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Prostate Cancer Support Group

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Discussions (202)
Am I the only one who doesn't care about testosterone?
I'm just curious. None of my doctors ever brought it up. A few months ago I brought it up with my urologist (because many people...
Support Group: Prostate Cancer
Last active: Aug 8, 2024
Low baseline testostrone and overall survival after treatment
My husband has a baseline testosterone of 202. He started ADT and will be doing internal and external radiation for stage 4 A advanced regional...
Support Group: Prostate Cancer
Last active: Jul 8, 2024
Prostate Cancer Gleason 6 Group 1 + Hypogonadism
I recently was diagnosed with PC Gleason (3+3) 6 Group 1. I also have been on Testosterone Replacement Therapy for over 10 years. As soon...
Support Group: Prostate Cancer
Last active: Jan 5 11:24am
How to interpret PSA
A little background. GS 8, stage pT3b. RP in September 21, SRT in Spring of 2024. 18 months ADT including 12 months of Abiraterone ending...
Support Group: Prostate Cancer
Last active: Aug 8, 2025
T and PSA levels 6 month post SBRT and 1 month post Orgovyx
Prior to any treatment my PSA was 7.8 and my testosterone was 517. After 9 days of Orgovyx my testosterone was 27.17 At six months...
Support Group: Prostate Cancer
Last active: Oct 9, 2025
What if this prevents cancer from becoming resistant?
I saw a thread about half-dose medications. Guys, what do you think about whether resistance can be avoided? Read below. Another option is to use...
Support Group: Prostate Cancer
Last active: Mar 15 3:24pm
PSA rising fast after SBRT
I am 65, Gleason 4+3, localized 2 tumors. PSA 6.7; Had SBRT (4 sessions, 9.5 gray each) in early August 2024. Minimal GI and GU...
Support Group: Prostate Cancer
Last active: May 10, 2025
Adverse effects of ADT for aggressive tumors
Quick question - it’s been nagging me for a while and would appreciate any insight. In my case, I have a PSA reading of 25,...
Support Group: Prostate Cancer
Last active: Jan 5, 2025
Has anyone heard of or participated in a trial for Debio 4228-201
They are offering me a trial for this ADT to testosterone blocker it’s a trial for to get the correct dosage for the extended treatment...
Support Group: Prostate Cancer
Last active: Aug 27, 2025
Muscle loss and muscle building
Since starting my ADT treatments in February, I've been concerned about muscle loss due to the lowering of my testosterone. I'm not a body builder...
Support Group: Prostate Cancer
Last active: Jun 11, 2024
Post treatment update #3
Exactly 1 year since 45mg Lupron hormone therapy injection that was followed by 20 radiation sessions. 90 day post treatment PSA test showed no cancer...
Support Group: Prostate Cancer
Last active: Apr 4, 2025
3 Month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
Lab result differences
File this under Good to Know (and WTH!).... I had labs for PSA and Testosterone done recently - results came back as follows: PSA =...
Support Group: Prostate Cancer
Last active: Oct 7, 2025
Penile Numbness after Prostate Cancer treatment: What can be done?
I had prostate cancer. I went through 18 weeks of radiation. Afterward I was placed on orgovyx. I am still able to have an erection...
Support Group: Prostate Cancer
Last active: Apr 7, 2024
PSA change from < .04 to < 0.1: Problem or no big deal?
My last PSA result on November 4, 2025 was < .04. Today the result was < 0.1 Should I be concerned or is it no...
Support Group: Prostate Cancer
Last active: Mar 9 6:37pm
Here’s an interesting article about Lupron prices going up
This person was treated in the United States, but the cost of Lupron was over $35,000 and $38,000 for two injections in Chicago. https://kffhealthnews.org/news/article/bill-of-the-month-shot-prostate-cancer-drug-testosterone/
Support Group: Prostate Cancer
Last active: Jan 23 8:05pm
Can a short term of taking Orgovyx cause leg pain and weight gain?
I have been on ADT Orgovyx just for four months and half but did not gain any weight while I was on the drug nor...
Support Group: Prostate Cancer
Last active: Jan 12 11:00am
Lab tests
Has anyone encountered a lab making mistakes on the testosterone & PSA tests…..it was done at a different lab that we normally go to.
Support Group: Prostate Cancer
Last active: Jul 8, 2023
Lung metastasis: Curiosities from VATS to BATS
“Metastasis to the lung is present in more than 40% of men with metastatic prostate cancer (3); however, lung metastases without any bone or lymph...
Support Group: Prostate Cancer
Last active: Aug 10, 2025
Post RARP routine physical and blood work
To help with PSA anxiety my PCP thought it was best to test my PSA in their lab and test my Testosterone for levels after...
Support Group: Prostate Cancer
Last active: Sep 30, 2025