer
Last active: Nov 8, 2023
Prostate cancer care team
I finished SBRT 5 radiation treatments at UCLA. I want to choose a Medical oncologist in Orange county to manage my Hormone therapy(ORGOVYX). Any of...
Support Group: Prostate Cancer
Last active: Apr 22 11:23am