Support Groups

Prostate Cancer Support Group

Public Support Group
1,155 total results
Discussions (78)
Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?
I've already had colon cancer and a sigmoid resection that metastasized to my lung ... had a lung wedge resection also. Was doing good except...
Support Group: Prostate Cancer
Last active: Jul 1 8:22pm
Am I the only one who doesn't care about testosterone?
I'm just curious. None of my doctors ever brought it up. A few months ago I brought it up with my urologist (because many people...
Support Group: Prostate Cancer
Last active: Aug 8 8:37am
How do you prevent testosterone levels from going up again?
My husband is taking Lupron shots every3 months to control his Psa. He had prostatectomy 4 years ago. Psa began elevated last year. My question...
Support Group: Prostate Cancer
Last active: Nov 28, 2022
Low baseline testostrone and overall survival after treatment
My husband has a baseline testosterone of 202. He started ADT and will be doing internal and external radiation for stage 4 A advanced regional...
Support Group: Prostate Cancer
Last active: Jul 8 12:41pm
T and PSA levels 6 month post SBRT and 1 month post Orgovyx
Prior to any treatment my PSA was 7.8 and my testosterone was 517. After 9 days of Orgovyx my testosterone was 27.17 At six months...
Support Group: Prostate Cancer
Last active: Jul 4 12:39pm
Muscle loss and muscle building
Since starting my ADT treatments in February, I've been concerned about muscle loss due to the lowering of my testosterone. I'm not a body builder...
Support Group: Prostate Cancer
Last active: Jun 11 9:16pm
Post treatment update #3
Exactly 1 year since 45mg Lupron hormone therapy injection that was followed by 20 radiation sessions. 90 day post treatment PSA test showed no cancer...
Support Group: Prostate Cancer
Last active: Jul 23 1:14pm
Lab tests
Has anyone encountered a lab making mistakes on the testosterone & PSA tests…..it was done at a different lab that we normally go to.
Support Group: Prostate Cancer
Last active: Jul 8, 2023
3 Month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8...
Support Group: Prostate Cancer
Last active: Apr 14 8:01am
Penile Numbness after Prostate Cancer treatment: What can be done?
I had prostate cancer. I went through 18 weeks of radiation. Afterward I was placed on orgovyx. I am still able to have an erection...
Support Group: Prostate Cancer
Last active: Apr 7 7:01am
PSA up at the 3 month point . Looking for guidance
Ok. So trying to get my brain wrapped around expectations for my Dr appt on Tuesday 12/17. I’d like to hear from people who had...
Support Group: Prostate Cancer
Last active: 20 hours ago
Difficulty with androgen deprivation (ADT): what helps?
I am taking Eligard for a year now and gained 25 lbs and have depression and fatigue. I have a friend taking degarilix and he...
Support Group: Prostate Cancer
Last active: Jan 17 11:01am
Husband not responding to ADT
My husband was diagnosed with aggressive and advanced prostate cancer in spring 2022. Started Orgovyx in July 2022, and did 25 radiation treatments. At appointment...
Support Group: Prostate Cancer
Last active: Jul 3, 2023
What does "This abuts the prostate margin over 6mm" mean?
Hello everyone – 61 years of age. PSA 9.7, 15%fPSA, Velocity 1.05 (1.5 jump from June to December 2023), PSA density .12, two lesions PIRADS...
Support Group: Prostate Cancer
Last active: Dec 1 10:14am
Treatment options: radiation without ADT?
Researching treatment options.79 yr old, sexually active, good healthGleason 4+3, PSA 12.91 (tripled within last yr), Testosterone 435, PSMA PetScan No metastases, Decipher .95Radiation oncologist...
Support Group: Prostate Cancer
Last active: Jul 28 9:17am
Blood sugar levels and cancer cell growth
I listened to a podcast this morning, where “sugar” was discussed as an accelerator for cancer cell growth. Turns out, it does, but not for...
Support Group: Prostate Cancer
Last active: Dec 11 1:56pm
Starting TRT now.
I'm 75 now. My prostate was removed in 2021. The cancer spread to my T3 vertebrae. That was treated with radiation. I was put on...
Support Group: Prostate Cancer
Last active: Oct 4 5:47pm
Lupron: Anyone have muscle weakness and severe leg pain?
I have PC and have been on Lupron injections every 3 months for 15 months. I am experiencing severe leg pain in hamstrings and glutes....
Support Group: Prostate Cancer
Last active: Feb 14 3:17pm
Is this true?
I was starting to do a lot better but then I read that it can take 18 months to get my testosterone back to my...
Support Group: Prostate Cancer
Last active: Aug 8 9:26pm
Resolution of Side Effects after Stopping ADT/Lupron
Hello everyone. I am 70 years old and was diagnosed with PC about 2 and a half years ago, G9 with extra capsular extension but...
Support Group: Prostate Cancer
Last active: Sep 7 12:13pm