Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
Mental confusion side effect from Steroids
hi. I started 20mg Prednisone/Methylpredisolone one month ago. I am noticing that my brain doesn’t function like it used to. very forgetful and the strangest...
Last active: Feb 24, 2022
Discussion
Safe dose and tapering on Glucocorticoid therapy.
British Medical Journal article. This is the most informative article i have read so far and answers questions about tapering schedules, split dosing and why...
Last active: Mar 7, 2024
Discussion
Prednisone increase amount to treat flare up
I developed a very severe case of PMR 2 years ago. I started on a fairly high dose of prednisone and responded well quickly. I...
Last active: Apr 3, 2024
Discussion
Where to go for comprehensive evaluation?
Wanted to know where in the United States to go for a comprehensive evaluation for PMR? Not responding to prednisone taper and Kevzara. Looking for...
Last active: May 25, 2024
Discussion
New to PMR diagnosis
Hi, I am new here and just finding my way. I have some questions. I was recently diagnosed with PMR. I took the initial diagnostic...
Last active: Apr 26 12:55pm
Discussion
Shortness of breath ..dyspenia..while on prednisone
I entered rheumology land when my c- reactive was off the charts. Pred at 15 mg brought it down to like 1! But on the...
Last active: Jun 4 6:08pm
Discussion
Facial puffiness? PMR/GCA on Prednisone/Actemra
My husband has PMR since May 2023 and GCA since February 2024. He’s on 50 mg of prednisone and weekly shots of Actemra since developing...
Last active: May 5, 2024
Discussion
Glucocorticoid-induced Adrenal Insufficiency
Finally some guidance from endocrinologists. This is recent information about a topic that is near and dear to me. It discusses many of the problems...
Last active: Apr 28 11:16am
Discussion
Prednisone is like running UP a DOWN staircase
Hi all. The unpredictability of prednisone is what causes me the most problems. I know the Myriad of side effects, both physical and mental, are...
Last active: Jul 6, 2024
Discussion
Tingling fingers part of PMR symptom?
Been tapering for about 5 months. I have reduced my prednisone level from 7.5mg for quite a few weeks to now 6mg. On 6mg for...
Last active: Nov 25, 2024