Prostate Cancer Support Group

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Comments (3,374)

Everyone. My most stressful will be this November, the first test 3 months after completing 18...

https://connect.mayoclinic.org/comment/1479856/

Discussion: Anyone get PSA Test Angst days before that post-treatment PSA test?

Support Group: Prostate Cancer

Posted: Jan 11 3:51pm

while Orgovyx and Nubeqa seem to be working very well for me- dramatic drop in PSA...

https://connect.mayoclinic.org/comment/1453561/

Discussion: Endocrinology for ADT Side Effects

Support Group: Prostate Cancer

Posted: Dec 5, 2025

After a RP and removal of additional lymph nodes 4 months later, my PSA was still...

https://connect.mayoclinic.org/comment/1220486/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 24, 2025

Apalutamide and Firmagon/Orgovyx in my case (3 years, 3 months). Initially I experienced a lot of...

https://connect.mayoclinic.org/comment/1205556/

Discussion: Anyone taking Apalutamide and Lupron for more than three years

Support Group: Prostate Cancer

Posted: Jan 6, 2025

@copyman Was prediabetic for 5+ years. Then my A1c went up to 8 and went on...

https://connect.mayoclinic.org/comment/1510806/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 20 8:24pm

my exp with ADT ( Orgovyx/Nubeqa) plus 45 EBRT was occasional fatigue but nothing debilitating...even now,...

https://connect.mayoclinic.org/comment/1510628/

Discussion: Lupron & radiation fatigue. Expectations re when it goes away?

Support Group: Prostate Cancer

Posted: Feb 20 3:42pm

Good luck. Hope your side effects no worse than mine. 10months orgovyx /zytiga dependably undectable psa...

https://connect.mayoclinic.org/comment/975687/

Discussion: Let's get it started: My journey with SBRT (radiation)

Support Group: Prostate Cancer

Posted: Dec 6, 2023

@brianjarvis Not only does Orgovyx lower T quickly, it also prevents the initial T spike that...

https://connect.mayoclinic.org/comment/1414477/

Discussion: Orgovyx Allergic Reaction

Support Group: Prostate Cancer

Posted: Oct 13, 2025

what is true citrus ?? what does it do ?? I have found I must drink...

https://connect.mayoclinic.org/comment/1370603/

Discussion: just diagnosed 2 mos ago Gleason 8 2 lymph nodes

Support Group: Prostate Cancer

Posted: Aug 14, 2025

This is one of the reasons I choose Orgovyx. I had no intention of stopping taking...

https://connect.mayoclinic.org/comment/1348788/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 15, 2025

I was turned down for Orgovyx and within 2 days got approval on an appeal. Nurse...

https://connect.mayoclinic.org/comment/1073791/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: May 24, 2024

I will be on Orgovyx 1 year the end of this August. I also had 45...

https://connect.mayoclinic.org/comment/901578/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Jul 24, 2023

I am also unfavorable intermediate with no metastases and my radiation oncologist recommended 4 months of...

https://connect.mayoclinic.org/comment/778509/

Discussion: Eligard - 1 mo. , 3 mo., 6 months: any difference in side effects?

Support Group: Prostate Cancer

Posted: Nov 28, 2022

So good to know! I am less than 3 months from finishing Orgovyx. Yes I have...

https://connect.mayoclinic.org/comment/1280278/

Discussion: Changes in temper and more: What's you post-Orgovyx experience?

Support Group: Prostate Cancer

Posted: Apr 12, 2025

I'm 76 and have been on Orgovyx for 9 months. I get the hot flashes and...

https://connect.mayoclinic.org/comment/1138850/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 9, 2024

I saw a PCP regarding my intermittently severe hip and leg pain. His examination, and the...

https://connect.mayoclinic.org/comment/1530569/

Discussion: Has anyone experienced leg pain while taking Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 19 9:41am

I’m 75. 3 years ago I had RALP and immediately started on ADT – Lupron. After...

https://connect.mayoclinic.org/comment/1526879/

Discussion: Has anyone switched from Lupron to Orgovyx? Glad you did?

Support Group: Prostate Cancer

Posted: Mar 14 2:20pm

Just came back from Uorologist. After 6 weeks since orgovyx my T is 297 and my...

https://connect.mayoclinic.org/comment/1538687/

Discussion: Finished radiaiton therapy and 18 months of orgovyx

Support Group: Prostate Cancer

Posted: 1 day ago

I started ORGOVYX on April 1st. I am paying $520/Month copay. Not bad compared to $3,000/month...

https://connect.mayoclinic.org/comment/1057064/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 25, 2024

Thanks for sharing your experience. I am doing 6 months adt and will switch to Orgovyx...

https://connect.mayoclinic.org/comment/1240539/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 19, 2025

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