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Prostate Cancer Support Group

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Discussions (160)
Are all treatment options given at diagnosis?
First, I want to wish all of you a very happy Father’s Day! I’m posting today because there is a recurring question on my mind...
Support Group: Prostate Cancer
Last active: 6 days ago
Anyone experience urethral stricture after prostatectomy?
Got a urethral stricture 6 weeks post op near the end of the penis (at the Fossa Navicularis) which I think is due to the...
Support Group: Prostate Cancer
Last active: Jun 11 8:10am
RARP vs RT plus ADT for Gleason 8 with cribiform and high Decipher
I’m new to prostate cancer, having been diagnosed in December 2025 with Gleason 8 (4+4) with cribiform architecture, stage T1c, PSA 4.7, and Decipher score...
Support Group: Prostate Cancer
Last active: Mar 25 5:58pm
Positive margins - Now what?
I got my post-prostatectomy pathology back today. While I did talk to a physician’s assistant, I won’t meet with my doctor until Monday. It seems...
Support Group: Prostate Cancer
Last active: Mar 20, 2025
Information on limiting ADT
Anyone wishing to get a better handle on whether and when (if ever) he should use ADT, I suggest considering enrolling this clinical trial.NCT05588128 It's...
Support Group: Prostate Cancer
Last active: Aug 23, 2025
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Support Group: Prostate Cancer
Last active: Nov 5, 2025
Anyone opted for radiation for localized high risk cancer under 55?
Has anyone opted for radiation therapy with localized high risk prostate cancer at a relatively young age? Say, before 55? Did you have recurrences?
Support Group: Prostate Cancer
Last active: Apr 8, 2025
Advice from the Trenches for New Members of this Cursed Club
So, you’ve just heard the words: prostate cancer. Welcome to the club no one wants to join — there’s no handshake, no jacket, and the...
Support Group: Prostate Cancer
Last active: Apr 10, 2025
Seeking Wisdom and Guidance
I will admit this is a group I had not been planning to join as a fit, 59-year old, but here we are. I have...
Support Group: Prostate Cancer
Last active: Jan 3 1:59pm
PET scan explanation, findings & personal conclusion
Background: Diagnosis of prostate cancer 2010. Gleason 3+3; PSA: 6.46 noted as slow growth cancer. Underwent proton radiation therapy at Loma Linda Hospital, a pioneer...
Support Group: Prostate Cancer
Last active: Feb 26, 2025
Wife: Stop Reading Those Forums
She has a valid point. As I stated in another post, forums are highly tilted platforms - I know, I've created and administered very many...
Support Group: Prostate Cancer
Last active: Jun 2, 2025
Slowly rising PSA 5.8 years since removal!!
I had my products removed in July 2019. Been slowly rising and I had Clear margins, no SV or LN invasion, last PSA was 0.074...
Support Group: Prostate Cancer
Last active: Apr 2, 2025
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
Salvage Radiation Therapy Experience
In two days I'll complete my program of 38 radiation treatments for recurrent prostate cancer, and wanted to post a brief update on my experience,...
Support Group: Prostate Cancer
Last active: Feb 25 9:38pm
My Story So Far - 53yo / PSA 130
Hi everyone. New to this forum and this club we are all in. Just before Christmas, my routine check up yielded a PSA of 130...
Support Group: Prostate Cancer
Last active: Apr 22 7:53pm
Cheat sheet for hormone therapy/ADT
I will soon be starting external beam radiation therapy for recurrent prostate cancer. I won’t be doing ADT, but I have been reading a lot...
Support Group: Prostate Cancer
Last active: Sep 9, 2025
Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx). Prostectomy+ Seminal vesticals+7 lymph nodes...
Support Group: Prostate Cancer
Last active: Oct 27, 2025
Urinary Retention after Robotic assisted Prostatectomy
Is anyone experiencing recurring urinary retention and pain in the urethra post Robotic assisted nerve sparing Radical Prostatectomy? After my husbands initial surgery he was...
Support Group: Prostate Cancer
Last active: Nov 19, 2022
Tulsa Pro - share your experiences
I want to thank all for support on my recent prostate cancer treatment, Tulsa pro. I am very thankful to my wife and my daughter...
Support Group: Prostate Cancer
Last active: Sep 1, 2025
White Button Mushrooms clinical trials.
Hi, not sure if I should post this here, but I will remove this if requested. I've been talking to some people here and did...
Support Group: Prostate Cancer
Last active: Sep 4, 2025