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Public Support Group 945 total results
Discussions (74)
I am new to group. Metastatic prostate cancer. Gleason score 9. PSA 20
Started orgovynx 30 days ago. PSA now 3.02 and testosterone 18. Just started Nubeqa. Hope to see further improvement. Anyone with experience in similar condition?
Anyone been able to get off meds with metastatic prostate cancer?
Has anyone ever bern able to get off nubeqa or any other treatment medications for metastatic cancer.
Anyone taken Effexor (venlafaxine) to manage hot flashes?
My oncologist recommended effexor for hot flashes from nubeqa. Anyone been on that medication and did it help?
What a long, strange journey it’s been!
What a long, strange journey it’s been! I had a non-typical diagnosis of stage 4 PC Gleason score of 8 (4 + 4) in January...
What to expect with chemo docetaxel?
My oncologist is adding docetaxel to my other two medications nubeqa and eligard. Does anyone have any advise on what to expext; especially what can...
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Starting Chemo Taxotere/docetaxel, what to expect?
I have been diagnosed with Gleason 4 + 4 = 8, group 4 PC. Currently on Lupron and Nubeqa. Will be adding Taxotere to my...
Darolutamide Monotherapy
I’m curious about the FDA’s June 5 approval of darolutamide (Nubeqa) as a monotherapy for mCSPC. My understanding is that the AR blocker would allow...
Hi from Denmark - Im 67 - PC since 2021 - High risk low volume
Diagnosed in 21 with psa 540 and Gleason 8 - been on ADT Eligard and NUBEQA since - the ADT is a tough friend to...
4th chemo infusion: Anyone had worsening symptoms with chemo?
I just had my 4th chemo infusion and I can tell it was a lot worse than the first three. I'm on triple therapy nubeqa...
Orgovyx works fast
Two weeks ago, I decided to resume hormone therapy with Orgovyx & Nubeqa . At that time my testosterone was at 600 & slowly climbing....
Newbie: Can anyone point me in the right direction?
I just discovered this wonderful site. But I'm a little confused. I don't understand the dozens of acronyms. Can anyone point me in the right...
Skin rash & swelling of belly
I have a metastatic prostate cancer that moved to the bones which was diagnosed in 04/2024. I am currently traited with 2 hormonal therapies :...
Darolutamide Impact on Testosterone Utilization
I did 13 months of ADT (Lupron injections) with darolutamide (Nubeqa) while doing chemo then radiation. Now I’m on darolutamide only. While my testosterone is...
3C, PPC 8/12, highest GG5; T1c N0 M0 - 5 SBRT sessions to Prostate?
Hi everyone, Thank you for all the valuable information. My husband has been staged as 3c because of the aggressive, cribriform patterned cells found in...
Trimix - width is good, length is lacking
I'm on both Lupron and Nubeqa and my PSA is undetectable for two years. I also have complete ED, Viagra doesn't do anything. I started...
Steroids with Chemo: What is your experience?
I am a 65 year old PC patient, metastatic to the bones, Gleason : 9. Not good.I was diagnosed on 04/03/24.On the 04/15 I started...
Neuropathy, edema and insomia side effects from chemo.
I am a PC metastatic(gleason 4+5) patient. Cancer moved to the bones. Diagnosed in 04/24, started with Firmagon, then radiations(2weeks), Nubeqa, Eligard(replaced Firmagon)and 6 rounds...
Lupron v. orgovyx...which is preferable for the heart?
have A/FIB and CHF, drugs: xarelto amd metropolol. metastatic Prostate cancer in lungs and some lymph glands, caught early. began LUPRON/NUBEQA in april. effective. since...
Radiopharmaceutical treatment now instead of last resort.
What if you're 50 and want to give Pluvicto (or similar radiopharmaceutical) a try now? Why wait until using it as a last resort? Let's...
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