Prostate Cancer Support Group

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Comments (2,352)

I am 2 months post Orgovyx & Zytiga and fortunate to say my testosterone has almost...

https://connect.mayoclinic.org/comment/1247900/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 1 9:11am

If asking me; yes, I had a short course of ADT Orgovyx as part of my...

https://connect.mayoclinic.org/comment/1354552/

Discussion: Arthritis upswing after radiation: Is this common?

Support Group: Prostate Cancer

Posted: Jul 23 10:53am

Two more weeks before I see my medical oncologist. This is a major meeting as we...

https://connect.mayoclinic.org/comment/1179642/

Discussion: Dr Mark Scholz/PCRI

Support Group: Prostate Cancer

Posted: Nov 25, 2024

I to have many hot flashes throughout the day ,and the flashes wake me up when...

https://connect.mayoclinic.org/comment/1147204/

Discussion: What helped me with hot flashes: What helped you?

Support Group: Prostate Cancer

Posted: Sep 25, 2024

Hello I’ve been on Orgovyx for 5 months and xtandi for 4 months Extremely satisfactory results....

https://connect.mayoclinic.org/comment/1138329/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 8, 2024

Undetectable PSA means that I'm still responding very well to Orgovyx, Erleada, and my radiation therapies...

https://connect.mayoclinic.org/comment/1124990/

Discussion: ADT/ ORGOVYX Day 45; Told Radiation Is Next

Support Group: Prostate Cancer

Posted: Aug 16, 2024

Starte taking orgovyx about two weeks ago. was looking to see if anyone had muscle/body aches?...

https://connect.mayoclinic.org/comment/1037525/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 21, 2024

Orgovyx was covered under my Medicare Part D drug coverage as a Tier 5 med w/...

https://connect.mayoclinic.org/comment/1036375/

Discussion: Recent Orgovyx Validation

Support Group: Prostate Cancer

Posted: Mar 19, 2024

I too am very interested in reversal of my shrinkage. After RT and now 8 months...

https://connect.mayoclinic.org/comment/1232863/

Discussion: Reversal of penile shortening after stopping Lupron

Support Group: Prostate Cancer

Posted: Feb 9 9:57am

@hanscasteels I am a Prostate cancer patient of exactly one year. I've had the PSA, Digital...

https://connect.mayoclinic.org/comment/1287929/

Discussion: The Waiting Room: A Post Treatment Parable for the Terminally Stable

Support Group: Prostate Cancer

Posted: Apr 23 7:23am

Hi rj, If you’ve been following this forum, the phrase most often repeated (ad nauseum because...

https://connect.mayoclinic.org/comment/1277624/

Discussion: BCR after 5 years Prostatectomy now questions about SRT

Support Group: Prostate Cancer

Posted: Apr 9 8:12am

Hi. @melcanada . I'm sorry to hear about the flareup. Am I right in remembering that...

https://connect.mayoclinic.org/comment/1192054/

Discussion: How concerning is this PSA rise?

Support Group: Prostate Cancer

Posted: Dec 17, 2024

Thank you jeffmarc! I'm glad to hear about your experience with the SRT. He has had...

https://connect.mayoclinic.org/comment/1174262/

Discussion: Anyone had salvage radiation treatment followed by Xofigo for mets?

Support Group: Prostate Cancer

Posted: Nov 16, 2024

Please look at my profile for my posts. The executive summary is; 68, one 3+3, one...

https://connect.mayoclinic.org/comment/1062846/

Discussion: Did Decipher GRID report help guide your treatment decisions?

Support Group: Prostate Cancer

Posted: May 5, 2024

I had photon SBRT with a focal boost the the dominant lesion and urethral steering to...

https://connect.mayoclinic.org/comment/1030735/

Discussion: Is SBRT with proton beam now a gold standard for prostate cancer?

Support Group: Prostate Cancer

Posted: Mar 9, 2024

No, sorry about the shorthand. My initial treatment (and only treatment thus far) was five fractions...

https://connect.mayoclinic.org/comment/965109/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Nov 15, 2023

I am 68, retired MD, and have a new diagnosis of prostate cancer, Gleason 4+3, some...

https://connect.mayoclinic.org/comment/739779/

Discussion: Lupron yeah or Lupron nay that is the question.

Support Group: Prostate Cancer

Posted: Aug 20, 2022

I had it done in May 2024, had pads for maybe a month and I am...

https://connect.mayoclinic.org/comment/1250169/

Discussion: What is a Prostatectomy Like?

Support Group: Prostate Cancer

Posted: Mar 4 9:39am

Looking for input regarding the SpaceOAR (organ at risk) gel. I have been on Orgovyx for...

https://connect.mayoclinic.org/comment/1232653/

Discussion: SpaceOAR causing issues

Support Group: Prostate Cancer

Posted: Feb 8 11:49pm

Thanks. My readings were all around the -2.5 range, with a couple over -3 and none...

https://connect.mayoclinic.org/comment/1264138/

Discussion: Osteoporosis and Osteopenia treatment and prostate cancer?

Support Group: Prostate Cancer

Posted: Mar 22 12:04pm

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