Support Groups

Prostate Cancer Support Group

Public Support Group
1,155 total results
Discussions (78)
Stage 4 Radiation challenge: How to avoid risk to bladder?
Hello, I’m stage 4 post Radical, post comprehensive radiation, coming off ADT, waiting for Testosterone to return, looking at next steps. When they did the...
Support Group: Prostate Cancer
Last active: May 22 2:50pm
Has anyone lowered their Abiraterone Dosage? To what effect?
Has anyone had personal experience (or know of others' experiences or know of related studies) taking half the usual dosage of abiraterone (i.e., taking 500mg...
Support Group: Prostate Cancer
Last active: Aug 14 2:48pm
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
Support Group: Prostate Cancer
Last active: Jul 10, 2023
Gleason 8. High risk. Prostate swelling-cancer is contained for now.
Age: 56. Physically/mentally: Strong. Gleason 8 - High Risk. Stage: IIIa Cancer tumor: Contained within prostate for now. Tumor protruding outward. Recommendation: Per radiologists, surgeons,...
Support Group: Prostate Cancer
Last active: May 11, 2023
Lupron and Nubeqa (darolutamide): Anyone on this protocol?
I have advanced PC with metastasis in the lymph nodes and pelvis. Gleason 6-9 and PSA>20. Began with 3-month Lupron injection. Began Darolutamide (Nubeqa) at...
Support Group: Prostate Cancer
Last active: Jul 27 9:47pm
Fatigue after Eligard and proton Beam
In November 2020 I had a six month Eligard shot, then completed 44 proton beam treatments on April 9, 2021. Today August 2, I have...
Support Group: Prostate Cancer
Last active: Aug 3, 2021
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
Support Group: Prostate Cancer
Last active: Oct 18 10:41pm
Why isn't hormone therapy used in all prostate cancers?
An observation and insightful comment by one group member here: "Lupron/Eligard both shrink the prostate and stops the production of testosterone which feeds the growth...
Support Group: Prostate Cancer
Last active: Apr 5, 2023
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6 6:08pm
MRI guided SBRT. Where is it offered and best radiation oncologist?
Has anyone had MRI guided SBRT outside of the clinical trials. I don't mind participating in a trial, but I can't find an open one....
Support Group: Prostate Cancer
Last active: Dec 15, 2023
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
Support Group: Prostate Cancer
Last active: Feb 3 10:00am
Hot Flashes and Symptoms
This question is just because of my curiosity. I have been on Testosterone blockers (Orgovyx) for 17 months and I get hot flashes somewhat frequently....
Support Group: Prostate Cancer
Last active: Aug 12 8:43am
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Support Group: Prostate Cancer
Last active: Jul 16 8:52am
Jansen clinical trial ADT & Erleada and surgery
I am 75 years old and a year ago my biopsy indicated that I had NM advanced aggressive Gleason score 9 prostate cancer and my...
Support Group: Prostate Cancer
Last active: Dec 15, 2022
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Support Group: Prostate Cancer
Last active: Sep 12 12:05pm
Defeating Prostate Cancer
Diagnosed @age 76 PSA 20 Gleeson Score 9 all the urologists wanted to take it out.After interviewing 12 men who had the cut done It...
Support Group: Prostate Cancer
Last active: Jan 31, 2023
Three Years Post SBRT
Hello just wanted to introduce myself I am in Manhattan and had SBRT for mostly G6 with one core of 8 upgraded at second opinion...
Support Group: Prostate Cancer
Last active: Sep 6 12:36pm
Will Orgovyx (relugolix) Reduce Prostate Cancer without Radiation?
I am 77 years old. I had my prostate removed over 3 years ago. After 2 years my PSA began to rise from < .01...
Support Group: Prostate Cancer
Last active: Aug 8 10:25am
Question regarding resistance training.
Greetings: Background: I was diagnosed in February 2023 with Gleason 9 PC, PSA 25 and 9/12 cores positive. The PSMA-Pet showed no spread, however the...
Support Group: Prostate Cancer
Last active: May 7 2:06pm
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
Support Group: Prostate Cancer
Last active: Sep 4 10:06am