Connect
Public Support Group 3,745 total results
Discussions (286)
What is the thought process for this?
I'm one year post-Orgovyx and 18 months post SBRT radiation. My testosterone is 220 and has been dropping instead of climbing with my doctor thinking...
Deciding about 2-year ARPI (Xtandi) being added to lupron treatment
Seeing my oncologist today for the 6-month lupron injection. Radiation is scheduled for late October. The doctor says he recommends the ARPI because my recurrence...
Post therapy Testosterone
I would be interested to hear about anyone’s experience concerning Testosterone therapy after Proton radiation and hormone pills. Earlier this year (2023) I had 29...
Guidance to help with ADT decision.
My dad is looking to me to help him understand treatment risks/tradeoffs. After reading posts, blogs, and studies, I am now looking for advice on...
How to release flatulence without releasing urine?
First of all, I want to say thank you to Mayo Clinic for this forum and all the members of this forum that provide valuable...
Any other methods Better than PSA to monitor prostate cancer?
I've attached my PSA scores since they started saving in EPIC in 2000. While you can seen a marked increase around 2017, my Family Medicine...
I am new to group. Metastatic prostate cancer. Gleason score 9. PSA 20
Started orgovynx 30 days ago. PSA now 3.02 and testosterone 18. Just started Nubeqa. Hope to see further improvement. Anyone with experience in similar condition?
Nubeqa (Darolutamide) versus Zytiga versus Estradiol Patches
Does anyone have experience with these two drugs? My partner was recently prescribed Zytiga along with Orgovyx plus a 7 week radiation treatment. I have...
Treatment options for locally advanced prostate cancer?
I have recently been diagnosed with locally advanced prostate cancer in December 2023. I had an MRI that diagnosed my PC with a Gleason 9...
Should I try using TRIMIX while on ADT?
ATTN MODERATOR: I’m aware that there is another post here related to TRIMIX. I’ve gone through it and could not find an answer that applies...
Alternate ADT drug shaking things up: Estrogen?
At my latest appointment with the oncologist who is managing my care during my 2 year ADT sentence, he said the prostate cancer specialists at...
RT + 3 years ADT + 2 years Zytiga initial treatment?
Is anyone here being treated for non-metastatic disease with 3 years ADT + 2 years abiraterone (e.g. Zytiga) as a first Hormone treatment? I'd be...
Relief for hot flashes during the night
I found something that helps reduce the number of disruptive hot flashes that wake me up during the night and want to share it with...
Don’t know what I don’t know…diagnosed 5/13/25
First post here but, not after spending countless hours reading countless pages of this forum. First, let me say thank you to all who take...
Recurrence post Tulsa Pro
Married 33 years, two kids, and don't want PCa being a real drag on my life and family. Here is my history, plus where I...
Is treatment working?
orgovix 120 & zytiga 1000 but PSA went from 12 to 19 in 9 mo. now what?
Zytiga and Lupron Shot
My 89-year-old father was on Orgovx but his PSA went up so they started him on 4 250mg per day along with a prednisone pill...
Anyone had Pluvicto at age 90+? How were the side effects?
My father has had Orgovx and now is on Zytiga with a Lupron shot every three months but his cancer has become active again. The...
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
Degarelix side effects worsening?
After 8 months with no response to Orgivyx, in May my husband started degarelix. The results have been very encouraging but it seems like the...
Connect