Prostate Cancer Support Group

I had robotic radical prostatectomy on 3/31/26 at Mass General Brigham (partner of Dana Farber) by a world-renowned surgeon. (I am 67, overall good health,...

Looking for information from patients that have major radiation cystitis from salvage treatment after radical prostate removal that involves decisions on Cystectomy. Can’t find anything...

Given my high risk profile of pT3b disease and .75 Decipher score, I expect my surgeon to propose adjuvant radiotherapy when I meet with him...

Wondering if people have done challenge doses of Tadalafil (20mg) and how that affects you vs. the 5mg daily dose? • How often do you...

I am 62 yo who started out with esophageal cancer after having Ivor Lewis surgery with multiple complications I now suffer from fail to thrive....

I am just under 2 weeks from robotic surgery and wondering if those who've gone through it have any suggestions for making life easier around...

Hi everyone, I was considering radiation therapy vs. surgery, so my radiation oncologist ordered a Decipher test. My Decipher test results came back at .61,...

I had surgery over 23 years ago. Gleason was 3+3=6. All cancer was contained within the prostate. No follow up treatment needed. PSA has remained...

Good morning, My name is Mike, Had my prostate removed 7-2-2025, 1st PSA at seven weeks was .30 now about 2 1/2 months after my...

Hello. I haven’t seen any posts in forums about Xaluritamig clinical trial participants so figured I’d share in case there are folks out there who...

Just absolutely devastated last night during a PC support group meeting. I thought I'd share with the support group (via zoom) that my RP surgery...

Hello all, I was so glad to find this page before my surgery and immediately post surgery, we (Wife and I) gained a lot of...

Age: 56. Physically/mentally: Strong. Gleason 8 - High Risk. Stage: IIIa Cancer tumor: Contained within prostate for now. Tumor protruding outward. Recommendation: Per radiologists, surgeons,...

I thought I’d post a quick review of Menvault’s protective briefs (for bladder leakage) in case anyone has seen their ads and was thinking about...

I was raised in a boarding school where we were taught to think critically, to ask bold questions, and to develop broad, inquisitive minds. This...

Hi, It's been a while since I posted on here so here goes a quick review of my past and my latest issue. I had...

Well, have been learning from this support group for past 5 months since PSA test came back 11.7 then 5 months later 8.7. Today, biopsy...

“Lost in Translation: Or, How ADT and the English Language Became Co-Conspirators in My Public Humiliation” by Hans Casteels, reluctant polyglot and hormonal hostage I...

Yes, you read that correctly. Look, along with every other guy who finds out they have prostate cancer we all know the score: you might...

This is my attempt to compile what I‘ve learned and tips/tricks to help cope with RARP and its side effects (while it's still fresh). Much...