Prostate Cancer Support Group

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Comments (924)

Long ago and far away, the standard of care was "lifetime" ADT, at least until you...

https://connect.mayoclinic.org/comment/733365/

Discussion: Further Treatment: Wondering about stopping hormone therapy?

Support Group: Prostate Cancer

Posted: Aug 2, 2022

I think my hot flushes are worse after stopping 6months Orgovyx. It is four weeks now...

https://connect.mayoclinic.org/comment/1272198/

Discussion: Are there withdrawl symptoms immediately after stopping Orgovyx?

Support Group: Prostate Cancer

Posted: Apr 2 2:25am

Just to add a data point, I have had no brain fog (at any point over...

https://connect.mayoclinic.org/comment/1261389/

Discussion: Is PSA rise inevitable after hormone therapy?

Support Group: Prostate Cancer

Posted: Mar 18 5:22pm

Jeb: On Orgovyx, I primarily had diminished energy; 10 - 20% "power outage". My 45 min...

https://connect.mayoclinic.org/comment/1271093/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Mar 31 2:49pm

The patch trial was completed. I’ve already seen a descriptive report of the results in PCa...

https://connect.mayoclinic.org/comment/1253543/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 8 7:53pm

Stew80: at 72/73 I had RP, followed immediately by Salvage Radiation Treatment including 4 mos ADT;...

https://connect.mayoclinic.org/comment/1235768/

Discussion: Typical Treatment Option Question

Support Group: Prostate Cancer

Posted: Feb 13 8:35am

You might never experience any side effects beyond the basic ones (like losing some body hair...

https://connect.mayoclinic.org/comment/1239319/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 17 3:18pm

Thanks for the extra info. I've already been radiated nearby for the tumour on my spine...

https://connect.mayoclinic.org/comment/1219053/

Discussion: How did you reduce hot flashes from Orgovyx?

Support Group: Prostate Cancer

Posted: Jan 22 1:16pm

2½ years on Degarelix, then one year on Relugolix (so far). No comparison: my quality of...

https://connect.mayoclinic.org/comment/1240015/

Discussion: Anyone switch from monthly Degarelix injection to oral Relugolix?

Support Group: Prostate Cancer

Posted: Feb 18 1:50pm

Same story as @heavyphil - no polio, but Orgovyx has messed with my thermostat in a...

https://connect.mayoclinic.org/comment/1247226/

Discussion: Post Polio Cold Intolerance and ADT hot flashes!?

Support Group: Prostate Cancer

Posted: Feb 28 9:59am

Just finishing up 4 months on Orgovyx. Never had a hot flash. Have lost weight, if...

https://connect.mayoclinic.org/comment/1224202/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 28 7:51pm

Some tips for living with hot flushes (I've been on ADT since 2021): 1. Get a...

https://connect.mayoclinic.org/comment/1215361/

Discussion: How did you reduce hot flashes from Orgovyx?

Support Group: Prostate Cancer

Posted: Jan 18 6:59am

Dad used to tell me, with a twinkle in his eye, "If you stop drinking, you...

https://connect.mayoclinic.org/comment/1222016/

Discussion: Occasional alcohol during radiation treatment?

Support Group: Prostate Cancer

Posted: Jan 26 9:17am

I was on Orgovyx for 6 months. My first significant hot flash was on day 41....

https://connect.mayoclinic.org/comment/1240527/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 19 8:53am

I have been taking Orgovyx pill form for 4 months and a week. I started the...

https://connect.mayoclinic.org/comment/1246454/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 27 9:02am

Thanks for sharing your story. I was also diagnosed in my 50s, but the cancer had...

https://connect.mayoclinic.org/comment/1182826/

Discussion: Ready to throw in the towel

Support Group: Prostate Cancer

Posted: Dec 1, 2024

I've been three years on ADT + Apalutamide with bone mets as well, starting at age...

https://connect.mayoclinic.org/comment/1164050/

Discussion: Has anyone else moved from Firmagon to Orgovyx?

Support Group: Prostate Cancer

Posted: Oct 28, 2024

Possibly, or maybe you're just lucky that your body doesn't react that way. I've been on...

https://connect.mayoclinic.org/comment/1146163/

Discussion: Hot flushes and the vagus nerve

Support Group: Prostate Cancer

Posted: Sep 23, 2024

Thanks Robert. I still haven't gotten a hot flash. I guess I'm lucky? I've been working...

https://connect.mayoclinic.org/comment/1142031/

Discussion: Is this normal on ADT? Body hair gone

Support Group: Prostate Cancer

Posted: Sep 15, 2024

I switched to Orgovyx a couple of months ago, and it made a huge difference for...

https://connect.mayoclinic.org/comment/1095073/

Discussion: Pros and cons from changing from Degeralix to Orgovyx

Support Group: Prostate Cancer

Posted: Jun 27, 2024

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