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Prostate Cancer Support Group

Public Support Group
3,838 total results
Discussions (233)
In praise of Orgovyx
I'm hardly an old vet here (my stage-4 prostate cancer was diagnosed just 3 years ago), but I've seen big changes in treatment even over...
Support Group: Prostate Cancer
Last active: 16 hours ago
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
How does the treatment team come together?
I have submitted my reports scan etc to Mayo clinical team in Jax. I’m waiting to hear back from them. Will they review everything and...
Support Group: Prostate Cancer
Last active: Feb 24 3:16pm
How accurate are the PSA Tests?
I posted earlier that after 2+ years post surgery, my PSA had been undetectable < .006 on all my tests. Then my test 2 weeks...
Support Group: Prostate Cancer
Last active: Sep 27, 2023
Choice: 28 full-intensity or 39 lower-intensity radiation sessions?
I’m coming up soon to the beginning of my radiation for my PC. I have started ADT already so this is next. My radiologist said...
Support Group: Prostate Cancer
Last active: Jan 24 6:39am
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Naturally low testosterone and still aggressive tumor?
I have had naturally low testosterone rates all my life. If it’s true that prostate cancer “feeds” on testosterone, and that testosterone is naturally low,...
Support Group: Prostate Cancer
Last active: Dec 23, 2024
Total inability to have an orgasm post radiation
Since finishing radiation treatment two months ago, I've been completely unable to have an orgasm. I'm on Orgovyx for 2 more months, but still have...
Support Group: Prostate Cancer
Last active: Aug 28, 2024
Side effects of radiation with hormone therapy & heart conditions
Am about to start radiation (Conebeam) therapy along with ADT therapy. ..Zytiga and Lupron (Eligard). Drs prescribed 40 sessions of radiation and at least 2...
Support Group: Prostate Cancer
Last active: Sep 23, 2024
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Support Group: Prostate Cancer
Last active: Jul 16, 2024
Frequent and urine burning
I had been diagnosed with prostate cancer on 4th Jan. 2022with Gleason score 8 ( locally prostate cancer, stage cT2cN0M0). Treatment was ADT Triptorelin 11.25...
Support Group: Prostate Cancer
Last active: Jul 10, 2023
The hypochondria cycle
This happened to me today briefly with my left collarbone — I convinced myself that it was sticking out slightly further than my right collarbone:...
Support Group: Prostate Cancer
Last active: Aug 24, 2024
Why is volume of the cancer not used?
Compare two situations: * One has a 3+4 lesion at 2.1 cc of total volume, the 4 at 49% and the 3 at 51%. So...
Support Group: Prostate Cancer
Last active: Sep 22, 2023
One month of Orgovyx completed
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As...
Support Group: Prostate Cancer
Last active: Feb 13 8:09am
Anyone received salvage lymph node removal for BCR after prostatectomy
After experiencing biochemical recurrence after robotic prostatectomy (4 years ago) current PSA 0.25 my social health care was scheduling me for 25 sessions RT with...
Support Group: Prostate Cancer
Last active: Apr 17, 2023
ED after prostatectomy? Any first hand experiences overcoming it?
I originally had brachytherapy in 2020. I chose that so I could continue my active sex life with my wife. The cancer responded favorably and...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Mar 1 10:00am
Silly accounting tricks
So, I'm nearing the end of my treatment - 6 months of ADT with 28 sessions of photon EBRT in the middle. I'm looking at...
Support Group: Prostate Cancer
Last active: Feb 26 4:13pm
Typical Treatment Option Question
My recent biopsy revealed Gleason 9. No lymph node involvement or bone. CT scan was clear for chest, abdomen, and pelvis. No PSMA done. There...
Support Group: Prostate Cancer
Last active: Feb 17 11:22am
Lupron and Medicare Part D
Hello Hopefully someone can steer me to an archived thread, or to some other resources. I'm 64 and 4 months old, so I'm starting to...
Support Group: Prostate Cancer
Last active: Jul 18, 2024