Support Groups

Post-COVID Recovery & COVID-19 Support Group

Public Support Group
424 total results
Discussions (26)
recommendations for electrolytes (for POTS)
Hi all, I'm looking for recommendations for electrolytes with high salt content because I've been diagnosed with POTS. I'm looking for something with high sodium,...
Last active: Oct 8 7:30am
Some possible answers: Diagnosed with POTS
So, I had my first Long Covid Recovery Care appointment and was diagnosed with POTS. Which the doctor feels was brought on by Covid. He...
Last active: Dec 22, 2023
How common is POTS after long COVID exposure?
I’m having trouble understanding my current medical symptoms and situations in general. I was really sick on October 2021 but nose swab was negative all...
Last active: Feb 5, 2023
Anyone else diagnosed with POTS after having Covid?
Has anyone else been diagnosed with POTS after having Covid? Now my fasting glucose level is also high and I am having gut issues.
Last active: Apr 6, 2023
Diagnosed a while ago with POTS but my BP...
I was diagnosed with POTS about 8 months ago when at my PCPs, I was dizzy and my face went numb. 180/120. A quick dose...
Last active: Apr 18, 2023
Low dose Naltrexone for POTS helping alot
Hello all. Hope lots of you are getting better. My son has/had POTS. I put him on LDN and he is so much better. So...
Last active: Apr 20, 2023
POTS, Pre- or Post-COVID: Where did you find treatment and what helps?
Hello- I’m looking for others diagnosed with POTS, whether you had it before or after COVID. I’d like to know if you’re willing to share:...
Last active: Mar 31 7:54am
Failed tilt table test
Had Covid in Dec. of 21 and then again in August of 22. Multiple symptoms and illness left its wake. Received a diagnosis of long...
Last active: Aug 18 6:48pm
Newest and best long covid recovery treatments?
Has anyone had any substantial or helpful treatment for severe long covid? Interested to hear any novel therapies being explored. At this point, I am...
Last active: Sep 24 8:34am
Has anyone tried at-home vagus nerve stimulators for Long COVID?
I did a quick search and didn’t find a post dedicated to this, just a few comments, so here goes: Has anyone tried at-home vagus...
Last active: Oct 3 11:02am
This one's for the ladies... symptoms swing with hormones?
I've noticed that many of my symptoms exactly line up with fluctuations in my menstrual cycle. Especially the POTS ones and brainfog. Anyone else? I've...
Last active: Dec 13, 2022
Vomiting liquids post covid
Anyone else experience daily vomiting post covid? I had Delta variant 8/21 and Omnicron 1/22 and have been vomiting since. I had a virus in...
Last active: May 31, 2023
Anyone experiencing post covid heart issues?
hello, I am 19yrs old and have had Covid twice, once at the start of the year 7th Jan and recently 8th of July. I...
Last active: Oct 22, 2023
NIH RECOVER + FOIA = “they bungled it” I can’t speak to the veracity
Who knows? It would seem like government grants, bureaucracy, private vs public funding and politics, and a new complicated disease would cause confusion. This article...
Last active: Aug 21 8:27pm
Any tips on coping w/isolation, loss of support. LC since 2020
Hello. I was infected in Nov 2020. Began mild & then progressed to SVT, POTS, severe cognitive issues, laundry list you all know. Was in...
Last active: Oct 31, 2023
How does the Vagus Nerve play a part in PASC
I have heard about a clinic has succeeded in reducing the pain of PASC by stimulating the Vagus Nerve and offering other physical treatments. I...
Last active: May 15 11:11am
I feel like I’m slowly dying and nobody is helping
I’m at a complete loss. I feel like this is my one last ditch effort at reaching out for support. I only had Covid once...
Last active: May 26 12:41pm
New Study
Hi everyone, I just recently was asked by my LC Recovery doctor if I would be interested in a study they will be conducting in...
Last active: Apr 21 1:34pm
Anyone else hitting cardio levels (on Fitbit) when doing simple tasks?
For those of you that use a Fitbit and who seem to hit cardio level when doing simple tasks like standing or cooking. (AND who...
Last active: Nov 14, 2022
Novavax during Long Covid
Since March 2020, I have been amazed by the effects of Covid on my body: Atrial Flutter requiring cardioversion, POTS, Tinnitus, Mast Cell activation, double...
Last active: May 16 6:58pm