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Public Support Group 945 total results
Discussions (74)
Castration resistance
What are the modern strategies to delay castration resistance? In my case, I will be on Firmigon (or Orgovyx) for 36 months and Xytiga, for...
Anyone have moderate pericardial effusion with prostate ca treatments?
I am 65year old with PC metastatic to the bones and lymph nodes gleason:9. Diagnosed 0n 04/03/24 I am on docetaxel(chemo), Eligard injection and Nubeqa...
PARP inhibitors or radiation: Any thoughts?
I have stage 4 PC, spread to lymph node and pelvis. Being treated with ADT and Nubeqa, started last September, having an MRI tomorrow to...
Neck fan to help regulate body temp while on hormone therapy?
Currently taking Nubeqa and Orgovyx for hormone therapy. Body temp regulation issues are off the charts for me. I got a "sweetfull" neck fan and...
Relationship between ADT and De Quervain tendonitis, stiff fingers?
I am metastatic PC ,Gleason 9 moved to the bones. Started adt (Nubeqa and Eligard) treatment after, radiations and Doxetacel chemo in 2024. Now my...
PSA now .04. What might be next steps?
My husband has now been taking Orgovyx and Nubeqa for five months. His post-prostatectomy persistent PSA has dropped from 4.7 to .04. Before the medications...
Is PSA rise inevitable after hormone therapy?
In 2024 I had a prostatectomy & PSA rose, am a Gleason 9, stage 4. PSMA detected lung nodules (only area) that disappeared after Eligard...
Update from ucla2025
We had our doctor’s visit yesterday. With the PSA now at .04 he wants to continue with the Orgovyx and Nubeqa and recheck PSA in...
PSA wrong direction after IMRT - What do you guys think?
ADT/ARSI (Orgovyx/Nubeqa) since 6/7/25. IMRT X 20 9/30/25- 10/27/25. Appointment coming up 12/10 for review w/ GUO doc. More history in profile if needed. PSA......
Is your Oncologist an positive cheerleader or more negative?
I have had denovo metastatic high volume prostate cancer to the bone for 3 years now. No matter how good my results are my oncologist...
Just finished Chemo - when good for hip replacement?
Another query here about where to go for hip replacement prompted this query as my hub is in dire need of hip replacement. We have...
Castration Resistance
For all of us that are having success with ADT, I’m sure there is the dread of hearing the words that our prostate cancer has...
RE: Follow-up Imaging post treatments; HD-Brachytherapy, HD-EBRT
Diagnosed July 2024; Locally advanced PC, Gleason 3+4/4+3 in 16/19 cores, No distant metastasis. HD-Brachytherapy and HD-EBRT done Fall 2024. HT (Orgovyx and Zytiga/Nubeqa) started...
Metastatic PC: Cat Scan and Bone Scan during/after treatment.
I am Metastatic PC , Gleason 9(5+4).Cancer moved to the bones/ spine and lymph nodes.I am under a triplet thearapy : Eligard injection every 13...
My latest bloodwork PSA and testosterone: Good news!
OK I’m so excited I have to share I’ve been on the group for a while now every since I was diagnosed well today I...
Curative Radiation to the prostate after triplet therapy SBRT?
I was diagnosed deno stage 4 metastatic prostate cancer to the bone only July 2022. I received radiation to my spin and ribs due to...
SBRT on T8 Only vs Lower Dose Pluvicto and ADT
I am a Care Partner for husband whom has Aphasia from 2 stroke 14 years ago. He is past the Medicare full retirement age. Diagnosed...
SHEEESSHHHH - oh well ... : (
I just hate when my worry proves to be "correct" *sigh. We got new uPSA results today and it is 0.05 : (((. PSA rose...
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
PSMA scan report is in : (((
Ok .... First I want to say that PSMA obviously works at very low PSA, at lest worked for us at 0.14. Tracer used was...
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