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Polymyalgia Rheumatica (PMR) Support Group

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4,213 total results
Discussion
Do CPR and SED rate numbers correspond to pain levels?
I was newly dxed with PMR about 3 weeks ago. I have had a good response to prednisone, started on 10 mg, now tapering with...
Last active: Mar 1 9:28pm
Discussion
Kevzara and prednisone for almost a year-
I have been treated for PMR with prednisone since June of 2022. Was doing well on 10 mg until 2 discs blew out in November...
Last active: May 21, 2024
Discussion
Any experience with Actemra - for my mom who is 90 years old
Subject: Actemra for 90-Year-Old with GCA, High BP & Kidney Disease — Looking for Real Experiences Hi everyone, I’m hoping to hear from anyone who...
Last active: Jul 14 7:21pm
Discussion
My story may help
I think we’ve all noticed that PMR and Prednisone seem to have different stories for everyone. I believe my experience may help some of you...
Last active: Jul 6, 2023
Discussion
PMR symptoms worse in winter? Seasonal?
My PMR was finally diagnosed in January 2024 after my having what I now know were classic symptoms starting in November 2023. Symptoms started slowly,...
Last active: Dec 5, 2024
Discussion
Tapering angst
It’s been awhile since I joined and introduced myself. I began my PMR journey July 2022 taking 15mg daily. I thought I was doing a...
Last active: Aug 5, 2023
Discussion
Still Struggling with that last mile on the path to 0 mg
After two months on 1/2mg of prednisone, various setbacks, and revisiting PT, I started to feel quite a bit of improvement, which led me to...
Last active: Aug 21 5:29pm
Discussion
Suspect Open Angle Glaucoma after seven months on prednisone
I started prednisone towards the end of April. I began at 15 mg, and have tapered down to 4 mg as of three days ago....
Last active: Nov 30, 2024
Discussion
Starting treatment with Kevzara: My journey
Good morning everyone.Well, yesterday was my first dose of Kevzara and day one of my taper down to 15mg of prednisone. We'll see how that...
Last active: Aug 27 9:25am
Discussion
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Apr 26 2:13pm