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Prostate Cancer Support Group

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Discussions (225)
Seeking your thoughts on PSA of .1 on Orgovyx and Nubeqa
Some of you might remember my sharing that my husband’s PSA kept rising after his prostatectomy, more positive lymph nodes were found by PSMA pet,...
Support Group: Prostate Cancer
Last active: 9 hours ago
Does relugolix (Orgovyx) break the blood brain barrier?
Wondering if Orgovyx and which other ADT's break the blood brain barrier? Some have side effects of dizziness and depression while others such as Degeralex...
Support Group: Prostate Cancer
Last active: Jul 5, 2024
Has anyone else moved from Firmagon to Orgovyx?
I have stage 4 (oligometastatic) prostate cancer, and will be on ADT and androgen-reception inhibitors, basically, forever. I've been on monthly Firmagon (Degarelix) injections for...
Support Group: Prostate Cancer
Last active: Jun 13 11:02am
Recovery of testosterone and side effects after stopping ORGOVYX
Diagnosed 2018 with Stage four Metastasized PC. Had 4 rounds of chemo then Lupron injections for about a year and then prescribed ORGOVYX. Have been...
Support Group: Prostate Cancer
Last active: 6 hours ago
Compare side effects of abiraterone, firmagon and orgovyx
My husband has high risk, localized prostate cancer (Gleason score 9) and will be starting hormone therapy soon. Deciding whether or not to do radiation...
Support Group: Prostate Cancer
Last active: Jan 3 11:00am
How long to does one stay on hormone therapy Orgovyx?
Psa < 0.1 after radiation n 6 months hormone therapy- psa was 47 n had gleason scores of 8 - 7 - 6 n cancer...
Support Group: Prostate Cancer
Last active: Sep 25 3:44pm
Orgovyx and the timeline for return of normal testosterone level
I’ve been taking Orgovyx since 11.09.23. How long does it take for Testosterone levels to return to normal once I stop taking this drug? What...
Support Group: Prostate Cancer
Last active: Sep 20 6:46pm
Hot flashes, fatigue 4 months after radiation and Orgovyx
Husband still experiencing debilitating hot/cold flashes, fatigue, various aches and pains 4 months after successful treatments ended. Is there any relief available?
Support Group: Prostate Cancer
Last active: May 26, 2024
High fasting glucose of 115 after 7 mos on Orgovyx
psa is .008 down from 23 with Gleason of 8. Completed 44 radiation treatments. Is high glucose common with Orgovyx? Don't want to start treatment...
Support Group: Prostate Cancer
Last active: Jan 29 1:03pm
Does Medicare pay for Orgovyx treatments? What does it cost?
Does Medicare pay for Orgovyx treatments. ? What’s the most it can cost you if your on Medicare with part D. ?
Support Group: Prostate Cancer
Last active: Mar 13 5:53pm
How fast does Orgovyx work to reduce PSA?
Husband just started Orgovyx yesterday. Anyone know how soon the PSA will go down?
Support Group: Prostate Cancer
Last active: Sep 14 5:23pm
Orgovyx and Diltiazem: Should I be concerned about drug interactions?
I’m about to start a 6-8 week course of Orgovyx in preparation to have HIFU once the prostate shrinks enough. I have a pacemaker and...
Support Group: Prostate Cancer
Last active: Jul 10, 2024
How did you reduce hot flashes from Orgovyx?
Hello, I’ve been on Orgovyx for 7 weeks now and the hot flashes are a real pain in the butt. I would welcome any ideas...
Support Group: Prostate Cancer
Last active: Jan 24 6:32am
Have you stopped then restarted taking Orgovyx? If so how was it.
I have an aggressive type of Prostate cancer. Over the past 36 months I have had RRP (post surgery PSA 0.37) then followed 6 months...
Support Group: Prostate Cancer
Last active: Jan 16, 2024
Will Orgovyx (relugolix) Reduce Prostate Cancer without Radiation?
I am 77 years old. I had my prostate removed over 3 years ago. After 2 years my PSA began to rise from < .01...
Support Group: Prostate Cancer
Last active: Aug 8, 2024
ADT/ ORGOVYX Day 45; Told Radiation Is Next
I was diagnosed with Sigmoid Colon Cancer 26 months ago. I had the resection. The colon cancer metastasized to my right lower lung, and 7...
Support Group: Prostate Cancer
Last active: Aug 18, 2024
Anyone stopped Orgovyx and started again if PSA rises?
Hello All:I am 78 year old man, active with exercise and golf. I had my prostate removed over three years ago. Using Viagra and Trimix...
Support Group: Prostate Cancer
Last active: Nov 24, 2024
I have been on Orgovyx for last two months.
I have been on Orgovyx for last two months and my testosterone is now < 50. But my PSA has not changed at all. Has...
Support Group: Prostate Cancer
Last active: Jun 21 4:17pm
Starting Orgovyx - how long for side effects to occur?
I've been taking Orgovyx for about 3 weeks and so far have zero side effects: no hot flashes, no fatigue or tiredness, no weight gain,...
Support Group: Prostate Cancer
Last active: Oct 25 7:23pm
Your PSA Trends after Salvage Radiation & 6 Months of Orgovyx?
I completed 6 months of Orgovyx 4 months ago and finished 39 IMRT Salvage radiation treatments 6 months ago. Just had a ultrasensitive PSA test...
Support Group: Prostate Cancer
Last active: Feb 11 7:53pm