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Prostate Cancer Support Group

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Discussions (202)
Testosterone- confused
I have been off of ADT for well over a year now. Testosterone is coming up but extremely slowly (65 ng/dl). I understand that part...
Support Group: Prostate Cancer
Last active: May 22, 2025
Testosterone replacement
Treatment of my prostate cancer with radiation and Lupron killed my body's ability to create testosterone so my level is now at about 13 and...
Support Group: Prostate Cancer
Last active: Jun 11, 2023
Fun with ADT and testosterone
I know I’ve mentioned to people on here that I quit taking Orgovyx. I was on Lupron for seven years and then took Orgovyx for...
Support Group: Prostate Cancer
Last active: Aug 11, 2025
Post therapy Testosterone
I would be interested to hear about anyone’s experience concerning Testosterone therapy after Proton radiation and hormone pills. Earlier this year (2023) I had 29...
Support Group: Prostate Cancer
Last active: Aug 13, 2024
The paradox of testosterone and ADT
It’s a curious thing, really — this blind devotion to testosterone as the prime mover in prostate cancer’s twisted little drama. One might imagine that...
Support Group: Prostate Cancer
Last active: Apr 26, 2025
Testosterone “Supplements” After RT?
I had proton therapy @ Mayo/PHX (can’t recommend them high enough) in 2019, PSA now below 0.2. I caught Covid in late October, just now...
Support Group: Prostate Cancer
Last active: Dec 9, 2022
Darolutamide Impact on Testosterone Utilization
I did 13 months of ADT (Lupron injections) with darolutamide (Nubeqa) while doing chemo then radiation. Now I’m on darolutamide only. While my testosterone is...
Support Group: Prostate Cancer
Last active: Jul 26, 2025
"Stages" of cancer? Testosterone? Are these important?
I'm just curious that none of my doctors ever told me what "stage" of cancer I have/had. Nor have any of them tested my testosterone,...
Support Group: Prostate Cancer
Last active: Jun 13, 2024
Low testosterone after Orgovyx: Should I increase my testosterone?
I started taking orgovyx Dec 2024 and stopped June 2025. I had 4 weeks of radiation treatment in February. I am 67 years old.My testosterone...
Support Group: Prostate Cancer
Last active: Dec 11, 2025
Testosterone recovery after ADT
I'm ending Orgovyx this month. I want to do whatever I can afterward to recover testosterone to my pre-ADT level of 650. I know not...
Support Group: Prostate Cancer
Last active: May 9, 2025
Rising testosterone during treatment
I have been in systemic treatment for four years now. My PSA has remained undetectable the entire time. However, my last blood test showed an...
Support Group: Prostate Cancer
Last active: Nov 8, 2025
Testosterone as fuel, let's think about it together ...
Friends, I'm curious about your thoughts on the best strategy to keep testosterone levels low. I'll share what I've read and the conclusions I've reached...
Support Group: Prostate Cancer
Last active: Mar 8 1:08pm
Testosterone: Is everyone's level in the low numbers?
Recap, I have stage 4 Metastasized to the bone. 18 months in. Had chemo, get Firmagon monthly, Xgeva quarterly, take Abiraterone and Prednisone daily. There...
Support Group: Prostate Cancer
Last active: Sep 25, 2024
Testosterone replacement after radiation and Orgovyx?
I had an RP in 2008 and a recurrence last year. I was treated with 5 months of Orgovyx and 37 radiation sessions, both of...
Support Group: Prostate Cancer
Last active: Dec 15, 2024
Testosterone check after Radiation and lupron
I am 73 and am ( was ) in good shape. Worked our pretty hard 6 days/ wk. for over 40 years. I had been...
Support Group: Prostate Cancer
Last active: Aug 20, 2021
What helps to slow testosterone growth?
Good afternoon, dear friends.I'm 49 years old. My cancer is genetic (ATM gene mutation).Three years after diagnosis, initial PSA 530 (Gleason 4+5), three bone metastases,...
Support Group: Prostate Cancer
Last active: Jan 30 6:49pm
Testosterone Recovery after stopping orgovyx
Seven weeks after stopping after being on Orgovyx for 12 months, my psa is 0.02. My Testosterone bounced to 45 from 8. My Testosterone was...
Support Group: Prostate Cancer
Last active: Jun 2, 2025
Testosterone Replacement Therapy after RALP
I get so many mixed messages about Testosterone Replacement Therapy, i've read contradicting information from different clinics/hospitals, etc., so it's hard to know where to...
Support Group: Prostate Cancer
Last active: Oct 3, 2025
Testosterone levels are rising after cessation of ADT
I am being treated for high risk prostate cancer . Completed radiation ,ADT AND Casadex for 2 years. I have NOT taken ADT or Casadex...
Support Group: Prostate Cancer
Last active: Sep 20, 2025
Can low testosterone cause testicular pain?
I started with Eligard , the 3 month injection last year in December 2024. Among the side effects that I noticed was testicular pain. Now...
Support Group: Prostate Cancer
Last active: Jun 30, 2025