Prostate Cancer Support Group

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My results after one month of Orgovyx (started second bottle yesterday)....testosterone dropped from 582 to 2.5,...

https://connect.mayoclinic.org/comment/1139747/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Sep 11, 2024

I was denied on first go around on Orgovyx. Had to appeal. I pay $200/ mo...

https://connect.mayoclinic.org/comment/1087685/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jun 16, 2024

I flew to South America eight weeks after having brachytherapy and five weeks of IMRT. At...

https://connect.mayoclinic.org/comment/1526100/

Discussion: Treatment & Travel: Please offer your opinion

Support Group: Prostate Cancer

Posted: Mar 13 1:49pm

@surftohealth88 I know at least four people that are using estradiol instead of ADT. One of...

https://connect.mayoclinic.org/comment/1521179/

Discussion: Anyone had success with estrogen patch + radiation for stage 3C?

Support Group: Prostate Cancer

Posted: Mar 6 4:21pm

I’ve been on orgovyx for over a year and completed 8 weeks of daily radiation last...

https://connect.mayoclinic.org/comment/1529754/

Discussion: ADT & Radiation, next part of the adventure!

Support Group: Prostate Cancer

Posted: Mar 18 9:57am

I was on ADT for 2 1/2 years before I started Abiraterone. I had no fatigue...

https://connect.mayoclinic.org/comment/1536611/

Discussion: Exercise and abiraterone

Support Group: Prostate Cancer

Posted: Mar 27 11:51am

@tazman482 Fortunately, by ramping up my resistance-training exercises prior to starting ADT, I was able to...

https://connect.mayoclinic.org/comment/1483005/

Discussion: How long before Orgovyx side effects begin to arise?

Support Group: Prostate Cancer

Posted: Jan 15 11:30am

How are you doing now @myash ? I started on Orgovyx March 26. I am not...

https://connect.mayoclinic.org/comment/1271748/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 1, 2025

I’m on my third month and other than hot flashes, not much else to report. No...

https://connect.mayoclinic.org/comment/1140361/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Sep 12, 2024

I did express my concern to the RO staff yesterday. I was told that the Eligard...

https://connect.mayoclinic.org/comment/842542/

Discussion: Hot flashes 3 months after Eligard?

Support Group: Prostate Cancer

Posted: Apr 13, 2023

I was on Orgovyx for six months during IMRT sessions as well. I had a brief...

https://connect.mayoclinic.org/comment/1482015/

Discussion: Orgovyx aftermath

Support Group: Prostate Cancer

Posted: Jan 14 9:44am

I was on bicaludamide then Degaralix for 2 years. Now I’m on Lupron x 4 months...

https://connect.mayoclinic.org/comment/1047448/

Discussion: Cannabis as adjunct aid for ADT Side effects?

Support Group: Prostate Cancer

Posted: Apr 8, 2024

I took Xtandi for 26 months. Excellent drug. Had fatigue, hot flashes and edema of extremities....

https://connect.mayoclinic.org/comment/916362/

Discussion: Enzalutamide (Xtandi): Anyone have experience with this drug?

Support Group: Prostate Cancer

Posted: Aug 21, 2023

I have stage 4 prostate cancer. When I was diagnosed my PSA was 326. Extremely high....

https://connect.mayoclinic.org/comment/1310609/

Discussion: The waiting is terrible: Husband has Stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: May 22, 2025

I put your data into the Memorial Sloan Kettering PSA Doubling Time Calculator. While it was...

https://connect.mayoclinic.org/comment/1541644/

Discussion: Hello, my name is Fabian. I had a radical prostatectomy on October 24

Support Group: Prostate Cancer

Posted: 1 day ago

I had stage 3 prostate cancer in the prostate as well as in area's outside the...

https://connect.mayoclinic.org/comment/1344398/

Discussion: Advanced Prostate Cancer

Support Group: Prostate Cancer

Posted: Jul 9, 2025

Paul, I had 28 rounds of radiation & 18 months of Elagard hormone therapy. Mostly my...

https://connect.mayoclinic.org/comment/1214139/

Discussion: Have to share this: Dealing with the emotional side of ADT

Support Group: Prostate Cancer

Posted: Jan 15, 2025

Thanks I’m at UCLA 3 mds Urology oncologist Radiology oncology And hematology oncologist If my body...

https://connect.mayoclinic.org/comment/1154450/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 9, 2024

I was taken off of ADT and Erleada 14 months ago. My PSA is still undetectable...

https://connect.mayoclinic.org/comment/1001048/

Discussion: Resolution of Side Effects after Stopping ADT/Lupron

Support Group: Prostate Cancer

Posted: Jan 21, 2024

I'm 18-months past RARP and on Lupron ADT for 16-months. Yes, ADT affects men differently. My...

https://connect.mayoclinic.org/comment/919075/

Discussion: Gynecomastia while taking hormone therapy for prostate cancer

Support Group: Prostate Cancer

Posted: Aug 26, 2023

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