Prostate Cancer Support Group

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Comments (3,887)

@mrd1000 I was on Lupron for six years before I switched to Orgovyx. I have noticed...

https://connect.mayoclinic.org/comment/1578566/

Discussion: Has anyone switched from Lupron to Orgovyx? Glad you did?

Support Group: Prostate Cancer

Posted: May 19 5:39pm

I don't know all the details, but Orgovyx has "Made in France" on the label. I...

https://connect.mayoclinic.org/comment/1537776/

Discussion: Orgovyx as faithful ally

Support Group: Prostate Cancer

Posted: Mar 29 8:46am

Dd2312: How has your recovery from Orgovyx progressed? Fatigue and "wooziness " are my issues 4...

https://connect.mayoclinic.org/comment/894394/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: Jul 12, 2023

I am able to stay on Orgovyx but could not stay on the abiraterone and prednisone....

https://connect.mayoclinic.org/comment/1330224/

Discussion: Stopping ADT Scared and Anxiety Update

Support Group: Prostate Cancer

Posted: Jun 18, 2025

@johndavis60 Thanks so much for asking John 💖 We finally got all that was needed to...

https://connect.mayoclinic.org/comment/1599603/

Discussion: CT scan found tiny pulmonary nodules

Support Group: Prostate Cancer

Posted: Jun 16 4:07pm

The way Orgovyx works is it takes your testosterone down to Below 20. If you stop...

https://connect.mayoclinic.org/comment/1469618/

Discussion: Has anyone else had tachycardia with Orgovyx?

Support Group: Prostate Cancer

Posted: Dec 28, 2025

I was denied on first go around on Orgovyx. Had to appeal. I pay $200/ mo...

https://connect.mayoclinic.org/comment/1087685/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jun 16, 2024

@canadaanne well I am not a green beret when it comes to taking meds..so the 5...

https://connect.mayoclinic.org/comment/1608147/

Discussion: new PSA...this is 1 yrs anniversary ( check every 3 months)

Support Group: Prostate Cancer

Posted: 3 days ago

toolbelt, did you start orgovyx prior to SBRT? My CT Simulation is on April 1st and...

https://connect.mayoclinic.org/comment/1042659/

Discussion: 3 Month post SBRT PSA

Support Group: Prostate Cancer

Posted: Mar 30, 2024

In the good old USA it’s set up to drain senior citizens of every dime they...

https://connect.mayoclinic.org/comment/1546789/

Discussion: Orgovyx prices world wide

Support Group: Prostate Cancer

Posted: Apr 9 9:01pm

Hi, I’m fairly new to the site and just into my treatment and have been on...

https://connect.mayoclinic.org/comment/1224628/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Jan 29, 2025

Sounds like a plan. Remember, it is very rare to get relief from Lupron within the...

https://connect.mayoclinic.org/comment/1549595/

Discussion: Would like to pause Lupron injections. Taking Nubeqa and Lupron.

Support Group: Prostate Cancer

Posted: Apr 13 10:50am

@johnsonjn Casodex is prescribed with Lupron for about a month to counter the testosterone flare (increase)...

https://connect.mayoclinic.org/comment/1566198/

Discussion: IMRT/VMAT Radiation with 6 months of ADT - anyone??

Support Group: Prostate Cancer

Posted: May 4 8:49am

@coachsanta Orgovyx alone raised 3 of my liver enzymes and with the meds you are taking,...

https://connect.mayoclinic.org/comment/1575621/

Discussion: Stage 4 Prostate- started radiation

Support Group: Prostate Cancer

Posted: May 16 6:07am

@thnx4beingthere There is no reason to wait for the Nubeqa. You can start the orgovyx Right...

https://connect.mayoclinic.org/comment/1453541/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Dec 5, 2025

The sacral fractures are from the Orgovyx! So, not from a fall or trauma. As we...

https://connect.mayoclinic.org/comment/1246684/

Discussion: Resolution of Side Effects after Stopping ADT/Lupron

Support Group: Prostate Cancer

Posted: Feb 27, 2025

There is a new breed of ADT drugs. Orgovyx being one, often used in combination with...

https://connect.mayoclinic.org/comment/1337048/

Discussion: No testosterone on Lupron, can I build muscle strength by working out?

Support Group: Prostate Cancer

Posted: Jun 28, 2025

When evaluating the length of time one needs to be on Orgovyx how useful is considering...

https://connect.mayoclinic.org/comment/1573468/

Discussion: Hormone Therapy (ADT) when ArteraAI Test says it's not necessary

Support Group: Prostate Cancer

Posted: May 13 6:27am

@ma740988 As others have suggested, don't take Orgovyx before you do a PSMA PET scan. You...

https://connect.mayoclinic.org/comment/1521157/

Discussion: 11.16 PSA, two negative biopsies, queued up for a third

Support Group: Prostate Cancer

Posted: Mar 6 3:30pm

I'm on something similar since 2021, Erleada (Apalutamide) + Orgovyx, and I find it difficult to...

https://connect.mayoclinic.org/comment/1337149/

Discussion: Side effects adding XTANDI to ORGOVYX

Support Group: Prostate Cancer

Posted: Jun 28, 2025

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