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Discussions (146)
Post treatment update #3
Exactly 1 year since 45mg Lupron hormone therapy injection that was followed by 20 radiation sessions. 90 day post treatment PSA test showed no cancer...
Penile Numbness after Prostate Cancer treatment: What can be done?
I had prostate cancer. I went through 18 weeks of radiation. Afterward I was placed on orgovyx. I am still able to have an erection...
Lung metastasis: Curiosities from VATS to BATS
“Metastasis to the lung is present in more than 40% of men with metastatic prostate cancer (3); however, lung metastases without any bone or lymph...
Why is the experience of negative SE’s of ADT so variable…or are they?
Those of us who remain “treatment neophytes” are all about risk-reward, with heavy emphasis on zero risk. I’ve often wondered why some men seemingly breeze...
Completed EBRT recently, first blood test readings done. Any advice?
I was a Gleason 9 when I began taking Orgovyx in September 2024. Testosterone was 825, PSA 6.0 Had 28 sessions of EBRT which concluded...
Lab tests
Has anyone encountered a lab making mistakes on the testosterone & PSA tests…..it was done at a different lab that we normally go to.
ADT, Brachytherapy, IMRT...done!
Just thought I'd share. Started this journey in spring 2024. Gleason 4+3. Decipher 0.78. PSMA scan negative outside of the prostate lesion. PSA 13.4 when...
Bad news again (still)
Perhaps you read my story, perhaps not. Gleason 8, spread to bladder neck 55 years old. Prostatectomy with bladder lesion cut out. Recurrence after a...
Finished radiation therapy today, how will I know if it worked?
Finished 28 sessions of EBRT today, still taking Orgovyx. RO said he will schedule an appointment with him in about a month to determine what...
ADT paradox study.
I found a recent study that challenges the established ADT dogma. I found that the study suggests that androgen levels might have a more nuanced...
Husband not responding to ADT
My husband was diagnosed with aggressive and advanced prostate cancer in spring 2022. Started Orgovyx in July 2022, and did 25 radiation treatments. At appointment...
Treatment options: radiation without ADT?
Researching treatment options.79 yr old, sexually active, good healthGleason 4+3, PSA 12.91 (tripled within last yr), Testosterone 435, PSMA PetScan No metastases, Decipher .95Radiation oncologist...
Difficulty with androgen deprivation (ADT): what helps?
I am taking Eligard for a year now and gained 25 lbs and have depression and fatigue. I have a friend taking degarilix and he...
The Rx Coupon Game
While it's not quite The Squid Game, sometimes it seems equally corrupt. Prior to PCa, I don't recall ever paying for prescription drugs. Any drugs...
PSA question
So, I began ADT (Eligard injection) 9 weeks ago. At the 6 week mark my PSA dropped from 12 to 0.6. I liked that. Yesterday...
Is this true?
I was starting to do a lot better but then I read that it can take 18 months to get my testosterone back to my...
Resolution of Side Effects after Stopping ADT/Lupron
Hello everyone. I am 70 years old and was diagnosed with PC about 2 and a half years ago, G9 with extra capsular extension but...
Test results after 6 weeks of Eligard
Just got some blood test results after being on Eligard for 6 weeks. Do the numbers sound good for this stage? Testosterone = 5.7 ng/dL...
PSA up at the 3 month point. Looking for guidance
Ok. So trying to get my brain wrapped around expectations for my Dr appt on Tuesday 12/17.I’d like to hear from people who had radiation...
Has anyone lowered their Abiraterone Dosage? To what effect?
Has anyone had personal experience (or know of others' experiences or know of related studies) taking half the usual dosage of abiraterone (i.e., taking 500mg...
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