Prostate Cancer Support Group

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Comments (1,095)

Try taking Tylenol PM, it worked for me. I was getting maybe 3 hours of sleep,...

https://connect.mayoclinic.org/comment/1190351/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: 4 days ago

I started ORGOVYX on April 1st. I am paying $520/Month copay. Not bad compared to $3,000/month...

https://connect.mayoclinic.org/comment/1057064/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 25 10:39am

I'll add that Orgovyx also makes planning trips and other special events easier, since I don't...

https://connect.mayoclinic.org/comment/1144717/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 20 4:29pm

Have just been diagnosed with advanced prostate cancer with spread to lymph nodes. Oncologist has prescribed...

https://connect.mayoclinic.org/comment/1018107/

Discussion: Mayo Clinic Dr to guide conversation on treatment options

Support Group: Prostate Cancer

Posted: Feb 18 4:42pm

Layman comment: Orgovyx is reported as having the benefits that Toolbelt listed. I elected Orgovyx for...

https://connect.mayoclinic.org/comment/1014909/

Discussion: Radiation + ADT

Support Group: Prostate Cancer

Posted: Feb 13 8:46am

Orgovyx $ 8000 / yr? Yes and no. ADT (androgen deprivation therapy) is available in different...

https://connect.mayoclinic.org/comment/1031558/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 11 9:30am

Stage 4 recurrent prostate cancer person here with a non-medical thought for your consideration: You may...

https://connect.mayoclinic.org/comment/1144668/

Discussion: Notifying work

Support Group: Prostate Cancer

Posted: Sep 20 2:50pm

I'm aware of relugolux and I'm interested in it. The Orgovyx indications information says it is...

https://connect.mayoclinic.org/comment/777798/

Discussion: Eligard - 1 mo. , 3 mo., 6 months: any difference in side effects?

Support Group: Prostate Cancer

Posted: Nov 26, 2022

Recovered 80% in 8 mos. My pretreatment Testosterone was mid 400s (73 yrs old). 4 mos...

https://connect.mayoclinic.org/comment/1156174/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Oct 13 6:22am

Apart from tired once in awhile I have no side effects What were you experiencing Is...

https://connect.mayoclinic.org/comment/865285/

Discussion: Husband, 71, given one year at best...

Support Group: Prostate Cancer

Posted: May 23, 2023

Way to go! Fabulous news. I go March 28th for my 3 month post SBRT, and...

https://connect.mayoclinic.org/comment/1025850/

Discussion: Good Treatment Results News

Support Group: Prostate Cancer

Posted: Mar 2 7:38am

I was also 4+3=7, trimodal treatment: Cyberknife and EBRT and started Orgovyx 6 weeks ahead of...

https://connect.mayoclinic.org/comment/1096217/

Discussion: When to start ADT treatment of 4+3 score?

Support Group: Prostate Cancer

Posted: Jun 29 9:50am

Good luck. Hope your side effects no worse than mine. 10months orgovyx /zytiga dependably undectable psa...

https://connect.mayoclinic.org/comment/975687/

Discussion: Let's get it started: My journey with SBRT (radiation)

Support Group: Prostate Cancer

Posted: Dec 6, 2023

I’m 74 diagnosed stage 4 prostate cancer in 2018. Metastasized several locations in bones. Did 4...

https://connect.mayoclinic.org/comment/1141410/

Discussion: Prostate Cancer, Stage 4, spine & pelvis, Eligard, now abiraterone

Support Group: Prostate Cancer

Posted: Sep 14 10:04am

I took orgovyx for 18 months, am off it 5 weeks. I just had testosterone tested,...

https://connect.mayoclinic.org/comment/1056513/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Apr 24 1:41pm

Just had my first post Orgovyx T test and, after 5 1/2 weeks, my T is...

https://connect.mayoclinic.org/comment/1186981/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 8 6:21pm

I advocated hard for to switch from Lupron (Eligard) to Orgovyx. For a week or two...

https://connect.mayoclinic.org/comment/1144859/

Discussion: Side effects of radiation with hormone therapy & heart conditions

Support Group: Prostate Cancer

Posted: Sep 21 6:56am

I have found constipation is quite common when taking prostate cancer drugs, not just Orgovyx. I’ve...

https://connect.mayoclinic.org/comment/1162073/

Discussion: Orgovyx and zytiga side effects

Support Group: Prostate Cancer

Posted: Oct 24 10:45am

Just curious were you diagnosed with Advanced Prostate Cancer because i am on ORGOVYX with APC...

https://connect.mayoclinic.org/comment/1056094/

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: Apr 23 5:27pm

Thank you. I only have 10 more days of Orgovyx so hopefully life, sleep and “other...

https://connect.mayoclinic.org/comment/1042799/

Discussion: Hot Flashes and Symptoms

Support Group: Prostate Cancer

Posted: Mar 30 2:04pm

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