Support Groups

Prostate Cancer Support Group

Public Support Group
2,034 total results
Discussions (153)
Orgovyx Holiday
So, I just finished 12 months of Orgovyx and as of today, I begin a Holiday. Of course, how long that lasts depends on when...
Support Group: Prostate Cancer
Last active: Jan 1 12:29pm
In praise of Orgovyx
I'm hardly an old vet here (my stage-4 prostate cancer was diagnosed just 3 years ago), but I've seen big changes in treatment even over...
Support Group: Prostate Cancer
Last active: Apr 7 9:58am
Orgovyx side effect?
My husband has been on Orgovyx for 3 months. Last night his blood pressure was 188/95 before going down to 155/90. This morning it was...
Support Group: Prostate Cancer
Last active: May 29 11:06am
Orgovyx as lifelong treatment
Does anyone who has Advanced Prostate Cancer been prescribed Orgovyx as lifelong treatment as I have?
Support Group: Prostate Cancer
Last active: Apr 3 9:55pm
Recent Orgovyx Validation
Recent validation of Orgovyx benefits vs Lupron. https://www.urologytimes.com/view/relugolix-plus-radiotherapy-shows-safety-efficacy-in-prostate-cancer
Support Group: Prostate Cancer
Last active: Mar 21, 2024
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Mar 1 10:00am
Recovery from Orgovyx?
I took orgovyx for about 1 year. Had 28 IBRT treatments for Gleason 6-7 prostate cancer. While on orgovyx my PSA was undetectable. I have...
Support Group: Prostate Cancer
Last active: Mar 30, 2024
Orgovyx before surgery
I am scheduled for RARP 4/3/2025. I am on Orgovyx for 3 months prior to this as a way to "shrink the tumor." The ca...
Support Group: Prostate Cancer
Last active: Feb 12 8:04am
Orgovyx Testicular pain
I started with Eligard , the 3 month injection last year in December 2024. Among the side effects that I noticed was testicular pain. Now...
Support Group: Prostate Cancer
Last active: 5 days ago
Taking Orgovyx long term
I have been told that after taking orgovyx or any hormone drug for several years, the drug will lose its effect to halt the cancer....
Support Group: Prostate Cancer
Last active: May 21 2:44pm
Orgovyx done. What to expect?
I have been off Orgovyx for 7 days. Having increased number of hot flashes and still having leg pain at night. Libido still gone. Anyone...
Support Group: Prostate Cancer
Last active: Oct 25, 2024
Switching from Lupron to Orgovyx.
Doing 6 months ADT and considering switching from Lupron to Orgovyx for my second 3-month period. Have any of you done this? If so, I...
Support Group: Prostate Cancer
Last active: Mar 10 11:10am
4 Weeks on Orgovyx and PSA Undectable
My RARP was in early December 2024. Clean margins and prior PMSA/PET was negative , but I did have signs of PNI and EPE. First...
Support Group: Prostate Cancer
Last active: Jun 1 7:10am
One month of Orgovyx completed
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As...
Support Group: Prostate Cancer
Last active: Feb 13 8:09am
Orgovyx and zytiga side effects
I’m a 69 year old, who finished IMRT 5 weeks go and I’ve been on these ADT medications for 4 months now. This last week...
Support Group: Prostate Cancer
Last active: Mar 3 9:52am
On Orgovyx and abiraterone: Radiation with or after ADT?
Hi,I have been diagnosed prostate cancer Gleason Score of 9 High risk.One Doc wants to start radiation therapy immediately. The other Doc wants to wait...
Support Group: Prostate Cancer
Last active: Mar 20, 2024
COVID: Paxlovid and Orgovyx drug interaction
I tested positive for Covid and went to urgent care to get checked out and request a prescription for Paxlovid.Guess what? There is a major...
Support Group: Prostate Cancer
Last active: Sep 15, 2024
Anyone on Orgovyx have a raging appetite?
Since being in Orgovyx - 2 months - I have been constantly hungry no matter how much I eat or how full I feel. Weird...
Support Group: Prostate Cancer
Last active: Jan 26 3:32pm
What's your experience with Orgovyx (relugolix)?
Mods, if you think this redundant, please move or remove. I thought it might be helpful to have an orgovyx thread similar to the lupron...
Support Group: Prostate Cancer
Last active: May 9 8:23am
Orgovyx extreme fatigue side effects
I have been using Orgovyx several years for prostate cancer and am now have in extreme fatigue side effects during the afternoon. I take Orgovyx...
Support Group: Prostate Cancer
Last active: Sep 26, 2024