Prostate Cancer Support Group

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Comments (793)

I think he needs ORGOVYX too..ask your oncologist...with Stage IV metastic, he might even need triplet...

https://connect.mayoclinic.org/comment/1532228/

Discussion: We need others' info on Stage 4 prostate cancer.

Support Group: Prostate Cancer

Posted: Mar 21 3:30pm

Based on my experience, I would ask your doctor about a PSMA PET scan. Such a...

https://connect.mayoclinic.org/comment/864796/

Discussion: Questions about MRI report

Support Group: Prostate Cancer

Posted: May 22, 2023

Did the PSMA PET scan pre-prostatectomy detect any cancer? > If so, what was that SUVMax...

https://connect.mayoclinic.org/comment/1467228/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 24, 2025

The PCP at the urologist said as long as I took nubeqa and the injections I...

https://connect.mayoclinic.org/comment/1367749/

Discussion: Fun with ADT and testosterone

Support Group: Prostate Cancer

Posted: Aug 10, 2025

@csimadera1 I was on Lupron for six years and Orgovyx For three years. The drugs do...

https://connect.mayoclinic.org/comment/1472510/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Jan 1 9:27pm

@sbd I was on ADT alone for 2 1/2 years. Then I became castrate resistant and...

https://connect.mayoclinic.org/comment/1424509/

Discussion: Newly dx ….. starting down the path to treatment

Support Group: Prostate Cancer

Posted: Oct 27, 2025

@thmssllvn Thanks! I called the PCRI helpline and had a very helpful return call last night,...

https://connect.mayoclinic.org/comment/1405875/

Discussion: How do you find a Counselor to help navigate through prostate cancer?

Support Group: Prostate Cancer

Posted: Oct 1, 2025

I have been on Nubeqa almost 3 years. I always take it with food and within...

https://connect.mayoclinic.org/comment/1369319/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Aug 12, 2025

Thanks for the information--I am happy to hear that doctors will prescribe Nubeqa/Darolutamide for men who...

https://connect.mayoclinic.org/comment/1340967/

Discussion: Starting Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 4, 2025

@emteenest2 You need to let the doctor know that the studies have shown if you are...

https://connect.mayoclinic.org/comment/1532398/

Discussion: Nubeqa vs Lupron

Support Group: Prostate Cancer

Posted: Mar 21 8:45pm

There are a lot of people that have stopped taking ADT and are taking one of...

https://connect.mayoclinic.org/comment/1316456/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: May 30, 2025

I also took Nubeqa , have been on it for over 2 years. That combined with...

https://connect.mayoclinic.org/comment/1244063/

Discussion: PSA Spike after Triplet Therapy - Anxious

Support Group: Prostate Cancer

Posted: Feb 23, 2025

@boniyabes I just had lab work this week and my OSA is now .54 and I...

https://connect.mayoclinic.org/comment/1477702/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 8 7:19pm

@kenporter I am also on Nubeqa. That costs about $12,000 today, And getting my prescription in...

https://connect.mayoclinic.org/comment/1444967/

Discussion: Eligard vs Orgovyx: Questions about liver damage

Support Group: Prostate Cancer

Posted: Nov 22, 2025

Yep, already on them. (Orgovyx & Nubeqa) I'm 2 months into treatment with radiation coming up...

https://connect.mayoclinic.org/comment/1357437/

Discussion: What's in a gene?

Support Group: Prostate Cancer

Posted: Jul 27, 2025

@ronim2 Eligard will keep your PSA down, but it will not eliminate the cancer in any...

https://connect.mayoclinic.org/comment/1452735/

Discussion: Anyone considered bilateral orchiectomy: Why or why not?

Support Group: Prostate Cancer

Posted: Dec 4, 2025

@lanksta25 from my reseaRCH, even with Gleason 10, Stage IV, the ADT ( Orgovyx and Nubeqa)...

https://connect.mayoclinic.org/comment/1515856/

Discussion: Radiopharmaceutical treatment now instead of last resort.

Support Group: Prostate Cancer

Posted: Feb 27 12:23pm

@xahnegrey40 Ask your doctor to put you on Nubeqa, It works almost exactly as Erleada But...

https://connect.mayoclinic.org/comment/1410101/

Discussion: Orgovyx - asking for advice

Support Group: Prostate Cancer

Posted: Oct 6, 2025

I forgot to mention one other drug that seems to work quite well to suppress hot...

https://connect.mayoclinic.org/comment/1489103/

Discussion: Share your solution for Orgovyx hot flashes

Support Group: Prostate Cancer

Posted: Jan 22 7:39pm

@asolidrock thanks for your response: I am starting radiation monday- been on orgovyx ( and now...

https://connect.mayoclinic.org/comment/1401367/

Discussion: Muscle spasms on lower back

Support Group: Prostate Cancer

Posted: Sep 25, 2025

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