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Polymyalgia Rheumatica (PMR) Support Group

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Discussion
Polymyalgia rheumatica: Any thoughts on my taper plan?
I am currently on 2.5 milligrams of prednisone. I plan on tapering 1/4 milligram every 4-6 weeks to hopefully get down to zero. Any thoughts...
Last active: 4 days ago
Discussion
Testing for Cortisol levels during taper of prednisone
Has anyone's Rheumatologist done this blood test say half way through a taper? If so, what were you're results?
Last active: Mar 8 7:24pm
Discussion
Using Kevzara to taper down from prednisone
How do you know when you are successfully tapering down from Prednisone while on Kevzara? What levels of pain and fatigue are to be expected...
Last active: Jan 16 7:35pm
Discussion
Successful (so far) approach to a super slow taper
I have suffered from PMR since 2019, first starting treatment in February 2020 at 20 mg of prednisone, which was immediately effective, and I subsequently...
Last active: Nov 3, 2025
Discussion
Prednisone taper: Apparently < 4mg no longer controls inflammation
Any thoughts on this. I had my 6 month check up with my PCP and was discussing my PMR. I am being treated by a...
Last active: Aug 3, 2025
Discussion
taper decision - stay at 1MG or keep going lower
After 20 months of tapering, I am down to 1MG. No muscle issues but general fatigue and droopy eyes. I've had 2 relapses but not...
Last active: Apr 15, 2025
Discussion
How long to take Kevzara and how to taper off Kevzara?
I have been taking Kevzara for 16 months now. It allowed me to taper off Prednisone within about 4 months after the first injection. I...
Last active: Jan 28 1:14pm
Discussion
How to Slowly and Safely Taper Off Prednisone but ... no set rules.
The following link addresses prednisone withdrawal symptoms and adrenal insufficiency. There is a nice video that explains how prednisone replaces our natural cortisol -- a...
Last active: Sep 26, 2025
Discussion
Prednisone Taper from 40 mg to 7.5 in one day ‘
My doctor wants me to reduce my 40 mg of prednisone to 7.5 mg I feel like that is an awful big drop ! Has...
Last active: May 11, 2023
Discussion
Have you been able to taper prednisone with long lasting success?
I’ve had PMR for 8 months. Every time I taper the prednisone down to 5 mg the symptoms return. Getting frustrated and wonder how long...
Last active: Jun 17, 2023