Prostate Cancer Support Group

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I am one 4+3, one 3+3 (some cribiform atypia) , Decipher .84, PSMA PET confined to...

https://connect.mayoclinic.org/comment/994431/

Discussion: Knowing ASAP if with recurrence - Your Thoughts, Please!

Support Group: Prostate Cancer

Posted: Jan 9, 2024

Local Hospital has the True Beam Rad machine, It seems to have multiple functions. Orgovyx web...

https://connect.mayoclinic.org/comment/974596/

Discussion: SBRT vs. Robot-assisted radical prostatectomy

Support Group: Prostate Cancer

Posted: Dec 3, 2023

I’m getting ready to take Orgovyx for 6 weeks prior to proton radiation and stay on...

https://connect.mayoclinic.org/comment/863239/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: May 20, 2023

Maximum annual prescription expense on Medicare is $2100. Once you pay that, all other scripts are...

https://connect.mayoclinic.org/comment/1491570/

Discussion: Insurance and Xtandi

Support Group: Prostate Cancer

Posted: Jan 27 7:02am

I've had sleep issues for a long time. Lupron and Orgovyx made it worse. I take...

https://connect.mayoclinic.org/comment/1531092/

Discussion: Problems with Sleeping on Orgovyx

Support Group: Prostate Cancer

Posted: Mar 20 6:17am

@michaelcharles, thank you for your response and frankness of how bad you found ADT to be....

https://connect.mayoclinic.org/comment/1528308/

Discussion: Should I add ADT to Salvage Radiation at age 76?

Support Group: Prostate Cancer

Posted: Mar 16 12:37pm

My hubby is on Nubeqa and Orgovyx for his stage 4 PC. He has very few...

https://connect.mayoclinic.org/comment/1481144/

Discussion: Nubeqa (Darolutamide) versus Zytiga versus Estradiol Patches

Support Group: Prostate Cancer

Posted: Jan 13 8:05am

Additional comment, I seldom ate breakfast but adopted it as a method of maintaining a constant...

https://connect.mayoclinic.org/comment/963128/

Discussion: Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?

Support Group: Prostate Cancer

Posted: Nov 11, 2023

My Gleason score was 8 and my decipher score was .84 both saying aggressive. I have...

https://connect.mayoclinic.org/comment/1370575/

Discussion: just diagnosed 2 mos ago Gleason 8 2 lymph nodes

Support Group: Prostate Cancer

Posted: Aug 14, 2025

If Orgovyx alone doesn’t work you need an ARSI as well like Zytiga or One of...

https://connect.mayoclinic.org/comment/1332746/

Discussion: Starting Chemo Taxotere/docetaxel, what to expect?

Support Group: Prostate Cancer

Posted: Jun 22, 2025

I think i saw that you were also on darolutamide. Will you be on darolutamide and...

https://connect.mayoclinic.org/comment/1325919/

Discussion: Fun with ADT and testosterone

Support Group: Prostate Cancer

Posted: Jun 12, 2025

First of all, Congratulations! But now that you are done, I don’t know why fiber/diet is...

https://connect.mayoclinic.org/comment/1286852/

Discussion: Beginning EBRT next week. Do I need to follow a low-fiber diet?

Support Group: Prostate Cancer

Posted: Apr 21, 2025

Great report. Glad for the psa of 0 ! I’ve been on orgovyx 8 weeks and...

https://connect.mayoclinic.org/comment/901905/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Jul 25, 2023

I’ve been on Orgovyx for about 2 months. My PSA has become undetectable . The main...

https://connect.mayoclinic.org/comment/869615/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 31, 2023

Taking Orgovyx together with salvage radiation post RP. so not exactly answering your question. however, my...

https://connect.mayoclinic.org/comment/859805/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: May 14, 2023

I was a low T guy at 257 and tested on Lupron at 3 months and...

https://connect.mayoclinic.org/comment/1392293/

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: Sep 12, 2025

In my case, I was 68. PSA 7.9 Nov 2024, 10+ late Jan/early Feb 2025. Gleason...

https://connect.mayoclinic.org/comment/1346275/

Discussion: Husband’s low psa, aggressive Gleason 8

Support Group: Prostate Cancer

Posted: Jul 12, 2025

@michaelcharles By "radiation diet," did you mean "diet from beginning to end of radiation treatment"? Before...

https://connect.mayoclinic.org/comment/1312603/

Discussion: Low fiber diet for salvage RT to pelvic lymph node basin questions

Support Group: Prostate Cancer

Posted: May 25, 2025

Your PSA after 3 years of Lupron is 0.06. Mine after 8 months on Orgovyx is...

https://connect.mayoclinic.org/comment/1191053/

Discussion: Intermittent Hormone Therapy (IHT): How is it working for you?

Support Group: Prostate Cancer

Posted: Dec 15, 2024

If you have a positive attitude and are willing to recognize that you may not feel...

https://connect.mayoclinic.org/comment/1527262/

Discussion: Treatment & Travel: Please offer your opinion

Support Group: Prostate Cancer

Posted: Mar 15 8:35am

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