Support Groups

Prostate Cancer Support Group

Public Support Group
1,097 total results
Discussions (87)
Anyone experiencing nausea/vomiting with Abiraterone?
I will be starting Abiraterone and Orgovyx this week. My doctor also prescribed compazine for nausea and vomitting. Reading the List of possible side effects...
Support Group: Prostate Cancer
Last active: May 11 3:16pm
Just an update...
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come...
Support Group: Prostate Cancer
Last active: Jul 21 6:36pm
Prostate cancer care team
I finished SBRT 5 radiation treatments at UCLA. I want to choose a Medical oncologist in Orange county to manage my Hormone therapy(ORGOVYX). Any of...
Support Group: Prostate Cancer
Last active: Apr 22 11:23am
Timing of ADT + Zytiga - Anyone else start them at different times?
I have locally advanced disease (+ pelvic nodes). My treatment is based on the intensification experiment in one of the arms of the STAMPEDE trial...
Support Group: Prostate Cancer
Last active: Feb 12 3:04pm
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14 2:14pm
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Support Group: Prostate Cancer
Last active: Nov 14 11:45am
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Support Group: Prostate Cancer
Last active: Sep 12 12:05pm
New here! 4 months into my cancer journey.....
I have a Gleason score of 8(4+4). My PSA was 4-5 for several years then took off earlier this past spring to 16. PET scan...
Support Group: Prostate Cancer
Last active: Oct 18 6:50am
Does ADT actually kill cancer cells?
It seems like a simple question, but finding a definitive answer is not so easy. My MO says yes - the combination of Orgovyx and...
Support Group: Prostate Cancer
Last active: Aug 9 8:14am
Nutrition & more for living well with metastatic prostate cancer?
62 year old male diagnosed with metastatic Prostate cancer with a PSA level 36. Prostate was removed May 2024. Cancer is now in ribs, Pelvic...
Support Group: Prostate Cancer
Last active: Sep 11 7:24pm
Testosterone recovery after ADT
I'm ending Orgovyx this month. I want to do whatever I can afterward to recover testosterone to my pre-ADT level of 650. I know not...
Support Group: Prostate Cancer
Last active: Oct 26 1:21pm
Can anyone share their experience with ProACT (an AUS)?
My 71 year old husband had prostatectomy surgery in August 2023 followed by 6 weeks of radiation therapy which finished the end of January this...
Support Group: Prostate Cancer
Last active: Nov 4 6:53am
Getting HIFU tomorrow: Worried about the catheter mostly
Tomorrow is the big day for me. HIFU for two tumors confined to the right spot in the prostate. Orgovyx shrunk the prostate enough to...
Support Group: Prostate Cancer
Last active: Oct 14 9:07pm
3 Month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8...
Support Group: Prostate Cancer
Last active: Apr 14 8:01am
Using supplements post treatment
I just completed 3 months adt on orgovyx and 36 ebrt treatments. My last tes was 42 and my psa dropped fm .28 to undetectable...
Support Group: Prostate Cancer
Last active: Nov 8, 2021
Penile Numbness after Prostate Cancer treatment: What can be done?
I had prostate cancer. I went through 18 weeks of radiation. Afterward I was placed on orgovyx. I am still able to have an erection...
Support Group: Prostate Cancer
Last active: Apr 7 7:01am
Fatigue and radiation
I’m 69 years old and aside from having stage three prostate cancer, I am arguably in great shape. I am on my 3rd day of...
Support Group: Prostate Cancer
Last active: Jun 8 5:52pm
can I survive PC (Gleason score 7) with just external beam radiation?
I was diagnosed with PC in Jan of this year. it appears from my biopsy that i am in a high-risk category and my urologist...
Support Group: Prostate Cancer
Last active: Jun 19, 2023
Has anyone done fractionated/metronomic chemotherapy?
I've recently been diagnosed with stage 4, Gleason 7-9 castration sensitive. My PSA was 105 and then after one month on Orgovyx now down to...
Support Group: Prostate Cancer
Last active: Aug 10 3:39pm
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
Support Group: Prostate Cancer
Last active: Feb 3 10:00am