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Prostate Cancer Support Group

Public Support Group
1,688 total results
Discussions (131)
Treatment Orgovyx, Zytiga and radiation: Question about WBC counts
Stage t3a cancer in the capsule but does not appear elsewhere. My question is concerning my white blood cells; both the Lymphocytes and Eosinophils are...
Support Group: Prostate Cancer
Last active: Aug 30, 2024
Been on Orgovyx for four months. Should I stop taking finasteride?
Diagnosed with prostate cancer via a biopsy August 2024. Six cores were negative, one core Gleason 7, five cores Gleason 9. Negative for perineural invasion....
Support Group: Prostate Cancer
Last active: Feb 3 11:47am
Side effects of Orgovyx (relugolix): Anyone have stomach or GI issues?
I am experiencing stomach pain after takingOrgovxy for 10 daysAny suggestions?
Support Group: Prostate Cancer
Last active: Dec 20, 2024
T and PSA levels 6 month post SBRT and 1 month post Orgovyx
Prior to any treatment my PSA was 7.8 and my testosterone was 517. After 9 days of Orgovyx my testosterone was 27.17 At six months...
Support Group: Prostate Cancer
Last active: Jul 4, 2024
Puzzled by drug prices
Firmagon and Orgovyx would cost the same in Canada if I were uninsured (about US$240/month), but it looks like Orgovyx is 5× as expensive as...
Support Group: Prostate Cancer
Last active: Aug 27, 2024
Who is a good candidate for Intermittent ADT?
Who is a good candidate to take a holiday from ORGOVYX until psa start rising and then go back to taking ORGOVYX again?Is it only...
Support Group: Prostate Cancer
Last active: Nov 22, 2024
Does anyone have experience with Trazodone and prostate cancer?
Does anyone have experience with Trazodone? I searched this site and got 847 results, but none in the Prostate Support group. My Primary Doctor prescribed...
Support Group: Prostate Cancer
Last active: Feb 17 5:39pm
Which ADT medication is best?
Which ADT medication is best? My medical oncologist first suggested six months of Lupron, but she was fine with Orgovyx when I mentioned that prostate...
Support Group: Prostate Cancer
Last active: Feb 17 9:27am
Dr Mark Scholz/PCRI
Anyone here is a patient of Dr Mark Scholz of Prostate Cancer Research Institute. I need to get a second opinion from an Oncologist about...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
Did your doctors get a baseline blood panel before starting treatment?
Is it normal for your urologist (radiation oncologist) to request a full blood panel (CBC) prior to starting treatment with salvage radiation and Orgovyx? I...
Support Group: Prostate Cancer
Last active: Nov 14, 2024
ADT Recovery: How long for testosterone levels to improve?
I was on Eligard for 6 months prior to and during salvage radiation treatment. Then I was on Orgovyx plus Abiraterone for 12 months. One...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Support Group: Prostate Cancer
Last active: Mar 30 9:34am
ADT, Brachytherapy, IMRT...done!
Just thought I'd share. Started this journey in spring 2024. Gleason 4+3. Decipher 0.78. PSMA scan negative outside of the prostate lesion. PSA 13.4 when...
Support Group: Prostate Cancer
Last active: Mar 15 10:06am
Finished radiation therapy today, how will I know if it worked?
Finished 28 sessions of EBRT today, still taking Orgovyx. RO said he will schedule an appointment with him in about a month to determine what...
Support Group: Prostate Cancer
Last active: 2 days ago
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
Support Group: Prostate Cancer
Last active: Jan 31 7:10am
Prostate cancer care team
I finished SBRT 5 radiation treatments at UCLA. I want to choose a Medical oncologist in Orange county to manage my Hormone therapy(ORGOVYX). Any of...
Support Group: Prostate Cancer
Last active: Apr 22, 2024
Anyone experiencing nausea/vomiting with Abiraterone?
I will be starting Abiraterone and Orgovyx this week. My doctor also prescribed compazine for nausea and vomitting. Reading the List of possible side effects...
Support Group: Prostate Cancer
Last active: May 11, 2024
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Just an update...
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come...
Support Group: Prostate Cancer
Last active: Jul 21, 2024
Hypothyroidism: Could this be related to my treatment?
Brief summary :RP 9-21Persistent PSAEligard 12/23SR completed 5/24Switched to Orgovyx + Abiraterone + Prednisone 6-24, coming off treatment in 75 daysHad bloodwork yesterday for cardiologist...
Support Group: Prostate Cancer
Last active: Mar 21 10:11am