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Prostate Cancer Support Group

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Discussions (251)
Got some answers for stage 4 prostate cancer
We had our first Urology Oncologist appointment today at UNC. Finally have a "plan" after the PSA test started it all 5 weeks ago! PSA...
Support Group: Prostate Cancer
Last active: May 8, 2025
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Support Group: Prostate Cancer
Last active: Jul 18, 2025
PSMA negative, Biopsy positive
My husband (71) has a Gleason 8, PSA 8 (4+4). His recent MRI-guided biopsy revealed 9/18 positive cores, four of those 4+4. PSMA showed no...
Support Group: Prostate Cancer
Last active: Feb 14, 2025
41-days of salvage RT - your experience with side effects?
Hello, First time post, but second go ‘round with prostate cancer. Let me start with my request to the group, then I’ll summarize my history.I...
Support Group: Prostate Cancer
Last active: Aug 4, 2025
Have you stopped then restarted taking Orgovyx? If so how was it.
I have an aggressive type of Prostate cancer. Over the past 36 months I have had RRP (post surgery PSA 0.37) then followed 6 months...
Support Group: Prostate Cancer
Last active: Jan 16, 2024
Rising PSA post Prostatectomy. Please, what should I expect or do?
Please, what should I expect or do? What treatment options would you recommend? With Gratitude to you. I had a prostatectomy three years ago. Since...
Support Group: Prostate Cancer
Last active: Dec 7, 2025
Treatment Decision - Radical Prostatectomy versus Radiation Therapy
Recently diagnosed and now stuck in that frustrating "no man's land" between surgery and radiation therapy. Diagnosed after an increase in my PSA to 5.2...
Support Group: Prostate Cancer
Last active: Mar 10 2:26pm
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Support Group: Prostate Cancer
Last active: Jul 16, 2024
Jansen clinical trial ADT & Erleada and surgery
I am 75 years old and a year ago my biopsy indicated that I had NM advanced aggressive Gleason score 9 prostate cancer and my...
Support Group: Prostate Cancer
Last active: Dec 15, 2022
Got my ArteraAI Prostate Test results
Artera AI test results :Hey. Just wanted to follow up on getting my results yesterday from my Artera A I test. The test is similar...
Support Group: Prostate Cancer
Last active: Jul 24, 2024
ADT: RO says I need ADT, Urologist says I don't.
Of course I would like to avoid the side effects of ADT, but I'm willing to do the six months suggested by my RO if...
Support Group: Prostate Cancer
Last active: Nov 9, 2025
Surgery or Radiation for Intermediate Prostate Cancer?
I was diagnosed with low-grade and low-volume cancer in 2018, and placed on surveillance. 6/24/2024: Prostate biopsy after MRI Now with third biopsy, cancer is...
Support Group: Prostate Cancer
Last active: Jul 10, 2025
Reversal of penile shortening after stopping Lupron
I am a 71 yo diagnosed with Gleason 9 PC in August2021. Had RP 10/21. Six months post op PSA rose to 0.37 and a...
Support Group: Prostate Cancer
Last active: Dec 1, 2025
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
Newby in PNW Favorable vs Unfavorable Intermediate
66 year old - healthy & active. PSA 5.03 (9/23) then 7.48 (9/24). MRI: T2 with extracapsular extension. Biopsy: Gleason 3+4/7, Cribriform aprox. 40% of...
Support Group: Prostate Cancer
Last active: Mar 11, 2025
Sling (or other treatment/prodedure) for climaturia following RP
I had a RP just over 3 years ago for G9 and subsequently had triple therapy plus whole pelvic radiation for oligo metastatic disease. My...
Support Group: Prostate Cancer
Last active: Feb 5, 2025
MRI-linac question about BCR
I am aware of the mirage trial and the decreased side effect profile with sbrt mri-linac. I am wondering what are the numbers for biochemical...
Support Group: Prostate Cancer
Last active: May 25, 2025
Decipher Results are in... ADT recommendations?
Decipher test results just in and unfortunately I'm in the high-risk range for metastasis at .69. Awaiting discussion with RO. Anxious to find out if...
Support Group: Prostate Cancer
Last active: Nov 15, 2025
Frequent and urine burning
I had been diagnosed with prostate cancer on 4th Jan. 2022with Gleason score 8 ( locally prostate cancer, stage cT2cN0M0). Treatment was ADT Triptorelin 11.25...
Support Group: Prostate Cancer
Last active: Jul 10, 2023
RT + 3 years ADT + 2 years Zytiga initial treatment?
Is anyone here being treated for non-metastatic disease with 3 years ADT + 2 years abiraterone (e.g. Zytiga) as a first Hormone treatment? I'd be...
Support Group: Prostate Cancer
Last active: Sep 23, 2024