Support Groups

Prostate Cancer Support Group

Public Support Group
1,889 total results
Discussions (143)
Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?
I've already had colon cancer and a sigmoid resection that metastasized to my lung ... had a lung wedge resection also. Was doing good except...
Support Group: Prostate Cancer
Last active: Jul 1, 2024
Withdrawal from orgovyx: How long will fatigue and hot flashes last?
Having hot flashes and fatigue 2 weeks after stopping orgovyx. Is this to be expected and for how long?
Support Group: Prostate Cancer
Last active: Dec 14, 2024
Your PSA Trends after Salvage Radiation & 6 Months of Orgovyx?
I completed 6 months of Orgovyx 4 months ago and finished 39 IMRT Salvage radiation treatments 6 months ago. Just had a ultrasensitive PSA test...
Support Group: Prostate Cancer
Last active: Feb 11 7:53pm
Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?
Hi, My husband, who is 71 y/o, has recurrent prostate cancer, after 7 years of no treatment. He underwent a proctectomy 7 years ago and...
Support Group: Prostate Cancer
Last active: Apr 29, 2024
Treatment Orgovyx, Zytiga and radiation: Question about WBC counts
Stage t3a cancer in the capsule but does not appear elsewhere. My question is concerning my white blood cells; both the Lymphocytes and Eosinophils are...
Support Group: Prostate Cancer
Last active: Aug 30, 2024
Been on Orgovyx for four months. Should I stop taking finasteride?
Diagnosed with prostate cancer via a biopsy August 2024. Six cores were negative, one core Gleason 7, five cores Gleason 9. Negative for perineural invasion....
Support Group: Prostate Cancer
Last active: Feb 3 11:47am
Side effects of Orgovyx (relugolix): Anyone have stomach or GI issues?
I am experiencing stomach pain after takingOrgovxy for 10 daysAny suggestions?
Support Group: Prostate Cancer
Last active: Apr 29 12:45pm
T and PSA levels 6 month post SBRT and 1 month post Orgovyx
Prior to any treatment my PSA was 7.8 and my testosterone was 517. After 9 days of Orgovyx my testosterone was 27.17 At six months...
Support Group: Prostate Cancer
Last active: Jul 4, 2024
Was Gleason 7 (3+4): How soon can one get off ADT (Orgovyx or Lupron)?
I have just completed my 5th and last SBRT treatment today. 40 Gy (5 times 800 cGy). My PSA test will be in mid-July. My...
Support Group: Prostate Cancer
Last active: Apr 22 9:50am
Puzzled by drug prices
Firmagon and Orgovyx would cost the same in Canada if I were uninsured (about US$240/month), but it looks like Orgovyx is 5× as expensive as...
Support Group: Prostate Cancer
Last active: Aug 27, 2024
Who is a good candidate for Intermittent ADT?
Who is a good candidate to take a holiday from ORGOVYX until psa start rising and then go back to taking ORGOVYX again?Is it only...
Support Group: Prostate Cancer
Last active: Apr 22 11:16am
Does anyone have experience with Trazodone and prostate cancer?
Does anyone have experience with Trazodone? I searched this site and got 847 results, but none in the Prostate Support group. My Primary Doctor prescribed...
Support Group: Prostate Cancer
Last active: Feb 17 5:39pm
Dr Mark Scholz/PCRI
Anyone here is a patient of Dr Mark Scholz of Prostate Cancer Research Institute. I need to get a second opinion from an Oncologist about...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
Did your doctors get a baseline blood panel before starting treatment?
Is it normal for your urologist (radiation oncologist) to request a full blood panel (CBC) prior to starting treatment with salvage radiation and Orgovyx? I...
Support Group: Prostate Cancer
Last active: Nov 14, 2024
Which ADT medication is best?
Which ADT medication is best? My medical oncologist first suggested six months of Lupron, but she was fine with Orgovyx when I mentioned that prostate...
Support Group: Prostate Cancer
Last active: Feb 17 9:27am
ADT Recovery: How long for testosterone levels to improve?
I was on Eligard for 6 months prior to and during salvage radiation treatment. Then I was on Orgovyx plus Abiraterone for 12 months. One...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Numbers After SRT/ADT
I just received my post treatment results after SRT with 6 months of Orgovyx. PSA < 0.05. Had been 0.18 before treatment. T = 688....
Support Group: Prostate Cancer
Last active: 4 days ago
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Support Group: Prostate Cancer
Last active: Mar 30 9:34am
Completed EBRT recently, first blood test readings done. Any advice?
I was a Gleason 9 when I began taking Orgovyx in September 2024. Testosterone was 825, PSA 6.0 Had 28 sessions of EBRT which concluded...
Support Group: Prostate Cancer
Last active: May 8 11:23pm
Anyone experiencing nausea/vomiting with Abiraterone?
I will be starting Abiraterone and Orgovyx this week. My doctor also prescribed compazine for nausea and vomitting. Reading the List of possible side effects...
Support Group: Prostate Cancer
Last active: May 11, 2024