Prostate Cancer Support Group

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Comments (1,512)

The big benefit of proton-beam therapy is in fewer side-effects (e.g. risk of bladder irritation); there...

https://connect.mayoclinic.org/comment/986308/

Discussion: Where to draw the line between active surveillance, removal, radiation

Support Group: Prostate Cancer

Posted: Dec 25, 2023

@5galloncan I see you were at UFHPTI for your proton radiation. I think I mentioned that...

https://connect.mayoclinic.org/comment/1113837/

Discussion: Starting Proton Treatments for Prostate Cancer: Any experiences?

Support Group: Prostate Cancer

Posted: Jul 29 8:41am

@kmat You will hear almost all who have gone through this to get second opinions. Your...

https://connect.mayoclinic.org/comment/1108230/

Discussion: Proton Therapy: any long term side effects? Any regrets?

Support Group: Prostate Cancer

Posted: Jul 19 10:37am

@batsam10 Don't hesitate to asked questions. I did not know about MCC until I had started...

https://connect.mayoclinic.org/comment/1031954/

Discussion: Conflicted/Confused, any Guidance/Advice out there?

Support Group: Prostate Cancer

Posted: Mar 11 5:49pm

Thanks for the reply. Was that specifically proton therapy? I asked about dry orgasms and the...

https://connect.mayoclinic.org/comment/876320/

Discussion: What were your side effects of proton therapy both during and after?

Support Group: Prostate Cancer

Posted: Jun 11, 2023

I appreciate your insight and details to help me prepare. I should get a call tomorrow...

https://connect.mayoclinic.org/comment/1075527/

Discussion: Best time of day for radiation treatments ?

Support Group: Prostate Cancer

Posted: May 27 8:07am

I'm not sure you can start ADT after you have started your radiation. For my EBRT...

https://connect.mayoclinic.org/comment/642705/

Discussion: Proton Beam Therapy - Comments on adding ADT? Yes or No?

Support Group: Prostate Cancer

Posted: Oct 6, 2021

The gel is also used with Proton. I have read that the gel protects the rectum...

https://connect.mayoclinic.org/comment/1046726/

Discussion: Extracapsular extension of prostate cancer: Anyone have this?

Support Group: Prostate Cancer

Posted: Apr 7 8:58am

this is very normal and my suggestion to you is to use a skin moisturizer as...

https://connect.mayoclinic.org/comment/1009226/

Discussion: Finished 28 Proton Therapies

Support Group: Prostate Cancer

Posted: Feb 4 6:30am

Just completed 5 high dose proton radiation and 1 ElegardADT. Side effects are difficult and may...

https://connect.mayoclinic.org/comment/824244/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Mar 10, 2023

Your posts have been very helpful and informative. We are exactly the same age. I am...

https://connect.mayoclinic.org/comment/987060/

Discussion: Finished 28 Proton Therapies

Support Group: Prostate Cancer

Posted: Dec 27, 2023

@imbimbo, that sounds very uncomfortable, not to mention frustrating to have to delay treatment. Your question:...

https://connect.mayoclinic.org/comment/772127/

Discussion: Hydrogel (SpaceOAR) botched

Support Group: Prostate Cancer

Posted: Nov 11, 2022

I’m glad you were able to get the proton treatment as I have read exactly what...

https://connect.mayoclinic.org/comment/1032477/

Discussion: Conflicted/Confused, any Guidance/Advice out there?

Support Group: Prostate Cancer

Posted: Mar 12 4:41pm

Congratulations on your PSA dropping, my PSA was a 13 two months ago, now it's 0.03....

https://connect.mayoclinic.org/comment/962660/

Discussion: Has anyone lowered their Abiraterone Dosage? To what effect?

Support Group: Prostate Cancer

Posted: Nov 11, 2023

Hi, thanks for your previous reply, very informative. Results of pet/Psma showed activity in 1 lymph...

https://connect.mayoclinic.org/comment/783514/

Discussion: Biochemical Recurrence: Questions about PSMA PET scan & radiation

Support Group: Prostate Cancer

Posted: Dec 11, 2022

I believe dandl48 is correct, SBRT is used for both Photon and Proton Radiation. Studies have...

https://connect.mayoclinic.org/comment/800095/

Discussion: Starting Proton Treatments for Prostate Cancer: Any experiences?

Support Group: Prostate Cancer

Posted: Jan 22, 2023

Yes, I totally get it and it does sound much better for primary treatment, such as...

https://connect.mayoclinic.org/comment/1184269/

Discussion: Recently received prostate cancer diagnosis: need a second opinion.

Support Group: Prostate Cancer

Posted: Dec 4 10:31am

I, soundly agree with “jc76” comments regarding the symposium! It was well presented & very very...

https://connect.mayoclinic.org/comment/931352/

Discussion: Prostate cancer symposium

Support Group: Prostate Cancer

Posted: Sep 17, 2023

Excellent, very helpful post. Sad to see it seems to be more common than you would...

https://connect.mayoclinic.org/comment/900965/

Discussion: Urologist not wanting to see you if you seek different provider

Support Group: Prostate Cancer

Posted: Jul 23, 2023

I'm currently 73 years old and was diagnosed with prostate cancer in 2016. After reviewing my...

https://connect.mayoclinic.org/comment/329270/

Discussion: Prostate cancer: Any further options?

Support Group: Prostate Cancer

Posted: Dec 10, 2020

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