Post-COVID Recovery & COVID-19 Support Group

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Comments (508)

My son had long covid for over 2 years - POTS and MECFS. Out of desperation...

https://connect.mayoclinic.org/comment/868017/

Discussion: I am trying to get into Mayo for Long Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: May 28, 2023

That’s scary. I’m not sure if you want feedback or just encouragement? If you want feedback,...

https://connect.mayoclinic.org/comment/865358/

Discussion: Weakness, dizziness, balance.

Support Group: Post-COVID Recovery & COVID-19

Posted: May 23, 2023

I have been told my POTS is a common symptom of post covid. Most patients dont...

https://connect.mayoclinic.org/comment/799860/

Discussion: Anyone else diagnosed with POTS after having Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 21, 2023

I also have elevated alk phosphorus for over a year and just had an NP just...

https://connect.mayoclinic.org/comment/965269/

Discussion: Post-COVID Syndrome is real

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 15, 2023

The results are going to take 4-6 weeks due to staffing issues (only one dr reads...

https://connect.mayoclinic.org/comment/771912/

Discussion: Swallowing difficulties

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 11, 2022

I don´t have POTS, but I had the diagnosis of dysautonomia (without the POTS feature) long...

https://connect.mayoclinic.org/comment/1115119/

Discussion: Failed tilt table test

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 31, 2024

Hi- I know this is an older post, but thought I’d try reaching out. I was...

https://connect.mayoclinic.org/comment/1021762/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 24, 2024

I took Paxlovid. I got COVID in November 2022, and had all my extra doses and...

https://connect.mayoclinic.org/comment/892136/

Discussion: Did anyone with Long COVID, take Paxlovid ?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 8, 2023

I experience excessive sweating (hyperhidrosis) related to autonomic dysfunction (POTS) that was exacerbated after I had...

https://connect.mayoclinic.org/comment/1148817/

Discussion: Can LC cause hot flashes?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 28, 2024

It’s nice to know there’s someone else out there with POTS that got worse after COVID…though...

https://connect.mayoclinic.org/comment/1124378/

Discussion: Failed tilt table test

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 15, 2024

Thank you so much for the quick response. The high BP was a significant factor in...

https://connect.mayoclinic.org/comment/1171852/

Discussion: Myocarditis & unstable hypertension

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 11, 2024

I read Mt Sinai in nyc has a LC clinic. I don’t know which LC center...

https://connect.mayoclinic.org/comment/1141325/

Discussion: Newest and best long covid recovery treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 14, 2024

I have POTS from having long COVID. I can't imagine having it prior to having long...

https://connect.mayoclinic.org/comment/978969/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 12, 2023

You have same issues I do!!! 1) POTS I thought was supposed to drop BP. One...

https://connect.mayoclinic.org/comment/1156578/

Discussion: Has anyone had Heart Issues with LC?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 13, 2024

I have POTS from my booster shot- I also love LMNT for electrolytes and have a...

https://connect.mayoclinic.org/comment/800440/

Discussion: Anyone else diagnosed with POTS after having Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 22, 2023

My loved one has taken it several different ways. The cheapest way was her her to...

https://connect.mayoclinic.org/comment/1267376/

Discussion: Low dose naltrexone for Post-Covid Recovery experiences?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 26, 2025

I'm wondering how to join an NIH trial or study. I have POTS and Long Covid...

https://connect.mayoclinic.org/comment/1085670/

Discussion: NIH to Open Clinical Trials for Long COVID Post Exertional Malaise

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 12, 2024

I have the same issue. I seem to think it is related to the vaccine. I...

https://connect.mayoclinic.org/comment/1528073/

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 16 8:55am

Did you just take the regular 5-day course of Paxlovid and have that positive effect? The...

https://connect.mayoclinic.org/comment/1075931/

Discussion: Did PAXLOVID also relieve your arthritis and autoimmune symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 27, 2024

I had Covid jan 2020 and have not fully recovered. My platelet count was 1.2 million...

https://connect.mayoclinic.org/comment/1276842/

Discussion: How are the super long-haulers doing 3 to 4 years out?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 8, 2025

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