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Prostate Cancer Support Group

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Discussions (62)
Radiopharmaceutical treatment now instead of last resort.
What if you're 50 and want to give Pluvicto (or similar radiopharmaceutical) a try now? Why wait until using it as a last resort? Let's...
Support Group: Prostate Cancer
Last active: Mar 2 4:35pm
What to expect with chemo docetaxel?
My oncologist is adding docetaxel to my other two medications nubeqa and eligard. Does anyone have any advise on what to expext; especially what can...
Support Group: Prostate Cancer
Last active: Aug 26, 2025
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
3C, PPC 8/12, highest GG5; T1c N0 M0 - 5 SBRT sessions to Prostate?
Hi everyone, Thank you for all the valuable information. My husband has been staged as 3c because of the aggressive, cribriform patterned cells found in...
Support Group: Prostate Cancer
Last active: 3 days ago
Starting Chemo Taxotere/docetaxel, what to expect?
I have been diagnosed with Gleason 4 + 4 = 8, group 4 PC. Currently on Lupron and Nubeqa. Will be adding Taxotere to my...
Support Group: Prostate Cancer
Last active: Jun 23, 2025
4th chemo infusion: Anyone had worsening symptoms with chemo?
I just had my 4th chemo infusion and I can tell it was a lot worse than the first three. I'm on triple therapy nubeqa...
Support Group: Prostate Cancer
Last active: Dec 12, 2025
Darolutamide Monotherapy
I’m curious about the FDA’s June 5 approval of darolutamide (Nubeqa) as a monotherapy for mCSPC. My understanding is that the AR blocker would allow...
Support Group: Prostate Cancer
Last active: Dec 27, 2025
Skin rash & swelling of belly
I have a metastatic prostate cancer that moved to the bones which was diagnosed in 04/2024. I am currently traited with 2 hormonal therapies :...
Support Group: Prostate Cancer
Last active: Jul 24, 2024
Darolutamide Impact on Testosterone Utilization
I did 13 months of ADT (Lupron injections) with darolutamide (Nubeqa) while doing chemo then radiation. Now I’m on darolutamide only. While my testosterone is...
Support Group: Prostate Cancer
Last active: Jul 26, 2025
Trimix - width is good, length is lacking
I'm on both Lupron and Nubeqa and my PSA is undetectable for two years. I also have complete ED, Viagra doesn't do anything. I started...
Support Group: Prostate Cancer
Last active: Nov 7, 2025
Update from ucla2025
We had our doctor’s visit yesterday. With the PSA now at .04 he wants to continue with the Orgovyx and Nubeqa and recheck PSA in...
Support Group: Prostate Cancer
Last active: Feb 24 2:16pm
PSA now .04. What might be next steps?
My husband has now been taking Orgovyx and Nubeqa for five months. His post-prostatectomy persistent PSA has dropped from 4.7 to .04. Before the medications...
Support Group: Prostate Cancer
Last active: Feb 20 7:11pm
Neuropathy, edema and insomia side effects from chemo.
I am a PC metastatic(gleason 4+5) patient. Cancer moved to the bones. Diagnosed in 04/24, started with Firmagon, then radiations(2weeks), Nubeqa, Eligard(replaced Firmagon)and 6 rounds...
Support Group: Prostate Cancer
Last active: Feb 11, 2025
Lupron v. orgovyx...which is preferable for the heart?
have A/FIB and CHF, drugs: xarelto amd metropolol. metastatic Prostate cancer in lungs and some lymph glands, caught early. began LUPRON/NUBEQA in april. effective. since...
Support Group: Prostate Cancer
Last active: Nov 2, 2025
RE: Follow-up Imaging post treatments; HD-Brachytherapy, HD-EBRT
Diagnosed July 2024; Locally advanced PC, Gleason 3+4/4+3 in 16/19 cores, No distant metastasis. HD-Brachytherapy and HD-EBRT done Fall 2024. HT (Orgovyx and Zytiga/Nubeqa) started...
Support Group: Prostate Cancer
Last active: Jan 8 6:03am
Castration resistance
What are the modern strategies to delay castration resistance? In my case, I will be on Firmigon (or Orgovyx) for 36 months and Xytiga, for...
Support Group: Prostate Cancer
Last active: Aug 18, 2025
Anyone have moderate pericardial effusion with prostate ca treatments?
I am 65year old with PC metastatic to the bones and lymph nodes gleason:9. Diagnosed 0n 04/03/24 I am on docetaxel(chemo), Eligard injection and Nubeqa...
Support Group: Prostate Cancer
Last active: Nov 4, 2024
PARP inhibitors or radiation: Any thoughts?
I have stage 4 PC, spread to lymph node and pelvis. Being treated with ADT and Nubeqa, started last September, having an MRI tomorrow to...
Support Group: Prostate Cancer
Last active: Jan 19, 2025
Relationship between ADT and De Quervain tendonitis, stiff fingers?
I am metastatic PC ,Gleason 9 moved to the bones. Started adt (Nubeqa and Eligard) treatment after, radiations and Doxetacel chemo in 2024. Now my...
Support Group: Prostate Cancer
Last active: Jan 5 10:40am
PSA wrong direction after IMRT - What do you guys think?
ADT/ARSI (Orgovyx/Nubeqa) since 6/7/25. IMRT X 20 9/30/25- 10/27/25. Appointment coming up 12/10 for review w/ GUO doc. More history in profile if needed. PSA......
Support Group: Prostate Cancer
Last active: Dec 8, 2025