Support Groups

Prostate Cancer Support Group

Public Support Group
1,692 total results
Discussions (146)
What does "This abuts the prostate margin over 6mm" mean?
Hello everyone – 61 years of age. PSA 9.7, 15%fPSA, Velocity 1.05 (1.5 jump from June to December 2023), PSA density .12, two lesions PIRADS...
Support Group: Prostate Cancer
Last active: Dec 1, 2024
Am I being paranoid?
Yesterday I had my nine month post radiation PSA, testosterone, blood tests and bone density tests. I was set to meet next Friday with my...
Support Group: Prostate Cancer
Last active: Mar 25 10:29am
18 month update. How am I doing?
18 months now. How am I doing? Background: age 81, hgt 6', 200 #, moderately active. No diet. Just common sense practicing moderation. Non smoker,...
Support Group: Prostate Cancer
Last active: Apr 4 3:57pm
Lupron: Anyone have muscle weakness and severe leg pain?
I have PC and have been on Lupron injections every 3 months for 15 months. I am experiencing severe leg pain in hamstrings and glutes....
Support Group: Prostate Cancer
Last active: Feb 5 4:43pm
Estrogen patches: Anyone used an estrogen patch post-ADT? Helpful?
I just had my second post-ADT PSA test and it dropped from .08 to .04 so I am very happy about that as my primary...
Support Group: Prostate Cancer
Last active: Mar 19 11:12am
After Lupron Depot, which med?
I've been given Lupron depot at a 12-week dosage (22.5mg, into the butt), but still have significant side effects of over a dozen hot flashes...
Support Group: Prostate Cancer
Last active: Feb 11 7:50pm
How Concerning is this?
Five years ago, I had my prostate removed, with no radiation or chemo. For the first four years, my PSAs were always < 0.1. Last...
Support Group: Prostate Cancer
Last active: Jun 3 9:27am
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
Support Group: Prostate Cancer
Last active: Jul 10, 2023
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Support Group: Prostate Cancer
Last active: May 31 8:39am
Stage 4 Radiation challenge: How to avoid risk to bladder?
Hello, I’m stage 4 post Radical, post comprehensive radiation, coming off ADT, waiting for Testosterone to return, looking at next steps. When they did the...
Support Group: Prostate Cancer
Last active: May 22, 2024
Fatigue after Eligard and proton Beam
In November 2020 I had a six month Eligard shot, then completed 44 proton beam treatments on April 9, 2021. Today August 2, I have...
Support Group: Prostate Cancer
Last active: Aug 3, 2021
Advice on Penis pumps
I am 4 months post prostate surgery and soon to start radiation since some cancer still evident. The mental stress of cancer is bad enough...
Support Group: Prostate Cancer
Last active: Feb 8 11:09am
Gleason 8. High risk. Prostate swelling-cancer is contained for now.
Age: 56. Physically/mentally: Strong. Gleason 8 - High Risk. Stage: IIIa Cancer tumor: Contained within prostate for now. Tumor protruding outward. Recommendation: Per radiologists, surgeons,...
Support Group: Prostate Cancer
Last active: May 11, 2023
Starting TRT now.
I'm 75 now. My prostate was removed in 2021. The cancer spread to my T3 vertebrae. That was treated with radiation. I was put on...
Support Group: Prostate Cancer
Last active: Oct 4, 2024
MRI guided SBRT. Where is it offered and best radiation oncologist?
Has anyone had MRI guided SBRT outside of the clinical trials. I don't mind participating in a trial, but I can't find an open one....
Support Group: Prostate Cancer
Last active: Dec 15, 2023
How much value to put on the numbers in the Decipher Grid?
Have you paid any attention to the numbers in your Decipher grid? Or are you just focused on the overall score? The grid pages say...
Support Group: Prostate Cancer
Last active: Apr 16 8:28am
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Defeating Prostate Cancer
Diagnosed @age 76 PSA 20 Gleeson Score 9 all the urologists wanted to take it out.After interviewing 12 men who had the cut done It...
Support Group: Prostate Cancer
Last active: Jan 31, 2023
Lupron and Nubeqa (darolutamide): Anyone on this protocol?
I have advanced PC with metastasis in the lymph nodes and pelvis. Gleason 6-9 and PSA>20. Began with 3-month Lupron injection. Began Darolutamide (Nubeqa) at...
Support Group: Prostate Cancer
Last active: Jul 27, 2024
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
Support Group: Prostate Cancer
Last active: Feb 3, 2024