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Prostate Cancer Support Group

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Discussions (356)
Side effects adding XTANDI to ORGOVYX
Who is taking both Xtandi and Orgovyx and what are the side effects of adding Xtandi to Orgovyx. I am asking this question on behalf...
Support Group: Prostate Cancer
Last active: Jan 13 3:21pm
Testosterone replacement after radiation and Orgovyx?
I had an RP in 2008 and a recurrence last year. I was treated with 5 months of Orgovyx and 37 radiation sessions, both of...
Support Group: Prostate Cancer
Last active: Dec 15, 2024
Starting Orgovyx - any advice based on experience?
I will be starting Orgovyx Monday, April 22. 1000mg Abiraterone and 5mg Prednisone will be added about a week later. The plan is 24 months...
Support Group: Prostate Cancer
Last active: Apr 23, 2024
Are there withdrawl symptoms immediately after stopping Orgovyx?
Any of you experienced hot flushes, fatigue or other symptoms worse than prior to stopping Orgovyx?
Support Group: Prostate Cancer
Last active: May 15 6:16am
Testosterone Recovery after stopping orgovyx
Seven weeks after stopping after being on Orgovyx for 12 months, my psa is 0.02. My Testosterone bounced to 45 from 8. My Testosterone was...
Support Group: Prostate Cancer
Last active: Jun 2, 2025
Orgovyx side effects and handling them
Hi all I am new here and looking for some help. I have Prostate Cancer gleason 9 and starting Orgovyx today. I have tried to...
Support Group: Prostate Cancer
Last active: Apr 24 8:23am
Looking for feedback - Lupron vs Orgovyx
I discussed changing from Lupron to Orgovyx with my Oncologist today. I am having good results on Lupron with minimal side effects. I would like...
Support Group: Prostate Cancer
Last active: May 12 3:05pm
Biochemical recurrence, On / Off treatment with Orgovyx only
Hello good people! Feel better already reading all the knowledge shared on this support group. Can I get direction on if my choice is sound?...
Support Group: Prostate Cancer
Last active: Sep 7 12:20pm
Joint Pain on Nubeqa (darolutamide) + Orgovyx (relugolix)
It’s been a while since I’ve been on here so reaching out again for a little advice. I was diagnosed with advanced with APC back...
Support Group: Prostate Cancer
Last active: Sep 11 1:30pm
Share your solution for Orgovyx hot flashes
Been on Orgovyx for 6 months; have another 12 months ahead of me, if not 18 months. What have you done for hot flashes?
Support Group: Prostate Cancer
Last active: Jan 23 8:55pm
Has anyone else had tachycardia with Orgovyx?
Rapid heart rate started half way through IMRT. Had fever for 2 weeks before tachycardia. On orgovyx started 12 days before radiation. Got 20 treatments...
Support Group: Prostate Cancer
Last active: Jan 10 11:02am
Stopping Nubeqa and Orgovyx after 6 months
Diagnosed with stage 4 PC. Single 4+4 lesion on prostate, two others at 4+3. PET showed small spot on my pelvis and even smaller one...
Support Group: Prostate Cancer
Last active: Apr 3 9:26am
Anybody have hernia surgery while on Orgovyx?
I got off six months of Orgovyx on Oct 1. I had an incisional hernia repaired on 10/8. It was one one of the incisions...
Support Group: Prostate Cancer
Last active: Nov 4, 2025
Testosterone recovery after 6 mos Orgovyx
Age 70, 4+3, PSA 10, 4 months post EBRT, 6 weeks post ADT Testosterone is mostly back after six weeks. Before: 505, after: 450 Not...
Support Group: Prostate Cancer
Last active: Aug 18 10:53am
Any experiences with going with the Estrogen instead of the Orgovyx?
Have Gleason 8 stage four with PSA 2.62 Latest PSMA PET CT scan negative.Had radiation to two lymph nodes below the kidneys over a year...
Support Group: Prostate Cancer
Last active: Feb 17 9:54am
Lupron v. orgovyx...which is preferable for the heart?
have A/FIB and CHF, drugs: xarelto amd metropolol. metastatic Prostate cancer in lungs and some lymph glands, caught early. began LUPRON/NUBEQA in april. effective. since...
Support Group: Prostate Cancer
Last active: Nov 2, 2025
Compare side effects of abiraterone, firmagon and orgovyx
My husband has high risk, localized prostate cancer (Gleason score 9) and will be starting hormone therapy soon. Deciding whether or not to do radiation...
Support Group: Prostate Cancer
Last active: Jan 3, 2025
Orgovyx and the timeline for return of normal testosterone level
I’ve been taking Orgovyx since 11.09.23. How long does it take for Testosterone levels to return to normal once I stop taking this drug? What...
Support Group: Prostate Cancer
Last active: Sep 20, 2025
Support for wives with the Orgovyx tornado: Needing an olive branch
This spring, my husband will have been taking Orgovyx for 2 years. He was diagnosed a few months after a forced retirement, we sold our...
Support Group: Prostate Cancer
Last active: Feb 22 2:08pm
Side effect of Radiation +ADT Orgovyx on Sexual function
Can anyone tell me if the combined treatement of radiation and ADT can cause some problem on the sexual function. If so, what to do...
Support Group: Prostate Cancer
Last active: Aug 19, 2025