1. < Prostate Cancer

Husband, 71, given one year at best...

Posted by bigmaya @bigmaya, May 16, 2023

He went through hormone therapy, chemo, radiation and Enzalutamide and now there's a small chance of temporary improvement with new chemo and radiation. God helps us all🙏🙏🙏

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

melcanada | @melcanada | May 19, 2023
In reply to @bigmaya "Thank you Melcanada, NO, the thought of having no sex was never an issue here. Removal..." + (show)
@bigmaya

Thank you Melcanada,
NO, the thought of having no sex was never an issue here. Removal wasn't a treatment option. My husband was on anti-testosterone hormones from the very start but unfortunately that wasn't enough. 🙏

Jump to this post

A friend had heart issues so he had 40 days of radiation. I had 40 days of radiation in 2018 March and I'm still standing Then Xtandi and others have less T to fight

Can he not go for 40 days Its like lying on a suntan bed EASY

REPLY
melcanada | @melcanada | May 19, 2023
In reply to @bigmaya "Thank you Melcanada, NO, the thought of having no sex was never an issue here. Removal..." + (show)
@bigmaya

Thank you Melcanada,
NO, the thought of having no sex was never an issue here. Removal wasn't a treatment option. My husband was on anti-testosterone hormones from the very start but unfortunately that wasn't enough. 🙏

Jump to this post

So why did he not get his prostate radiated out or robotic out

REPLY
1 reply
melcanada | @melcanada | May 20, 2023
In reply to @bigmaya "I know a guy running a forum for this curse... He'd been diagnosed 24 years ago!!!..." + (show)
@bigmaya

I know a guy running a forum for this curse... He'd been diagnosed 24 years ago!!! with a PSA of 600, mets in bones, etc. etc. and he's doing just great🙏

Jump to this post

Mine is in spine L1 L2 T10 T11 Where was his please

REPLY
melcanada | @melcanada | May 20, 2023
In reply to @pnichols7280 "I was diagnosed with PC in 2020 and had a prostatectomy in in 2021. I had..." + (show)
@pnichols7280

I was diagnosed with PC in 2020 and had a prostatectomy in in 2021. I had a Gleason score 9(5x4). My PSA for thé next 3 sample keep rising. So I had ct and found active cells in my prostate bed. So we did 40 treatments of radiation. 6 months later the PSA started rising again. This time I had PSMA Pet Scan and the found bone Mets on my spine at T1-T2. So I went back to radiation for another round. About fours months later the PSA started rising again. This time I started ADT & I’m on Orgovyx. After just 2 months on PSA is undetectable and my testosterone is down to 10. ( I’m starving the cancer). I have a few side effects but nothing I can’t handle. Don’t give up. Get a second option and keep fight. I’m still stage 4, but I refuse to give in to the cancer

Jump to this post

Why Orgovyx Is it better than Xtandi which I am on plus Zolodex injections and now Xgeva for calcium into the bones I take 1200 cal a day to

REPLY
1 reply
bigmaya | @bigmaya | May 20, 2023
In reply to @melcanada "So why did he not get his prostate radiated out or robotic out" + (show)
@melcanada

So why did he not get his prostate radiated out or robotic out

Jump to this post

It was too late for that... family drs. fell asleep on their own watch...
As for the exact location in the spine, it's the lower back... l dread looking at the report again and again. He had a further ct last Wednesday of chest, neck, head.
We'll see the oncologist on Monday when he goes in for the simulation and new biopsy.

REPLY
1 reply
melcanada | @melcanada | May 20, 2023
In reply to @bigmaya "It was too late for that... family drs. fell asleep on their own watch... As for..." + (show)
@bigmaya

It was too late for that... family drs. fell asleep on their own watch...
As for the exact location in the spine, it's the lower back... l dread looking at the report again and again. He had a further ct last Wednesday of chest, neck, head.
We'll see the oncologist on Monday when he goes in for the simulation and new biopsy.

Jump to this post

Bone met usually stays in the bone and is slow growing
New drug in phase 2 called enoblituzumab for aggressive C throughout the body
See about a clinical trial Researcher is Eugene Shenderov MD PHD assistant professor of oncology John Hopkins University School of Medicine

https://www.news-medical.net/documents/final/3-744370-202304061533-Phase-2-study-shows-safety-and-efficacy-of-new-drug-in-men-with-high-risk-prostate-cancers.pdf
REPLY
2 replies
bigmaya | @bigmaya | May 20, 2023
In reply to @melcanada "Bone met usually stays in the bone and is slow growing New drug in phase 2..." + (show)
@melcanada

Bone met usually stays in the bone and is slow growing
New drug in phase 2 called enoblituzumab for aggressive C throughout the body
See about a clinical trial Researcher is Eugene Shenderov MD PHD assistant professor of oncology John Hopkins University School of Medicine

https://www.news-medical.net/documents/final/3-744370-202304061533-Phase-2-study-shows-safety-and-efficacy-of-new-drug-in-men-with-high-risk-prostate-cancers.pdf

Jump to this post

Thank you🙏
We see our oncologist on Monday and l'll show her this study. She just returned from a 3 year term in Ottawa. May it all be for the best possible. Amen.

REPLY
2 replies
melcanada | @melcanada | May 20, 2023
In reply to @bigmaya "Thank you🙏 We see our oncologist on Monday and l'll show her this study. She just..." + (show)
@bigmaya

Thank you🙏
We see our oncologist on Monday and l'll show her this study. She just returned from a 3 year term in Ottawa. May it all be for the best possible. Amen.

Jump to this post

So for 3 months no one has been working with you comon man

They have subs You need action Look at even apalutimide Look at Xgeva along with back on Xtandi Choose life

REPLY
melcanada | @melcanada | May 21, 2023
In reply to @bigmaya "Thank you🙏 We see our oncologist on Monday and l'll show her this study. She just..." + (show)
@bigmaya

Thank you🙏
We see our oncologist on Monday and l'll show her this study. She just returned from a 3 year term in Ottawa. May it all be for the best possible. Amen.

Jump to this post

This site will give you the probability of remaining cancer free for each of the major treatment pathways.
https://www.prostatecancerfree.org/compare-prostate-cancer-treatments/

REPLY
pnichols7280 | @pnichols7280 | May 22, 2023
In reply to @melcanada "Why Orgovyx Is it better than Xtandi which I am on plus Zolodex injections and now..." + (show)
@melcanada

Why Orgovyx Is it better than Xtandi which I am on plus Zolodex injections and now Xgeva for calcium into the bones I take 1200 cal a day to

Jump to this post

Orgovyx doesn’t have as many side effects.

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.