Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,797 total results

Comments (1,686)

I'm off Lupron since Jan 2023. (Side note, some hot flashes continue so there's probably some...

https://connect.mayoclinic.org/comment/1464022/

Discussion: Anyone have severe bone (spine) loss with recurrence of PC?

Support Group: Prostate Cancer

Posted: Dec 19, 2025

Hans,,only someone in this great club of ours can find the humor in what you are...

https://connect.mayoclinic.org/comment/1312234/

Discussion: For Newly Arrived Bros: A Day In The Life With ADT

Support Group: Prostate Cancer

Posted: May 25, 2025

Jeff I have the Wave 2 but have not noticed any relief after 2 weeks Of...

https://connect.mayoclinic.org/comment/1270193/

Discussion: Is PSA rise inevitable after hormone therapy?

Support Group: Prostate Cancer

Posted: Mar 30, 2025

Although it lowers your T levels quickly - within 1 month - I felt no side...

https://connect.mayoclinic.org/comment/1189477/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 13, 2024

Wow -- $18,000 to $20,000 per month for Abbie. I am afraid I would have told...

https://connect.mayoclinic.org/comment/1123121/

Discussion: Has anyone lowered their Abiraterone Dosage? To what effect?

Support Group: Prostate Cancer

Posted: Aug 13, 2024

Been on Orgovyx and xtandi for 4 months to treat one pelvic lymph node. Too small...

https://connect.mayoclinic.org/comment/1118241/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Aug 5, 2024

Nubeqa is the best ARSI. It is so good and so powerful Bayer is announcing their...

https://connect.mayoclinic.org/comment/1111706/

Discussion: Lupron and Nubeqa (darolutamide): Anyone on this protocol?

Support Group: Prostate Cancer

Posted: Jul 25, 2024

Biggest reason for me was to have a "back up" I was told that if you...

https://connect.mayoclinic.org/comment/946935/

Discussion: Why did you choose surgery instead of radiation or vise versa?

Support Group: Prostate Cancer

Posted: Oct 13, 2023

I had 13 months of lupron and Erleada and had mild manageable side effects. Little issues...

https://connect.mayoclinic.org/comment/872728/

Discussion: Starting hormone treatment for prostate cancer: How did it go for you?

Support Group: Prostate Cancer

Posted: Jun 5, 2023

@seeker001 You should do some research into the Patch study Which was a clinical trial that...

https://connect.mayoclinic.org/comment/1428218/

Discussion: Anyone considered bilateral orchiectomy: Why or why not?

Support Group: Prostate Cancer

Posted: Nov 1, 2025

I’ve been on Lupron, Eligard and Orgovyx. I get exactly the same results from all of...

https://connect.mayoclinic.org/comment/1354528/

Discussion: Should I be seeking extra treatment?

Support Group: Prostate Cancer

Posted: Jul 23, 2025

I had 28 radiation treatments. I just had my second 6 month Lupron shot. The doctor...

https://connect.mayoclinic.org/comment/1152355/

Discussion: Lupron Treatment Duration: How long were you on it?

Support Group: Prostate Cancer

Posted: Oct 5, 2024

Bring them on in the Winter time. It's good timing I got my first Eligard 22.5-per...

https://connect.mayoclinic.org/comment/1451310/

Discussion: How long do the hot flashes last? Another 3 month Eligard shot today

Support Group: Prostate Cancer

Posted: Dec 2, 2025

This is a great description of what I have been treated for…i was 71 at the...

https://connect.mayoclinic.org/comment/1001635/

Discussion: Resolution of Side Effects after Stopping ADT/Lupron

Support Group: Prostate Cancer

Posted: Jan 22, 2024

I'm glad you brought up this topic. I was going to ask a few questions. Age...

https://connect.mayoclinic.org/comment/919886/

Discussion: Lupron: Anyone have muscle weakness and severe leg pain?

Support Group: Prostate Cancer

Posted: Aug 27, 2023

I have been on Orgovyx for 13 months. I go to the gym 3 times a...

https://connect.mayoclinic.org/comment/941002/

Discussion: Post prostatectomy: What do rising PSA levels mean?

Support Group: Prostate Cancer

Posted: Oct 3, 2023

I am 18 months on Lupron and psa has been less than .1 since beginning injections...

https://connect.mayoclinic.org/comment/837751/

Discussion: Lupron Depot: Weakness and instability side effects

Support Group: Prostate Cancer

Posted: Apr 4, 2023

It took a few days for the hot flashes to appear after my initial injection. I...

https://connect.mayoclinic.org/comment/316289/

Discussion: Hot Flashes and Hormonal Therapy for Prostate Cancer

Support Group: Prostate Cancer

Posted: Jul 14, 2020

I took 6 Month Lupron shots for six years. I’ve never had any noticeable side effects...

https://connect.mayoclinic.org/comment/1398782/

Discussion: Who has been on lupron for a long time, and/ or firmagon?

Support Group: Prostate Cancer

Posted: Sep 22, 2025

Thanks for your suggestion. Is this to replace Orgovyx? I started with Lupron monthly shots (for...

https://connect.mayoclinic.org/comment/1305986/

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 17, 2025

Aging Well

14923

8 minutes ago

Bladder Conditions

789

11 minutes ago

Osteoporosis & Bone Health

14493

13 minutes ago

Cancer: Managing Symptoms

5624

47 minutes ago

Visiting Mayo Clinic

6738

1 hour ago