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Prostate Cancer Support Group

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Discussions (250)
Salvage radiation aftermath
Can anyone share their experience with salvage radiation/ADT after what was told to me as a very successful DaVinci surgery? I’m a 71 year old....
Support Group: Prostate Cancer
Last active: Oct 6, 2025
Newly diagnosed with Advanced PC
Well, maybe not newly. Back in Spring. Found in checkup and PSA tests. It was in places I wish it were not, and would be...
Support Group: Prostate Cancer
Last active: Aug 11, 2025
Side effects and PSA after photon radiation.
I would like to hear from people that have had photon radiation similar to me, total 7000 Cgy dosed at 28 sessions of 250 Cgy....
Support Group: Prostate Cancer
Last active: Oct 6, 2025
What treatment options for paratracheal lymph nodes with BRCA2?
ADT finished in October 2024, and PSA was less than 0.1 until October 2024 when it came in at 0.1 and then has risen to...
Support Group: Prostate Cancer
Last active: Jan 16 8:53pm
Lung metastasis: Curiosities from VATS to BATS
“Metastasis to the lung is present in more than 40% of men with metastatic prostate cancer (3); however, lung metastases without any bone or lymph...
Support Group: Prostate Cancer
Last active: Aug 10, 2025
What helps to slow testosterone growth?
Good afternoon, dear friends.I'm 49 years old. My cancer is genetic (ATM gene mutation).Three years after diagnosis, initial PSA 530 (Gleason 4+5), three bone metastases,...
Support Group: Prostate Cancer
Last active: Jan 30 6:49pm
ADT, Brachytherapy, IMRT...done!
Just thought I'd share. Started this journey in spring 2024. Gleason 4+3. Decipher 0.78. PSMA scan negative outside of the prostate lesion. PSA 13.4 when...
Support Group: Prostate Cancer
Last active: Sep 10, 2025
How accurate are the PSA Tests?
I posted earlier that after 2+ years post surgery, my PSA had been undetectable < .006 on all my tests. Then my test 2 weeks...
Support Group: Prostate Cancer
Last active: Sep 27, 2023
Newly diagnosed stage 4, how long on ADT before adding ARSI?
My dad (83 and otherwise relatively healthy) was recently diagnosed with stage 4 prostate cancer that's spread to his bladder, urethrae, possibly rectum, pelvic lymph...
Support Group: Prostate Cancer
Last active: May 4, 2025
Adverse effects of ADT for aggressive tumors
Quick question - it’s been nagging me for a while and would appreciate any insight. In my case, I have a PSA reading of 25,...
Support Group: Prostate Cancer
Last active: Jan 5, 2025
Bone Metastasis: What treatment did you have?
My last PET scan showed a "sclerotic lesion on my right acetabulum" measuring 1.5 x 1.5 cm (PSA was 0.18 and testosterone 37 at the...
Support Group: Prostate Cancer
Last active: May 13, 2025
3 negative PSMA PET scans with PSA doubling every 4 weeks
Prostatectomy 10 years ago, Gleason 4-3 with 1/3 bladder positive. PSA going up after 1 year then 39 radiation followed by Lupron then Eligard. Took...
Support Group: Prostate Cancer
Last active: Aug 25, 2025
Is ED after radiation without ADT permanent?
I was watching Dr Scholz (PCRI) speak about RT and he briefly mentioned that men who experienced ED up to 2 years after treatment, would...
Support Group: Prostate Cancer
Last active: Jul 22, 2023
PSA rise 1.5 yrs post Salvage radiation & 4 yrs post surgery: Why?
I have a question for my brothers . I am 4 years out from the Operation( at 4.5 PSA ) and 1.5 years out from...
Support Group: Prostate Cancer
Last active: Apr 13, 2025
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
Support Group: Prostate Cancer
Last active: Jun 15, 2025
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
IMRT Radiation and ADT
My husband Jeff was recently diagnosed with prostate cancer. He is 62 yo and mostly in good health- walks, runs, bikes, pickleball, lifts weights. He...
Support Group: Prostate Cancer
Last active: Jul 4, 2024
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Support Group: Prostate Cancer
Last active: Jul 18, 2025
Got some answers for stage 4 prostate cancer
We had our first Urology Oncologist appointment today at UNC. Finally have a "plan" after the PSA test started it all 5 weeks ago! PSA...
Support Group: Prostate Cancer
Last active: May 8, 2025
Should I be seeking extra treatment?
Hey guys and wives, this is my first post here but have been lurking a couple months. I have a pretty good heath plan at...
Support Group: Prostate Cancer
Last active: Aug 1, 2025