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Public Support Group 6,254 total results
Discussions (376)
Question regarding resistance training.
Greetings: Background: I was diagnosed in February 2023 with Gleason 9 PC, PSA 25 and 9/12 cores positive. The PSMA-Pet showed no spread, however the...
the benefits of downsizing
One main benefit often touted is easier maintenance, and I have noticed that my showers are a bit shorter now; there's just less equipment to...
Husband’s low psa, aggressive Gleason 8
I’ve been reading along here for a while. Many knowledgeable people! My husband (just turned 60) was diagnosed Jan Gleason 8, pni, large tumor volume,...
Total inability to have an orgasm post radiation
Since finishing radiation treatment two months ago, I've been completely unable to have an orgasm. I'm on Orgovyx for 2 more months, but still have...
Side effects of radiation with hormone therapy & heart conditions
https://connect.mayoclinic.org/discussion/side-effects-from-radiation-together-with-hormone-therapy/
Am about to start radiation (Conebeam) therapy along with ADT therapy. ..Zytiga and Lupron (Eligard). Drs prescribed 40 sessions of radiation and at least 2...
PSA never reaching undetectable
My partner was diagnosed with PSA 92, stage 3a in Nov 2023. Started Orgovyx March of 2024, did 40 sessions of radiation, finishing in June...
1st PSA test seven weeks after surgery
Hi All, this morning I did my first PSA test after prostatectomy. I had positive margins and will be doing ADT and radiation soon, but...
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
Naturally low testosterone and still aggressive tumor?
I have had naturally low testosterone rates all my life. If it’s true that prostate cancer “feeds” on testosterone, and that testosterone is naturally low,...
Is your Oncologist an positive cheerleader or more negative?
I have had denovo metastatic high volume prostate cancer to the bone for 3 years now. No matter how good my results are my oncologist...
Radiation vs. Prostectomy (nerve sparing)
Hellos all, I am curious if other patients on this site have a similar situation to mine and what their course of treatment (decision of...
Frequent and urine burning
I had been diagnosed with prostate cancer on 4th Jan. 2022with Gleason score 8 ( locally prostate cancer, stage cT2cN0M0). Treatment was ADT Triptorelin 11.25...
The hypochondria cycle
This happened to me today briefly with my left collarbone — I convinced myself that it was sticking out slightly further than my right collarbone:...
Choice: 28 full-intensity or 39 lower-intensity radiation sessions?
I’m coming up soon to the beginning of my radiation for my PC. I have started ADT already so this is next. My radiologist said...
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Lost in Translation
“Lost in Translation: Or, How ADT and the English Language Became Co-Conspirators in My Public Humiliation” by Hans Casteels, reluctant polyglot and hormonal hostage I...
"Sexual Problems" Top Concern After Prostate Cancer Treatment
A UK study of 650 men (ages 50 and up, diverse ethnicities and sexual orientations) found "sexual problems" the top concern after prostate cancer treatment....
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
Recent PSMA PET does not detect cancer, what’s next?
I had a prostatectomy in May of 2016. Gleason of 7 = 4+3, psa of 10.5 . First post op psa was .01 and remained...
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